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Merise

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1 reviews

Review for Invisible Disabilities Association, Parker, CO, USA

Rating: 1 stars  

I have had Peripheral Neuropathy since 2006. I then experienced Thyroid Storm ( Graves Dz) in 2009 causing Hypertension and diabetes. My Neuropathy is in my feet and hands causing me to suffer pain that is only relieved by Gabapentin and Cymbalta. If I forget or delay my meds, I suffer! My balance is affected, my hand grip weakens and I sometime drop things ie: glasses of water. The meds cause me to have brain fog, fatigue, sequencing and short term memory loss. I suffer from blurred vision, leg cramps, burning feet, stabbing pain, and restless legs. I lost my job of 20 years, 2 years ago in Behavioral Health Admissions because I couldn't keep up the fast pace I once easily managed. I was diagnosed with Mycotoxin exposure 10 years ago due to water damage to our home which has been remediated. I have an autoimmune disorder and tested + for Lupis genetics and inability to clear toxins thru my liver like most people. I use Cholestrymine to help bind the toxins to clear thru my colen. I had my gallbladder removed due to acute non alcoholic pancreatitis last May. I suffer from Chronic Fatigue and Fibromyalgia like my mother. It has been a real battle for me. I lost my short term disability a year ago and applied for disability. I am now appealing. It has been a real financial burden for my husband and I. It's nice to know there are others out there, like me suffering these invisible diseases that are coming together to share their experiences and have an advocate voice!

Role:  General Member of the Public
wayne (Nonprofit Staff) wrote:

Merise, We are so sorry to hear of all of the difficulties you experience daily in dealing with chronic illness and pain. As you mentioned, their are many that share similar experiences. You can connect with some of them on our social network, www.InvisibleDisabilitiesCommunity.org. The Invisible Disabilities Association was founded to encourage, educate and connect people such as your self. We want to be your voice to the world, shouting that them that you matter and we hope you envision along with us a world where people living with illness, pain and disability will be Invisible No More! Thank you for your review. We would like the opportunity to address any of your concerns regarding our organization and the reason for a one star review. Wayne Connell Invisible Disabilities Association