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Morgancdhph23

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3 reviews

Review for CDH International, Wake Forest, NC, USA

Rating: 5 stars  

Found CDH international before it was even created, but they help so many families fellow patients like myself. To find a possible cure, while still helping hundreds of families around the world!! Grew up with CDH but didn’t have any connection as a kid with parents, found CDH groups after finding PH ( Pulmonary Hypertension Association) patients and pages, helped few cherubs families join PH side that still shows PH signs. One giant great community!!!

Role:  Volunteer
 

Review for CDH International, Wake Forest, NC, USA

Rating: 5 stars  

Grew up with severe left CDH and first found CDH cherubs before my 23rd bday I’m almost 25 now. Been helping families that mention or tag me about PH with CDH since i grew up with the two. And now stable PH for year and half so far. Final 4th CDH repair was 11 years ago and finished July 26th 2008 on my 15th bday almost a decade ago!

Role:  General Member of the Public
 

Review for CDH International, Wake Forest, NC, USA

Rating: 5 stars  

I'm 23 1/2 year old severe left CDH survivor, also got PH ( Pulmonary Hypertension) from CDH. I found Cherubs around my 23rd bday, since then I've learned more and helping many family's that mention PH with there little CDH baby if they survived or soon after passed from the two. Become as roll model oldest patient with combo of CDH and PH which is not common at all. 1 out of 4 in family, 3 healthy siblings. There needs to be more awareness and word about Congenital Diaphragmatic Hernia around the world research to find a cure!!!

Role:  Volunteer