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langley333

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2 reviews

Review for Kids Cancer Foundation, Inc., Royal Palm Beach, FL, USA

Rating: 5 stars  

When our son 13 yr old Langley was DX with Hodgins Lymphoma his dad had left on military active duty one week before for 2 years.

Sitting in the ER getting admitted not prepared for what was ahead of us and in shock. Having his twin sister at home 1.5 hours away alone with no family or close friends where we live or able to come help. (New to area).

Additionally ,Langleys older brother Eric left for college for the first time 2 days prior and has a disability that sometimes requires my attention. I was not sure how or what to do.

Kids Cancer Foudation , Michelle O’Boyle showed up immediately to sit with me & his doctor assuring I understood his treatment plan.

Michelle & other volunteers bought handmade quilts making a cold hospital room less scary.
Games to keep him busy. When he could have outside food they arranged it.

One most important things was * A notebook for me to track all the medical data and keep records & bills.

Kelly Weiner ,Esq. came to school with me to assure he recieved a homebound education and let a difficult school system know his rights.

Now in remission about 9 months they help us get into oncology camps which are helping Langley understand he is not so different and aide with PTSD he’s developed.

They submitted us to Make A Wish.

They helped us get with another local group “Smiles” to get a laptop for school work.

Kids Cancer Foundation cares. They do not just walk the first mile with you and leave . They walk the second journey. They become family.

There is absolutely no way I could have done this alone? And if not for them we would have been just that completely alone.

It was the difference between tears and the smiles on our son in the photos attached.

(No other national cancer agency because he was a “child” offered us any support emotionally or otherwise.
Also because Langley is not a “research” study St. Judes turned us down.

** More people need to understand the huge role this agency plays for Florida children. )

Role:  Client Served
 

Review for Kids Cancer Foundation, Inc., Royal Palm Beach, FL, USA

Rating: 5 stars  

Our 13 yr old son Langley was diagnosed with Hodgkin's Lymphoma in June. It came as a complete shock to our family and with his dad on active duty away from home.

We got a call Tuesday night I remember thinking it had to be a mistake? All his tests came back normal till now.

That Wednesday we were immediately admitted to Palms West .. we were not expecting this and totally unprepared , alone with no extended family.

You can imagine how fast everything happened and how hard it was for our son.

It was at this point Michelle came from the Childrens Cancer Foundation to welcome us.

Langley could not believe people he never met cared so much. The hospital room stark white was now transformed with 2 brightly colored quilts , a soft teddy bear and some toys to keep him busy. It changed the whole experience for us from one of shock to one of comfort.

He still has Cancer but maybe just a bit less scary to us all. We could never have gotten thru any of this without the continuing support provided by the Childrens Cancer Foundation.

Role:  Client Served