My Nonprofit Reviews

CindyBoudreaux
Review for Twin to Twin Transfusion Syndrome Foundation, Bay Village, OH, USA
Mary, and the TTTS Foundation, held our hands as first time parents to expectant twin girls who were gravely ill from the effects of TTTS beginning at 19 weeks gestation. The TTTS Foundation spent countless hours and guidance to help us make the best choices and provide us with knowledge of how and who to seek to help our girls. Sadly at 24 weeks gestation, our recipient baby died from complications of TTTS. Both girls were delivered at 27 weeks gestation, with our survivor sustaining multiple brain injuries due to blood clots passed from her twin sister. There are no adequate words to express the grief we had as parents loosing a baby, and on top of that loss, grieving the loss of a "normal" child. The TTTS Foundation has been a HUGE part of our lives as parents from the very day TTTS was diagnosed to this day nearly 22 years later. Knowing that we had the knowledge, love, and dedication to our girls from the TTTS Foundation has helped us have a sense of peace and acceptance of the outcome of our twins because we knew we were informed and did all we could for our girls. Without the TTTS Foundation, and Mary Slaman the President and Founder, I don't think we could have been able to cope as well as we have through the many physical challenges our survivor has faced. We are forever grateful to this nonprofit organization and all the compassion it encompasses from the beginning to diagnosis, to the pray team, the support we received from death of a baby, and onto the support we have gained from the special needs support system with our daughter. The TTTS Foundation does not stop helping those to delivery, it is a life time support of hope, guidance, and encouragement.