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sandypatterson

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1 reviews

Review for Twin to Twin Transfusion Syndrome Foundation, Bay Village, OH, USA

Rating: 5 stars  

I live in Thailand and when I was diagnosed with TTTS I was very overwhelmed and had limited local resources. I reached out to Mary Slaman and the TTTS foundation and she was there for me 24 hours a day, sharing her resources and knowledge and pointing me in the direction of experts who could help me. If I had a question at 2am her time she often still wrote back within minutes. I ended up having laser surgery and, sadly, one baby did not survive, and while I grappled with grief and confusion, Mary was there to offer empathy and caring support. She sent a giant package chalk full of materials and gifts to help with my grieving process. This is a truly superlative non-profit that combines loving compassion with a host of useful knowledge and resources to assist parents during one of the most trying, overwhelming and traumatic moments in life. I don't know how we could have gotten through it without Mary. Five stars!

Role:  Client Served