My Favorite Nonprofits

  Michelle391 wrote:

When I was diagnosed with syringomyelia I panicked as I had never heard of it, I googled it and read an article which said the... more »

  JS703 wrote:

I found ASAP many years ago when searching for answers about Chiari and syringo. Since then, I have attended three annual conferences... more »

  tcgeary wrote:

My journey to being diagnosed with EDS was long and very challenging taking more than 10 years. I felt very alone. Being dismissed... more »