I am a 51 year old woman living with CF and I have a 31 year old son and I have been married to the same man for 35 years we have been through hell and back including living in a camper from October 2022 to May 2023 and that is in New York state .we have a Mobile home/trailer that is in a trailer park.
Roundtable was such a comfort to both my daughter, Melissa, who had a living donor lobar transplant and myself when we were just starting out this transplant journey. We both attained so much valuable information and met some of the most encouraging people. Melissa was very excited to meet many contributors throughout the years. There are and have been so many loving, kind, and helpful people who have passed through the pages of Roundtable. Though we lost our daughter in 2000 after living nine years with her new lungs, we are still grateful to have had the opportunity that we did. Even though Melissa has been gone for many years, her father and I continue to support this publication in hopes that others will be helped from their experience and history. Here is a picture of her dad performing a marriage ceremony for her and her husband.
Great publication with dedicated volunteers bringing stories to connect people with CF and their families and caregivers.
Such a great non-profit! I was able to share my story with others in the CF community. I love to get the issues and read and learn everything I can. I was late diagnosed and I feel like there is more to learn every day. I appreciate the people who work to put it together.
When my now 37 yr. old son was diagnosed at 10 with C. F. , i started getting the CF Roundtable, or shortly thereafter. It was my only source of information and my only
Connection to anyone with CF. I looked so forward to getting it , so I could learn more about it. I thank you so much for your wonderful news letter. My son will be 38 in November and is in good health. The new medicine he takes has done wonders
My son Bernie will be 35 years old with CF, CF Roundtable has been inspirational, educational and supportive as a parent and caregiver. He is married now three years and had his first baby through IVF. Couldn't have done it without this fantastic newsletter!
CF Roundtable is an excellent publication that serves to better the Cystic Fibrsosis community through inter-patient collaboration, patient testimonials, and keeping the CF community up-to-date on the latest research breakthroughs. It is a strong support system for the CF community. I have experienced this first-hand, as I am a CF patient myself. Thank you to USACFA for providing such a wonderful and vital support system to the CF community! Five stars!
I love being a volunteer for CF Roundtable and connecting more deeply with the CF community by reading about CF experiences through the CF Roundtable newsletter, website and social media. I learn so much and realize how many experiences are similar to mine; I get to collaborate with many others with CF in the community. This is an outstanding organization providing a unique product that helps adults with CF cope with this disease.
CF Roundtable has been a lifeline of information and support for my family and the CF community.
Hoping you continue your good works long after a cure is found!
I have been involved with CF Roundtable for 23 years. I love being involved with this organization. The newsletter provides me and so many others with valuable information and a variety of perspectives on living with CF. The volunteers involved with the group are all committed to helping others with CF and providing a support network through the newsletter and other activities. My life has been enriched by my involvement over the years.
Previous Stories
CF Roundtable has been a life saving resource for me and many others. The newsletter started as a resource for adults with CF when there were no other adult focused organizations. I also think parents of children who have CF can also gain a lot by reading the articles in the CF Roundtable.
Now with the addition of a blog CF Roundtable provides up to date information on medical research and up to the minute information on efforts to protect the rights of people with CF.
The CF Roundtable community of readers are interested in learning more about CF and always ready to help others. The articles provide important information that helps people live healthier lives. Reading about others with CF makes me feel stronger and gives me hope for the future. Writers provide information that has resulted in me learning about new ways to deal with CF and the effects it has on my life. I am grateful for the CF Roundtable.
Well, now it has been 29 years that I have volunteered with USACFA and CF Roundtable. I feel that every one of my volunteer moments has been well spent. Since there are no paid employees, all the work is done by volunteers who have CF.
I learn something new about my disease every day because of the articles that our readers submit. When we started this organization in 1990, we knew it could take 20 years to get established and to accomplish our goals...and it has. We now are able to give scholarships to deserving young people who have CF for their vocational or college educations. The newsletter has grown from a dozen pages at the beginning, to 60 pages that are chock full of good info.
I will continue to volunteer here as long as I am able.
Previous Stories
It has been my pleasure to volunteer with USACFA and CF Roundtable for 28 years. This group puts every cent that it receives into production of the only newsletter that is just for adults who have CF in the U.S.A. and into sharing information and resources with those adults. There are no paid employees of the organization. One hundred percent of your donation goes to the stated goals of the organization. I have CF and I find the newsletter invaluable.
CF Roundtable is a non-profit run completely by volunteers with cystic fibrosis. The newsletter brings together those with CF to discuss, support and learn - with the ultimate goal of enhancing the lives of those with CF.
I have been reading CF Roundtable since 1998. I am so grateful for the connection to the CF community and information regarding the illness.
CF Roundtable was one of the first places I was able to find support for and information about living with CF following my late diagnosis. Each issue and every page of the newsletter was read as soon as it arrived in my home. The wisdom and experiences of others was valuable support in my learning about living with CF.
Previous Stories
CF Roundtable was the first source of information about living with CF as an adult that I found after being diagnosed 13 years ago. I had so much to learn. Having the resources of CF Roundtable together with my CF care team has made my introduction to CF a little easier and definitely richer.
CF Roundtable is just wonderful!
The stories and articles really hit home and are so relevant to our life as my spouse has CF.
I am often quite touched by the experiences that are expressed in this top notch publication.
Thank you CF Roundtable
USACFA is the greatest disseminator of information for adults with Cf. The stories are real and recognize aspects of CF that are often ignored. I am so thankful for USACFA’s commitment to being such a wonderful resource for the CF community!
I look forward to reading the CF Roundtable every three months, and not just because my cousin, Kathy Russell, is the Managing Editor! The articles are informative, poignant, funny...sometimes all at once. It does give me more insight into Kathy's world. I sometimes share CF Roundtable with parents of CF children who are unfamiliar with the publication. CF Round Table provides a sense of community and hope. I am grateful for all of the hard work that goes in to it, and for the organization it represents.
Previous Stories
I was invited to be a director for USACFA from the now Vice President, during a difficult time in my life when I came to the realization I could no longer pursue a full-time career due to my health. USACFA has allowed me to find my passion for connecting and helping others in the CF community. I have met so many amazing fellow CF fighters through this organization. I can't say enough good things.
Previous Stories
USACFA (CF Roundtable) is an amazing organization that I have become a part of in the past year. Fellow directors are some of the most dedicated, inspirational, driven, and intelligent people with CF I know. This publication has allowed me to share personal experiences and struggles of living with CF as well as learning an incredible amount from reading other's stories as well finding out about new research on the horizon for CF patients. USACFA and CF Roundtable has helped me connect to the CF community in a way I never thought I could and I am so thankful and delighted to be a part of this organization!
CF Roundtable is a non-profit run completely by volunteers with cystic fibrosis. The newsletter brings together those with CF to discuss, support and learn - with the ultimate goal of enhancing the lives of those with CF.
CF Roundtable Newsletter is filled with invaluable information. It has taught me so much over the years. The articles serve as an educational resource and as a source of support. The articles, all written by adults with CF, address the physical and emotional challenges of living with CF.
I cannot say enough good things about not only benefiting from the CF Roundtable, but also being involved as a volunteer. Before I became a Director, I enjoyed what USACFA offered the Cystic Fibrosis community. They are staple and have led the way for other organizations in terms of information and creating unity. As a Director, I have felt nothing but support, have been given all of the necessary tools to succeed, and have felt a great sense of pride being able to contribute in the best way that I can. The organization as a whole is so passionate about what they are doing that it is easy to find the motivation to be as involved as possible.
I love reading CF Roundtable. When the newsletter arrives in the mail I stop what I am doing and read it cover to cover. Blog posts are also very informative. CF Roundtable is a treasure. I learn si much from each article.
I have been reading CF Roundtable for many years and I'm proud to serve as a board member for the organization. The newsletter, blogs, and social media presence are such a great resource for all of us with cystic fibrosis. It's free and easy to sign up.
I started reading CF Roundtable several years ago. I'm now proud to serve as a board member for the organization. The newsletter, blogs, and social media presence are such a great resource for all of us with cystic fibrosis.
The great thing about the CF Roundtable is that it keeps evolving. The publication continues to provide very insightful and timely information by and for those with Cystic Fibrosis. Published quarterly, each issue has a focus topic theme in addition to regular columns like Ask the Attorney, Speeding Past 50 and Information from the Internet. Where the organization has grown has been in adapting to reach out further into the community. Originally mailed to subscribers only through the US Mail, the CF Roundtable is now available for download along with past issues and several blogs are published via email each week. It is a great way to stay connected. Finally, the organization which publishes the CF Roundtable now offers scholarships to students with CF proving their commitment to further strengthening the CF community.
Previous Stories
The CF Roundtable is a fantastic publication. As an adult with CF, I look forward to receiving my free quarterly issue by US mail and by email. It's rare to find a newsletter that connects on so many levels but the CF Roundtable consistently does just that. It addresses issues that I have dealt with or most likely need to plan on dealing with in the future. Every page provides insights and perspectives from a CF adult, family member or caregiver. It's inspirational, educational and sometimes funny. And the best part is that when I find it appropriate, I can share my story with the greater CF community, get published and feel like I'm really making a difference. The CF Roundtable has also been a valuable tool for my wife to learn about aspects of CF that she might not normally be exposed to. Thank you Roundtable for bringing the CF family together.
I've been reading the CF Roundtable, published by USACFA, throughout my adulthood (I think I received my first newsletter in college, I've been in my professional career over fifteen years) -and always learned something from it. The content is a balance of practical work/life and up to date treatment information relevant to the cystic fibrosis community. The outreach over the years has only grown and expanded - through social media and other outlets to continue to offer content accessible, and free, to both subscribers and the public in whatever format they opt. With so much going on in the adult CF community, it is great to have the CF Roundtable put everything together in one place.
USACFA has made a difference in so many lives of those living with CF over the years. I began reading the newsletter about 15 years ago and I always learn something new. Besides informing their readers of clinical advancements and clinical trials, they also address the emotional impact of CF. So often this aspect of CF gets overlooked. Reading articles written by adults with CF who have walked the same path as you provides support that is so difficult to come by in a rare disease community, especially given the isolating effects of strict infection control policies. I'm so proud to be a part of this organization!
As a volunteer for the US Adult CF Assn and an avid reader of their newsletter, Cf Roundtable, I feel they offer the CF community support, inspiration and an environment to share experiences. Living with cystic fibrosis can be isolating and lonely but being part of this organization helps me feel part of a big family who cares. I am happy to see them grow and gather more readers who then become writers.
USACFA (publisher of CF Roundtable) has always been a beacon of advocacy in the CF community. Their publication covers many avenues of living with CF, and always offers a well-organized, thought-provoking, and optimistic tone for the reader. So thankful for all that they do, and I'm honored to work with such a passionate group of people.
As an adult with cystic fibrosis, CF can be an isolating disease. CF patients are not allowed physical contact with each other and the CF Roundtable provides a critical outlet for patients where we can connect and share experiences and knowledge. The publication is diverse and addresses a wide variety of issues within the CF community, including social and financial challenges, seeking higher education, working, traveling and clinical innovations. There really is no comparable publication in the CF community!
I have been reading CF Roundtable for many years and am proud to now be a part of the organization. It is a great resource for those with CF to learn about studies and exciting news in the CF world. But it is also a great way to connect with other CF adults and their stories, via the quarterly newsletter and online on the CFR blog. I highly recommend this organization for anyone with CF.
CF Roundtable, produced by USACFA, is an invaluable resource for anyone dealing with CF, whether it be patient, caregiver, or medical professional. CF Roundtable provides first hand accounts of what it’s like to actually live with CF and is also a fine source of information and research. CF Roundtable is inspirational, to say the least, as are the volunteers who produce it.
Previous Stories
CF Roundtable is one of the most valuable resources currently available for adults with CF as well as caregivers of those with CF. It provides a unique perspective of living with the disease as well as practical information and research. Given the fact that it is produced by volunteers who all have CF makes it particularly remarkable. Kudos to those who do such a fine job of keeping the CF community so well-informed and so connected.
As a 52 year old with, I have been reading, enjoying and benefiting from the roundtable for about a year. It is an important resource for people with CF, parents and family members, providing information about scientific developments in easy to understand language. Thanks to all the people working on this.
As a 49 yo CFer, I have been reading, enjoying and benefiting from the Roundtable since its inception many moons ago. It is an important resource for people with CF, parents and family members, providing information about scientific developments in real-speak, a column highlighting studies and news related to CF, ideas and stories written by USACFA members and guest writers on how not only to live with CF, but thrive. It has done a great job keeping up with the exciting and dramatic developments in medication and treatments. Roundtable is a critical tool for a small community, bringing us together and keeping us informed, inspired and hopeful. A treasure kept alive by incredibly dedicated people for whom I am very thankful!
The CF Roundtable provides a very informative newsletter for those with cystic fibrosis. I have learned a lot from it. It also has very good blog posts about important news that comes up in between newsletters. It brings a sense of community to those with CF as well as understanding to the many complexities of this challenging disease.
Awesome organization! Community sourced information that is important for all members of the community. Special focus on adults living with CF. Would highly recommend this organization to anyone looking to stay up on all aspects of cystic fibrosis, science, social and more.
My wonderful wife has CF and USACFA (and the CF Roundtable) are an invaluable source of information that helps to keep me up-to-date on the latest CF news but also serves as a space of inspiration and reflection with every issue. Thank you to the USACFA team and all of the incredible CFers out there. You're the best!
I have been a board director for USACFA since 2013. Prior to joining USACFA I was a long-time reader of CF Roundtable, which is published by USACFA. The board directors are dedicated to educating, empowering and sharing valuable information with the CF community. I am honored to be part of this organization!
Previous Stories
The US Adult CF Assn (USACFA) is an excellent organization that I have been proud to be part for 7 years. CF Roundtable and the accompanying website are tremendous support for me and, I believe, for the CF community. I'm able to meet others with CF through the CF Roundtable social media sites, share our stories, learn from each other and laugh too.
The newsletter is engaging and chockfull of information on all aspects of CF. I look forward to its arrival in my mailbox. I encourage any adult with CF to subscribe to it!
Previous Stories
CF Roundtable is fabulous source of support for me, my husband and family. The articles are so informative and inspiring such as Beth's legal and Laura's research updates, Isa's spirituality, Julie's Wellness and Kathy's getting older columns. The focus topics often leave me chuckling, commiserating, awed or taking notes depending on the topic. I read it cover-to-cover as do members of my family. We feel great after reading from the validation that there is world out there that understands!
As the publishers of CF Roundtable newsletter, the US Adult Cystic Fibrosis Association provides an important source of connection, information, and support to an often isolated and small orphan disease population. USACFA is run by adults with CF, for adults with CF and their care-partners and families. I was honored to join the Board of this organization last year after several years of readership and contribution.
I have been reading CFR for a while and love the mission. It is great to have a publication that is written by and for people with CF. We just "get" each other.
I have the honor and privilege of serving on the board of USACFA. I've read the newsletter CF Roundtable since the 90s. It has always been such a great source of inspiration and information.
Previous Stories
CF Roundtable is a great publication published by USACFA. In addition they have great information posted on their website and their Facebook page. USACFA provides useful information for the health of both the mind and body.
Roundtable is a wonderful resourse for support, information, sense of community and hope for all those coping with CF.
As husband to someone with CF, the CF Roundtable gives good info and support to me. I read every issue, cover to cover. Excellent.
USACFA’s publication CF Roundtable has been one of my major sources for information about Cystic Fibrosis for the past 10 years. It was first introduced to me by my CF Center and I’ve been a subscriber ever since.
Each issue is eagerly anticipated. Upon its receipt, it is immediately skimmed. Then, during the next two weeks it is read in detail.
While almost all of each issue is of interest, I especially like the regular “Ask The Attorney”, “Speeding Past 50”, and “Information From The Internet” articles. As a 73 year old with CF, seeing the increasing ages of people in the "Milestones" section has been very encouraging.
I was honored to become involved as a volunteer with the US Adult CF Association (USACFA) 6 years ago. Before that I was an avid reader (and still am) of USACFA's outstanding newsletter, CF Roundtable, due its wonderful support, education and resources in all things CF. As a volunteer I was able to witness how the directors are constantly striving to improve the publication. It became free to anyone who wants it 3 years ago and at the same time the website was revamped to offer online editions of the newsletter and more interaction between subscribers. USACFA is a quality group of devoted volunteers, all adults with CF.
CF Roundtable is an incredibly valuable source of information, particularly for the adult Cystic Fibrosis community of which I'm a part. The newsletter addresses nearly every aspect of living with Cystic Fibrosis, masterfully weaving in topics ranging from clinical trials and preclinical research to travel tips, legal information and everything in between. There aren't any other sources of such rich, varied and consistently high quality content for the adult CF community. I look forward to receiving the CF Roundtable in my inbox and I heavily rely on it as a source of trusted and useful information. CF Roundtable is a huge asset to the CF community!
The CF round table is a excellent newsletter for the CF community. Sharing feelings and ideas are so beneficial to the community. It helps families not to feel alone in the fight that we have all encountered. Keep up the good work!
Previous Stories
The CF Roundtable is a great magazine. It helps the CF community to share their experiences and help others to feel that they are not alone in this fight. The articles are filled with heart warming stories which helps everyone to understand the battle that these people go thru on a daily basis. It gives great information for people with this disease and others that are not familiar with the disease. We need to get the word out to more people in order to make others aware of what CF is all about. Good work by all!
I am a young adult who enjoys reading CF Roundtable. The stories are real and help me continue to learn about this disease. I am given insight into potemtial issues and struggles but also gives me hope to see the older population continue to grow. Aside from the stories, there is legal advice and medical updates. Its a mini one stop summary of things new in the CF world. The magazine ties me to the CF community without actually knowing these people and I know I'm not alone in this battle. I absolutely love it and would reccommend it to anyone fighting CF or their caregivers.
As a 34 year old Cystic Fibrosis patient, I value the information in the CF Roundtable! In fact, I have wrote and been published in it! What a great resource it is for us living day in and day out with this disease. This publication touches on subjects that we all deal with from insurance issues, to exercise, to new findings that come about in medical research. The staff is made up of those with CF, which to me makes it more credible (after all, you don't truly know our struggles unless you live a day in the life..). It is wonderful to be able to receive this publication as a free service to me and so many others. THANK YOU!!!!
CF Roundtable is a great publication. I am a 36 year old approaching the decision of a possible transplant. I have read great encouraging articles on so many different topics. It really puts into perspective that there are other people out there in your shoes. Life with CF can get discouraging - as hard as you try to keep yourself healthy and feeling good, that can change at the drop of a hat. Each time I read an edition, it gives me a little ray of hope that everything will be ok. Thanks for all of the great information!
I am a 57 year old with CF and have found the CF Roundtable enormously helpful; I hadn't known about it (or realized there was such a great resource for CF adults) until the CF Clinic I go to told me about it a few years ago. From time management to issues with CFRD and the legal and medical issues columns...just knowing there a community of support out there is greatly comforting. What a wonderful group of people who devote their time to giving to the CF community!
Superb group, with a wide array of CF info ranging from anecdotal tales to detailed research and recruitment for clinical trials. Thanks to USACFA and CF Roundtable, I'm more up on what's happening than my son's CF docs. I often share CF Roundtable info with my son's CF docs that they've not yet heard about. Love y'all, keep up the good work, and thank you.
The CF Roundtable has been helpful and a beacon of hope for us since our son was diagnosed at age 2. The practical advice and experiences have kept us on track with his care and he is doing very well at age 22! Thank you to CF Roundtable!
Previous Stories
The CF Roundtable is a valuable source of practical information for families with CF. The insurance column by Beth Sufian is a must see every time. Our 21 year old son is in college and we are guided by the advice. The articles by adults with CF helps our son to get a better perspective on his life and his future.
This is a very important part of dealing with CF.
As the parent of two young adults with Cystic Fibrosis, the USACFA provides the adult community (of what is said to be a childhood illness) with numerous resources for which we are grateful. They are one of only a few that meet the direct needs of adults living with CF.
I look forward to getting the newsletters and reading up on the latest drug therapies and other information happening in the CF world. They do a great job not only keeping us informed but providing hope, cheer and peace.
They do a great providing information and support to adults living with this challenging disease.! I recommendit to all the patients I serve!
MY SON HAS CYSTIC FIBROSIS & WE LIVE IN A RURAL COMMUNITY. THIS NEWS LETTER KEEPS US UP TO DATE ON ALL THE NEW THINGS HAPPENING WITH CF. THE NEWSLETTER GIVES ME HOPE AS A MOTHER THAT MY SON IS JUST LIKE ANY OTHER CF PATIENT. VERY HELPFUL & RESOURCEFUL INFORMATION.
My son is a 14 year old boy with Cystic Fibrosis. CF Roundtable not only gives up to date medical information, but also help on how others are learning to live their lives while battling this disease. It's educational and also inspiring. They do a great job of funneling down all the massive amount of information and studies being completed into concise explanations and show how things can help our lives individually. LOVE my CF Roundtable!
I appreciate the knowledge and helpfulness they have to offer. I'm constantly trying to stay on top of the latest advancements in the fight for a cure for cystic fibrosis.
I am 32 years old with Cystic Fibrosis. I have received CF Roundtable for many years. CF Roundtable has given me in sight on medical & personal problems related to this disease. I find comfort & hope when I see other people with CF that are older than me in the newsletter. I look forward to getting CF Roundtable to see the developments with the medicines to help future generations. I enjoy the questions you can ask the lawyer because insurances can be very confusing. My husband, who is a nurse, enjoys reading CF Roundtable. It helps us both understand more about my disease through others perspective. Sometimes the articles give information about things that I am too afraid to ask or never thought about. Which helps me bring it up with my doctors. I plan on receiving CF Roundtable for many more years to come.
I am a 35 yr old CF mother of 2. My health is of utmost importance but taking the time to find all of the info that comes to me through the Roundtable just isn't possible. Reading the articles gives me hope....whether I needed at that moment or not. I will conticontinue to read and shate this site with many.
My son has Cystic Fibrosis and the CF Round table newsletter keeps us informed on anything new happening with all research and any new medications. It also has many articles about people living with CF and how they deal with many issues from insurance,mental health,hospitalization just to name a few. I highly recommend this non profit.
I have been a USACFA board member since 2001, and have written at least a dozen articles from 1997 through last year in CF Roundtable. The reason this organization was formed was for support of adults with CF. When it first started, only about 30 percent of CF patients were considered adults(over 18), and now the number is closer to 51%. This certainly cannot be contributed to CF Roundtable, but it is great to know that over half the CF population has this newsletter as a resource for them. I have personally learned much from this newsletter, and found many new faces and friends in the national CF community. They continue to be resources for me, and I will continue to support USACFA for as long as I am able.
CF Roundtable has always been a strong support mechanism for me. It allows me to see what others in the CF community experience in good times and bad. I usually read the newsletter cover to cover and learn new things from what others do. CF Roundtable is also a good resource for new therapies in the pipeline as well as ideas in dealing with CF.
Previous Stories
When I first heard about this newsletter 20 years ago, I had been looking for support and finding none. When I got my first issue of Cf Roundtable, I felt connected and less isolated. I usually read the newsletter cover to cover and sometimes a couple of times while waiting for the next issue. It gave me hope to read of others who were living longer and healthier lives with CF. It also allowed me to see how others with the same disease coped with their various trials and tribulations. I could relate to these people who wrote articles and became familiar with those who wrote often.
It is 20 years later and I find myself volunteering for the newsletter and still enjoy the articles from those who share their stories to offer support to alert others to a certain situation that can occur, for instance, after lung transplant or with CF-related diabetes or chronic prednisone use. I still find this newsletter and organization a useful in living with CF.
This year has been exceptional for the USACFA as they are now offering the newsletter for free to everyone and people are respondng very positively by subscribing in large numbers. It is an honor to be part of this organization and hopefully to be part of it for many more years.
I know how hard my cousin works on the Newsletter and the impact it has on those with CF - it is an invaluable resource for those with CF.
I am an avid reader and follower of the CF Roundtable publication. My cousin's wife (in spirit she is my sister) has been active member of this organization for almost 25 years.. I have been reading this newsletter for many,many years. I am often humbled by the stories, poems, and pictures of people dealing with CF every day. What I especially have appreciated is how my knowledge has increased over the years. I sit right down when roundtable arrives and read it all the way through. Sometimes the medical or legal aspects are way over my head, but I can imagine the value of this information to the subscribers who benefit the most. I am a most grateful and loyal supporter.
LaurieW
USACFA is an excellent organization made up of volunteers who are all living with Cystic Fibrosis. The publication, CF Roundtable, is a wealth of information for those living with the disease and their loved ones. The topics are always current and relevant to readers. Great organization!
I have been reading CF Roundtable for many years. This is a great way to read what other adults with CF deal with on a day-to-day basis and know you are not alone in your fight. The stories are inspiring and the articles are very informative. It is the best newsletter publication out there today!
As a newly elected board member, I look forward to writing articles, getting to know other CF patients, and sharing my personal stories about the disease.
I have been a Board member of this organization for many years. Before I served on the Board I was an avid reader of the CF Roundtable. For the past 20 years when the CF Roundtable arrives I stop what I am doing and read it from cover to cover. The articles give me information, support and encouragement in my own fight against the effects of CF. I recommend the CF Roundtable to anyone who has CF, loves someone who has CF or works in the healthcare field. The articles are informative and touching. You will learn a lot about CF if you read just one issue.
I read this fantastic publication since 1995, when CF changed my life. It is Great !
It arrives even here in Italy ! There is nothing better to make me look at CF with a little more hope !
USACFA has been in business for 22 years, and the organization continues to grow and contribute to the adult CF community. I have volunteered for them since 2001, and it is made up solely of people who devote their time and energy to education and support of adults with CF. While the organization collects donations and grants, people can be comforted in knowing that 100% of their donation is used to support USACFA and it's mission, as the organization has no paid employees. CFRoundtable, a quarterly newsletter authored solely by CF adults, is the foundation of this organization, and every effort is made to make the newsletter the leader in the CF adult community. I am continually amazed by the positive feedback from readers on the stories written, and the milestones achieved. It gives me a wonderful sense of accomplishment knowing I have a small part to play in this wonderful nonprofit that brings reality to words so beautifully crafted by people who have first-hand experience dealing with cystic fibrosis.
CF Rountable is just simply a wonderful and inspiring publication. I always very much look forward to reading the articles about the lives of members of the CF community. Thank you, thank you, thank you....
I am a 30-year-old with CF. CF Roundtable has helped me in knowing that there are others out there going through the same things as I. I have gleaned much inspiration from the stories shared in its pages and have gotten tips on how to better treat my symptoms.
CF Roundtable is both educational and inspirational to those in the CF community. I have been reading CF Roundtable for approximately 13 years. In the last several months this wonderful newsletter has become free to all those interested in the publication via PDF downloads and mail. I have learned a great deal about other's who are affected by Cystic Fibrosis and have found great support in the articles published by this newsletter. I highly recommend it to all those affected by CF in addition to all medical professionals who treat patients with Cystic Fibrosis.
I have been reading CF Roundtable for over 10 years now. It has been a wonderful resource for me, especially hearing different people's stories and different perspectives on living as an adult with CF. 2 1/2 years ago I was honored to be elected as a board member and enjoy helping with the newsletter as well as our online presence with our website, Facebook and Twitter pages.
Now that our newsletter is free and available to download as well as receive via mail, I am excited that we will be able to reach even more people in our CF community.
I love USACFA/CF Roundtable! My daughter is 23 years old and has CF. I have been an avid fan of this publication since my daughter was a young child. The articles are wonderfully written by CF patients and have provided much insight and information to me throughout the years. From "Ask The Attorney" to "Information from the Internet", to the special topics highlighted each quarter, there is not a publication out there like this for CF patients and caregivers. Thank you USACFA!
My sister-in-law has CF, and I am really pleased to see what a great resource you have with this site -- the stories, the advice, the research updates -- it seems like a terrific source of encouragement and help!
I first found out about CF Roundtable when I was diagnosed with CF in 1995. I thought it was a very valuable resource and was impressed by the professionalism of the publication. CF Roundtable is an excellent source of information - including legal, social, educational, as well as many other topics affecting the CF community. It is a vital source of communication among those with CF.
Through CF Roundtable, USACFA provides an amazing service not only to CF patients, but to their caregivers. I am the parent of a child with CF. Since his birth, education has become my best defense in fighting this disease. Information gained from CF Roundtable enables patients and caregivers to become strong advocates for themselves. We feel this in turn creates better health-care provider relationships, disease self-management, and improved outcome. Our family values this resource very much!
Cf Roundtable is a fantastic resource and supportive portal for people with CF. As a childhood friend of someone with CF, I have been awestruck by the amount of courage and dedication it takes to cope with this debilitating condition. I can only imagine the difference this site makes not only for its visitors, but for those with CF who run it.
I am a relative of a lung recipient. For years now I have been receiving the CF Newsletter. I browse through and always find several articles of interest. I love the theme idea off each issue. I love the photos, validation of life. Having a chronic health issues myself , i can relate to many of the people in the newsletter. Living with life threatening diseases of any kind have much in common. I derive support from many of the articles in spite of having another diagnosis. I thank you and wish you continued success with your good work.
I learned and joined CF Roundtable one year ago. It has been a pleasure to work and meet so many inspiring CF patients on the Board and thru patient stories! I am a fellow writer as well so I have enjoyed sharing my story and hope to inspire others with CF to keep positive! The CF Roundtable took a new direction this year that many are excited about, the CF Roundtable is now FREE! I hope that many are as inspired and are willing to share their stories with us as well. I have felt very welcomed and "normal" since I joined the CF Roundtable. Its a great working support group and I hope others see our willingness to be the Greatest Non-Profit Organization that gives and recieves.
I have been involved in USACFA as a board member since 2000, and I have read every issue of CF Roundtable since the beginning of USACFA over 20 years ago! I have seen this organization grow tremendously in terms of how they serve the adult community by providing insights from adults with CF. As more and more people with CF grow into adulthood, publications like CF Roundtable and organizations like USACFA become more and more valuable. CF adults realize they are not alone in their struggles, because CF Roundtable is always chock full of articles that people with CF can relate to. Now that CF Roundtable is FREE, I hope more and more people start reading it and benefiting from it!
Nice to see support for those with CF. My friend, Jennifer, gains so much from the site and the organization in general! People need a place to learn and connect....BRAVO!
I am new to CF Roundtable only because I never knew anyone with CF before. That is until my husband and I moved into a new townhome complex a few months ago and met Jennifer Hale and her husband, Mark. They are our next door neighbors and both such kind and caring people and we feel very fortunate to have them in our lives.
I had no idea Jennifer was living with CF when I first met her. She is so bubbly and cute and our conversations are always lively. She has the most positive, upbeat personality and I never would have known that she was living with such devastating health challenges.
After reading CF Roundtable I realized what an asset it is to others with CF. It is full of real-life stories and medical information that would be helpful to all. It is an amazing resource and service to anyone with CF. Keep up the good work!
I started reading CF Roundtable after my friend, Jennifer Hale introduced it to me a few years back. I am an adult CF'er, and so inspired by all the stories. Their is always new things and ideas to be learned about this disease, and one of the best ways is to hear it straight from the people that are living it. I think its so great that nonprofits groups like USACFA can make the CF Roundtable available to everyone. Thanks so much!
I love the CF Roundtable. As a healthcare worker, I find it very helpful to be able to see things from a client's perspective. I sometimes get caught up in the need for adherence without focusing on the whole person. Jennifer Hale is especially inspiring.
I love the Roundtable. I get an insight in all the aspects of having CF and not just the physical issues. Jennifer Hale does a great job of telling stories and making an impact. I hope the Roundtable continues for years and years.
CF Roundtable is an outstanding newsletter. It provides a lot of very useful information both for people who have CF and for people who are trying to understand the experience of someone they know who has CF. The articles are full of heart, because writers like Jennifer Hale are willing to open up and share personal stories, thoughts, emotions, and insights. CF Roundtable serves as a reminder to everyone that it is possible to be an extremely strong person without a strong body. I enjoy reading all of the articles in this newsletter, not just to learn about CF but also to learn about the art of perseverance, which is a life lesson we all can benefit from.
Jennifer Hale's articles are candid, sincere and inspiring. As a Pediatrician I plan on referring my older CF patients to this magazine to help them learn more about how to live with CF in a positive way. Having CF Roundtable as a resource is a valuable asset to CF awareness. Keep up the great work!
Jennifer's words are inspiring and truthful. All coming from someone so full of life! We have the pleasure of knowing Jennifer and her husband and spent many active days with them. Even with the difficulties and routines she endures on a daily basis, she is always chipper and smiling! Keep up the great work, Jennifer!
I have been a reader of the CF Roundtable for many years and my wife, Jennifer Hale, is a contributing writer for the publication. I have learned many things about CF and the amazing people who live with this disease through the articles in the Roundtable. They cover a variety of topics with a variety of people which gives excellent insight into different ways of living with and battling the effects of CF. I highly encourage everyone who knows someone with this disease or an interest in learning about it to subscribe and read the magazined-especially Coughing with a Smile-an award winning column!
The CF Roundtable that is published by USACFA is a wonderful organization to be involved with. The publication is very informative yet it will make you laugh and cry in the matter of seconds. Being involved behind the scenes with USACFA has been really great seeing how the clock ticks. The publication helps those with CF and those who are caregivers along with those who just might know someone who has CF. The stories are really inspiring and I have been a reader of the publication long before I became a board member..
I have enjoyed reading the articles posted to the CF Roundtable. Jennifer Hale is the best writer because she lives with it every day and can help readers understand what life is like living with CF day in and day out. It's not pretty and she doesn't pull any punches...but she will make you laugh, cry and yearn for a cure.
My wonderful sister-in-law is a 41 year dynamo living with CF. She also happens to be one of CF Roundtable's writers (the incredible Jennifer Hale). The articles in CF Roundtable are insightful, humorous, informative, and eye-opening about living life to the fullest with CF.
As an adult with CF, I have enjoyed reading this organization's newsletters for many years. Insightful articles and great personal stories.
I've read several CF Roundtables, and have found them to be be a great outlet for persons with CF. Additionally, for a lay person just reading it from "the outside", it gives a great insight into so many issues that people with CF experience. THe people who contribute tend to explain their unique-but-shared situations, in a true forum format. I am inspired by USACFA and the CF Roundtable. I hope more and more people check it out.