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Michigan Lyme Disease Association

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Nonprofit Overview

Causes: Health, Public Health, Specifically Named Diseases

Mission: Our mission as the central voice in Michigan is to help prevent Lyme Disease and other Tick-Borne Disorders while helping to support research. Providing support and education to Lyme Disease patients, caregivers, Health Care Professionals and the general public. 

Target demographics: with support, education and research on Tick-Borne Diseases.

Direct beneficiaries per year: Research in Michigan, Doctor Education, Public Education

Geographic areas served: State of Michigan

Programs: Educational Lectures to Organizations/Businesses. Hosting Conferences to Educate Physicians. Supporting Research efforts. Setting up educational booths to educate the public. Setting up support groups to help patients.

Community Stories

108 Stories from Volunteers, Donors & Supporters

General Member of the Public

Rating: 5

I just moved back to Michigan, after having my health decline severely out of state. I was bit almost 10 years ago and have seen dozens of doctors and have taken hundreds of vials of blood all for absolutely nothing. Because it was Lyme, now neurological Lyme due to its late diagnosis. I just moved back to MI to live with a family member, unable to work and went to my first support meeting with Khaya Davidson and Kim Cooney. I was SO blown away by how amazing this support group was! They had an amazing guest speaker and the crowd of people were fantastic to speak to. I was probably one of the more educated individuals there, in regards to Lyme and chronic illness, these people need these support groups so they can obtain more information from those that have spent countless hours on research. I need this group for support and guidance on doctors in the area. All in all, I was so happy I went, it was incredibly helpful and cathartic, Khaya and Kim are amazing and I'm so thankful for this support group. This disease is devastating and we need it desperately!

kcooney8

Volunteer

Rating: 5

When I was first diagnosed with Lyme Disease they sent me literature to understand what Lyme is, various treatments, how to protect myself and family in the future. They do educational booths to raise awareness, and work with other agencies in Michigan to determine highly populated areas with ticks and identifying what infections are current in Michigan. This is also important as Michigan is known for its tourism

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Board Member

Rating: 5

I had Lyme Disease about 25 years ago and it went into remission. However it came back about 4-5 years ago. In googling it I found the MLDA and allied. The president directed me to a LLMD (which I had no clue what that meant then). They also sent me a lot of information on LD and answered a lot of questions. I was also given a list of names I could contact for support sand eventually started a support group in my area. I wouldn't be here today if it weren't for the MLDA. They supported me at my lowest points and ow I'm able to give back. They also have an e mail support for those that prefer that way as well as many FB groups on Lyme Disease. It's great getting new info and communicate with someone who understands what I'm going through. I will forever be grateful for this non profit organization

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General Member of the Public

Rating: 5

This organization has been a wealth of information for myself and loved ones whom I am trying to help. I have called members of the MLDA multiple times and they have always been receptive to answering my questions, providing direction to websites to visit or books to read, I cannot say enough good things about the caring demeanor of Linda and others in the MLDA. They have never solicited donations when I have called, rather at every turn they have been completely dedicated to helping and providing information. A true definition of a non-profit

Chelsea18

General Member of the Public

Rating: 5

I do not have Lyme disease but this association has really informed me of the disease and what to look for and even how to educate others on what Lyme disease is. The MLDA has many brouchers and other informative materials. It truly is a great organization.

rocketdog

Client Served

Rating: 5

MLDA has been very helpful to me in negotiating treatment for my illness. They are a valuable tool for anyone in the state who has lyme disease.

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Client Served

Rating: 5

This organization helped me tremendously when I needed information about my illness. I received support I needed such as doctor information, treatment options, support groups and online forums. I have referred several people here as well.

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General Member of the Public

Rating: 5

MDLA does a great job providing research and information on a disease that is severly misunderstood.

Client Served

Rating: 5

Thank you to MDLA and Linda for being there to help educate the many thousands of people about Lyme Disease and Prevention.

General Member of the Public

Rating: 4

MLDA provides a wealth of information on all things Lyme related. I especially like their interest in homeopathic resources. As I've learned Lyme cannot be treated by conventional medications alone. Linda has been an invaluable resource and all the MLDA members owe her a great deal of gratitude.

pamela9

Client Served

Rating: 5

linda has been there for me over and over michigan lyme is great they help so many people thank you

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Client Served

Rating: 4

i feel very blessed to have this in michigan linda is wonderfull education is whats needed they provide that pam maize

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1 Teddi

Volunteer

Rating: 5

I've had and been disabled with Lyme Disease for 25 yrs. It is a most serious and complicated disease. MLDA is vital to education, fundraising, outreach, in MI. The president, Linda Lobes, is an extremely devoted worker who has been a much need resource and support for myself as well as many other patients, physicians and others in MI. I can't say enough positive things about this organization.

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3

Volunteer

Rating: 5

MLDA is a continual source of valuble information and support for myself as well as hundreds of others. I visit the online support group almost daily. Sometimes I ask a question or sometimes I just learn by reading input from others. It helps me to not feel so isolated ecspecially when I'm unable to get out due to fatigue or head pain. MLDA is by far my favorite non=profit group!

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Carrie28

Volunteer

Rating: 5

The MLDA is a wonderful organization with caring and dedicated individuals, who are a great resource for those who need help with anything to do with Lyme Disease and associated confections. We strive to raise awareness through many research campaigns, brochures and much more. All to often we provide support to those in need to many newly diagnosed patients and health professionals seeking additional information. Without the MLDA, many would struggle in knowing where to go for help or information on what Lyme Disease is all about. I'm happy to serve as a board member, in continuing to help educate the public and assist in much of the planning the goes on for the association.

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2

Board Member

Rating: 5

I've had lyme disease now for 18 years but took a year to get diagnosed. I was quite young at the time, 15 years old and my mom was desperate for help. We thank God every day that we came across the MLDA, and the president Linda at the time. She helped us immensely and has helped me to want to give back by joining the board. Without the MLDA, many people would be lost. They are THE best non-profit I know. I don't know where I'd be today without them.

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1

Client Served

Rating: 5

I can't tell you how many people I have referred to this organization. They do very important work raising Lyme Awareness, helping those who have been bitten by a tick or who need to be tested for Lyme Disease, testing areas for ticks/Lyme Disease and much more. With this disease prevention is so important so we desperately need MLDA!

2

Professional with expertise in this field

Rating: 5

This organization is a great source of support for patients and health professionals. They are unique in their ability to understand the importance of supporting research in their own state, as well as other states, and they have a proactive...professional relationship with all tick-borne health stakeholders. They do a fabulous job of educating the public and health professionals, too.

2

Board Member

Rating: 5

Next month (9-13-2014) will be 21 years with Lyme disease. ( Also had Babesia and Ehrlichia) I would not be here today. if someone from the MLDA did not help me. I was very ill and needed help. The ER Dr. said I would be fine and not to worry. I started volunteering early on. I am the secretary and the person who sends out all the information to those who ask. Over the last 21 years I have sent out tens of
thousands of pieces of literature. We do not charge for any of it. We pay for all the printing and postage ourselves. I am mostly homebound now but still send out information and do what I can.. Through the MLDA I have seen the education of medical personal rise, slowly but surely and it is all through the
hard work of the MLDA.

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Board Member

Rating: 5

When I got bit in 1993, there was almost no help from the medical community. I was so sick, most days I didn't know who I was or where I lived. The MLDA helped me in so many ways. When attending support group meetings, then board meetings I found out that they were the only ones interested in getting information to people. iI is hard to function and find information when your brain is swollen. If it wasn't for them, who gave me information to take to my doctor, I am sure I would probably be in a nursing home intead of now being a volunteer and "passing it forward" This is a great organization.

1 Martha V.

Client Served

Rating: 5

MLDA has provided my family and I with much needed information about Lyme Disease in Michigan and assisted with finding a Lyme literate physician. When someone else has questions about Lyme, I send them to MLDA.

1

Client Served

Rating: 5

When my son was diagnosed with lyme disease 7 years ago I had no idea where to turn. Thankfully I found the MDLA. The president was so helpful in finding a doctor and just general support has been great. We attended a MDLA support group that was active in our area for a while, and again, very helpful people. Always good information, always time to talk. Have referred many people to the group and always everyone is happy with the support they recieve. The leadership goes above and beyond the call of duty! Great origanization!!

1 2007robbie

Client Served

Rating: 5

When I have a question, or need to find a specialist who has seen other lyme patients, I can call the Michigan Lyme disease association and they are able to answer my questions or let me know where I may be able to find a dr.
I know of no other group that helps lyme patients like the MLDA.
Many people would suffer needlessly if it was not for the Mlda.

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Client Served

Rating: 5

I belong to a lot of different lyme groups on the net and via mail. The MLDA is one of the best. They work very hard to help others with this disease. They have a great phone support system, web posting site and even have some local support groups. Thanks so much to Linda and all of you who have supported me in the past.

1

Volunteer

Rating: 5

When I was diagnosed with Lyme Disease in 2000 I did not know what it was, and had never met anyone else with it, except for my doctor! it took several years of feeling isolated during my treatment before I finally found MLDA, and it has changed my life. The friendships, support, and education I have received from this group (and continue to receive) has been amazing! And it is wonderful to be appreciated for my efforts to help others in our group.

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General Member of the Public

Rating: 5

I have found the leadership of MLDA to be accessible and eager to help each individual person who requests information and/or help. The leader and members of the group I have been attending are friendly and open in sharing their knowledge and experiences with each other, including newcomers like me. When I suggested holding a public educational meeting at my church, the MLDA president helped us plan it and personally came to speak and share educational materials. People who spoke with me afterward were very impressed and found it a very enlightening experience.

2

Client Served

Rating: 4

There are no doctors from my area who understand how to treat Lyme disease. The infectious disease physicians do not believe chronic Lyme exists. Well for more than 2 years I have had it and now have proof positive with accurate testing. With help from Michigan Lyme Association I found a doctor who knows how to treat Lyme right in Michigan. Without their info I would still be searching...and sicker. I can't thank them enough and finally feel like I am on the road to recovery.

1

Client Served

Rating: 5

The Michigan Lyme Disease Association has given me lots of valuable information. It is great to get support from others who are going through similar things as I am.

Previous Stories
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Client Served

Rating: 5

This is a great source for people who have Lyme Disease to get questions answered and have great support. Lyme can be a lonely illness because often you don't feel well enough to get out with others. The group provides the support that I need! I am glad that I don't have to feel alone!