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khaya

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3 reviews

Review for Michigan Lyme Disease Association, Chesterfield, MI, USA

Rating: 5 stars  

I was diagnosed with Lyme disease in 2000. I had been infected since around 1965, but not diagnosed until then because doctors didn't really know much about it--it wasn't on their radar. So for a number of years I hardly left the house except for doctors appointments. Finally I decided to attend a support group, as long as my husband would drive me. I contacted the group leader and said I would probably leave early, because I tire easily. She said fine. But the group was so interesting, that I wanted to stay until the end, and kept going almost every month. I was learning so much! Eventually I decided to start another group, closer to home. MLDA helped me get it started and has given me and my group members so much helpful advice! All of the board members are volunteers, and most of them have personal experience with Lyme disease, so they really are dedicated and they really understand what the rest of us are going through. They also do education projects for doctors and other medical professionals, and use the organization's funds for research, so we know where the "hot-spots" are in the state. Getting involved with MLDA has made a huge difference for me and my husband and we really appreciate the work that is being done to help prevent others from getting infected, and to help those of us who are who already are.

Role:  Volunteer
 

Review for Michigan Lyme Disease Association, Chesterfield, MI, USA

Rating: 5 stars  

When I was diagnosed with Lyme Disease in 2000 I did not know what it was, and had never met anyone else with it, except for my doctor! it took several years of feeling isolated during my treatment before I finally found MLDA, and it has changed my life. The friendships, support, and education I have received from this group (and continue to receive) has been amazing! And it is wonderful to be appreciated for my efforts to help others in our group.

If I had to make changes to this organization, I would...

Find a way to get more people involved.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

Role:  Volunteer
 

Review for Michigan Lyme Disease Association, Chesterfield, MI, USA

Rating: 5 stars  

I have found the leadership of MLDA to be accessible and eager to help each individual person who requests information and/or help. The leader and members of the group I have been attending are friendly and open in sharing their knowledge and experiences with each other, including newcomers like me. When I suggested holding a public educational meeting at my church, the MLDA president helped us plan it and personally came to speak and share educational materials. People who spoke with me afterward were very impressed and found it a very enlightening experience.

I've personally experienced the results of this organization in...

My own knowledge and understanding of Lyme Disease has been greatly expanded and I hope this process will continue as I am dealing with Chronic Lyme Disease.

If I had to make changes to this organization, I would...

I believe there are many LD patients like myself who would benefit from joining support groups if they knew about them and could find one that is easily accessible from their home. As MLDA attracts new members, more support groups can be established.

What I've enjoyed the most about my experience with this nonprofit is...

meeting other people whose lives have been affected by Lyme Disease and learning how they have been dealing with it.

The kinds of staff and volunteers that I met were...

Friendly, helpful, and generous with their time and energy.

If this organization had 10 million bucks, it could...

Provide more education to patients and doctors.

Ways to make it better...

If I had joined sooner.

In my opinion, the biggest challenges facing this organization are...

the general public and many doctors and health boards are unaware of the severity of the Lyme Disease epidemic.

One thing I'd also say is that...

There is still so much to learn.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

Role:  General Member of the Public & I recently joined MLDA as a member and began attending support groups.