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Jeannine.Ricci

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1 reviews

Review for USACFA, publishers of CF Roundtable, Gresham, OR, USA

Rating: 5 stars  

USACFA has made a difference in so many lives of those living with CF over the years. I began reading the newsletter about 15 years ago and I always learn something new. Besides informing their readers of clinical advancements and clinical trials, they also address the emotional impact of CF. So often this aspect of CF gets overlooked. Reading articles written by adults with CF who have walked the same path as you provides support that is so difficult to come by in a rare disease community, especially given the isolating effects of strict infection control policies. I'm so proud to be a part of this organization!

Role:  Board Member