My Nonprofit Reviews

Seventeen years ago, during the most precious time of my life, expecting identical twin girls, we were diagnosed with Twin to Twin Transfusion Syndrome. It seemed hopeless , until we were connected to The Twin to Twin Transfusion Foundation!
Mary Slamon and Dr. Julian De Lia, shared encouragement, and life saving information about TTTS. The months that followed were cherished and filled with faith and hope, because of the support from the TTTS Foundation.
My husband and I were equipped with knowledge to make the very best decisions in the course of my pregnancy with TTTS. The knowledge and education saved our twins lives. Our twins will be turning 17 in a few days! Every single day, since that diagnosis, we are grateful, for Mary's commitment to conquer and find a cure, save lives from TTTS.
We consider it a miracle that our twin daughters survived TTTS. We consider Mary from The TTTS Foundation to be our angel. We will support Mary and the foundation, future TTTS families, until there is a cure.

The Twin to Twin Transfusion Syndrome Foundation is far more than a foundation. The TTTS Foundation is literally HOPE, LIFE, COMFORT, EDUCATION, FAITH, WRAPPED IN EMPOWERING MOTHERS WITH LIFE SAVING INFORMATION AND SUPPORT, IN THE MIDST OF A HOPELESS DIAGNOSIS OF Twin to Twin Transfusion Syndrome. One constant, steady, loving, mighty yet ever so compassionate person that makes the Foundation unique .. set apart from others.. is Mary Slaman. She understands the desperation in the expecting mothers voice, when The TTTS Foundation phone rings, or an email arrives, or a prayer request comes in, or posting to the Foundations facebook pages. Mary has lived through TTTS, she knows all to well, how the Mom on the other end of that phone call feels, and how desperately that mom wants to save her twin babies from this uncertain disease. I know this to be true, as I am one of the mothers. 14 years ago, during what my husband and I thought was a perfectly healthy normal identical twin pregnancy.. I was diagnosed with TTTS at 19 weeks, during a doctor visit for an ultrasound. We were blessed beyond belief to be expecting identical twin girls, our 1st pregnancy and twins. The sudden diagnosis of TTTS simultaneously accompanied devastating information about TTTS hopeless choices , hopeless outcomes. We walked into that appointment elated to once again see our two precious babies on the monitor, life, precious life inside my womb.. to be told that these to babies were in a life threatening situation where both could pass and probably would, even with medical intervention. The doctors explained that we had the choice of terminating our entire pregnancy, or selectively terminate one to save the other. We told the doctors that terminating our pregnancy or selective termination was absolutely NOT AN OPTION AT ALL. We wanted to save our babies.. please help us to save our babies. The doctors went on to explain options that could possibly help and explained that time was critical, as most cases of TTTS, result in loss of one or both of the babies. A nurse in the office, hugged me and put a business card in my hand..for The TTTS Foundation. It hurts so deeply to even write about that experience in the doctor's office that day.. it is like a blur.. I just remember feeling completely numb.. almost not able to breathe.. melting into my husbands arms.. my husband whispering into my ear that everything will be ok.. He just held me and i had my arms wrapped around by stomach.. trying with all my might to protect my babies. It was like time stood still, everything changed in those moments. Little did I know at the time..that the business card in my hand ... was our saving grace. I called The TTTS Foundation. I spoke to Mary, whose comforting voice, her compassion , whose words of hope, in spite of her loss, gave my soul life, inspired me to rise above the diagnosis, equipped me with a plan to help save my precious daughters. Mary sent a package via overnight mail that contained absolutely every detail about Twin to Twin Transfusion Syndrome. My husband and I were not alone. Mary equipped us with power over Twin To Twin Transfusion Syndrome. TTTS was no longer hopeless, it was something we could face with confidence knowing we could do everything humanly possible to save our babies.. while relying on immense faith and prayer to surround us. Mary understood that I was a mother of twins... at that time of 19 weeks gestation .. for the rest of my pregnancy and for always. She knew the love I had for my babies.. the most instinctive desire to save my babies lives. Mary helped me overcome the fear of TTTS , through knowledge at each and every doctor appointment, ultrasound, and procedure. My twin daughters miraculously survived TTTS, thanks to THE TTTS Foundation. They were born at 28 weeks gestation, weighing only 2 pounds each. My husand and I were also prepared for the journey through NICU ,, thanks to The TTTS Foundation. Mary sent a wonderful NICU book to me, even before my daughters were born, to educate us on every aspect of premature birth. Mary has been a consent source of hope over the last 14 years. She is still a very important person in our lives.. We, as a family, have immense respect for Mary and her life long mission to save lives and until a cure is found for TTTS. The TTTS Foundation is so close to our hearts. and always will be.