My Nonprofit Reviews

children08
Review for Twin to Twin Transfusion Syndrome Foundation, Bay Village, OH, USA
At 20 wks I was told We were stage 2 TTTS . I had never heard of it and scared when the dr said I needed to see a specialist would have me set up to receive a call when to see one. Little did I know how serious this was but before I got home from the dr I received a call from the Hospital in Houston TX wanting me there the next day at 8am! Stunned and not knowing how I would get there since I had been off work and didn't have the money to go this foundation immediately went into action and made it possible for me to get from MS to Texas the next morning and not have to worry about a place to stay it was all arranged! Ms Mary spent many long calls talking me through things and keeping me sane! This was suppose to be a consultation but after their scans and Dr's checked me it was determined we was almost stage 3 and I was offered termination as my 1st option because the risks were high to lose both . I chose to go ahead with surgery and within the hour I was prepped heading to surgery to attemp to save 1 the other baby wasn't gonna make it the odds were so low! After surgery we all were shocked both twins had survived surgery but was given 24 hours after surgery to know if both babies would survive the surgery ... The surgery took almost 2 liters of fluid and closed 10 vessels but both my babies survived! I can't thank this organization enough because with the help I would not have been able to save my twins! My boys were born 33 weeks stayed almost 4 weeks in NICU but are healthy babies with NO health problems!