My Nonprofit Reviews

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1 reviews

Review for Lymphatic Education & Research Network, New York, NY, USA

Rating: 5 stars  

I was one of many with lymphedema who was misdiagnosed for years and years. I went from doctor to doctor, was put on diuretics for "water weight", and found that no one could help me with the enormous pain, stiffness and swelling in my lower legs and feet. I finally found out what I had only two years ago, at the age of 63, when I was introduced to a physical therapist with a specialty in treating lymphedema. I still felt very alone, until one night when my husband was flipping TV channels and happened upon Kathy Bates being interviewed about her own battle with lymphedema and the organization she was spokesperson for -- LE&RN. I was thrilled and immediately went on the website to sign up for the newsletter. I now hope to encourage and support others as co-chair of LE&RN's Florida Chapter. This is a very worthwhile nonprofit, and an organization which deserves recognition for the help and awareness it provides to both those who have lymphedema and those providing treatments and hopefully one day cures.

Role:  Volunteer