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Julie295

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3 reviews

Review for The Iga Nephropathy Foundation Of America Inc, Wall, NJ, USA

Rating: 5 stars  

This organization is run by an extremely dedicated group of volunteers. The work they are doing is vital to improving the lives of people living with IGAN. They give me hope everyday that one day there will be a cure for my son and all of the others living with this disease. In the meantime I know they are doing everything they can to move the needle of change. Thank you Bonnie and team!

Role:  Donor
 

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

In 2009 my daughter was diagnosed with Tuberous Sclerosis Complex. We have no family history and had never heard of the disorder. Thankfully we found the Tuberous Sclerosis Alliance and they helped us navigate through the diagnosis and beyond. We’ve been involved in the TS Alliance ever since then and quite frankly don’t know what we would do without them. The work they do on behalf of all TSC families and the progress they’ve made towards a cure and improving the lives of those affected is astounding. I’m honored to be a new member of the Board and thankful for the important work they do every day for TSC families.

Role:  Board Member
 

Review for The Iga Nephropathy Foundation Of America Inc, Wall, NJ, USA

Rating: 5 stars  

After my son's diagnosis, I learned about the IGA Nephropathy Foundation of America. I immediately became involved and now the Illinois Area Representative and also a Board Member. The founder, Bonnie Schneider, has accomplished so much in a relatively short time. She's assembled a team of hard working and dedicated volunteers, actively engaged top researchers and institutions, and helps everyone who reaches out navigate this uncertain and daunting road. She gives me hope because I know that she simply will not give up - and she inspires everyone she comes in contact with to share that passion.

Role:  Board Member