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2020 Top-Rated Nonprofit

Invisible Disabilities Association

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Nonprofit Overview

Causes: Health, Mental Health, Voluntary Health Associations & Medical Disciplines

Mission: Our mission is to encourage, educate and connect people and organizations touched by illness, pain and disability around the globe. Envision with us a world where people living with illness, pain and disability will be Invisible No More!

Target demographics: envision a world where people living with illness, pain and disability will be Invisible No More!

Geographic areas served: Nationwide

Programs:

IDA hosts an over 7,000 member support group at www. Invisibledisabilitiescommunity. Org. Over 183,000 online followers, on Facebook www. Facebook. Com/invisibledisabilities www.Twitter.com/invdisabilities & www.Instagram.com/invisibledisabilities

IDA's website www. Invisibledisabilities.org was visited over 35,000 times monthly. But You LOOK Good book reached 34,000 copies in circulation around the globe

IDA hosted the 12th annual awards gala attended by 250 guests. Http://awardsgala.org IDA launched the Invisible Disabilities online Support Community to connect people living with invisible disabilities. Share stories of diagnosis, treatment, managment, and more. Http://invisibledisabilitiescommunity. Org

IDA launched the National Disability ID (NDID) initiative in January 2018. NDID is legislation, which provides through accredited voluntary disclosure a designated identifier, a discreet symbol approved for placement on Government ID’s for acknowledging disabilities of any kind, but specifically to bring awareness for people living with non-apparent disabilities, what we call at IDA, invisible disabilities. Alaska is the first state to have passed the NDID into law. Since 2018 IDA has been in contact with a host of states that are interested in sponsoring NDID legislation in their states. In 2019-2020, both Colorado and Pennsylvania have sponsored bills in progress.

Invisible Disabilities Week takes place during the 3rd week in October every year, proclaimed in 2019 by the states of Colorado, Michigan, Mississippi, Ohio, Oregon, North Carolina and Virginia. Invisibledisabilitiesweek.org

Community Stories

118 Stories from Volunteers, Donors & Supporters

4 Edward C.

General Member of the Public

Rating: 5

My invisible disabilities are "epilepsy and "diabetes". I also had "brain surgery" over a decade ago which has eliminated my "short term memory". I follow the "Invisible Disabilities Association" on Facebook because they provide needed: information, communication, support and a forum for people like myself. I am able to share with others, my invisible disabilities, the pain, the struggles and challenges that I deal with in life, each and every day. At the same time, I am listening and learning about others like myself that are fighting the same or similar battles. We are able to learn from each other and give each other hope and helpful advice, but most importantly to know that others walk similar paths as us and they truly care..

P.k. B.

General Member of the Public

Rating: 5

This organization is the epitome of empathy. Better yet, the founders speak from experience by shedding light on those who fight every day to be understood in light of their invisible disabilities. It’s an honor to work with the IDA team.

1

General Member of the Public

Rating: 5

Few of us who are lucky enough to be ambulatory and lucid ever consider the issues associated with being disabled. The disabilities incurred by my wife from the negligence of others, that she must live with daily, are simply not in the line of sight of the people who observe her strength and benefit from her talents. To a trusted few, the story is told, and the pain and limits are understood. However, by and large, the world has no empathy for that which it cannot see.
When I heard of the Invisible Disabilities Association, I was pleased to hear that others were willing to give voice to the millions who persevere through unrecognized pain, or conditions that disrupt their lives. Invisible disabilities are unselective and affect us without regard to age, color or politics.
I advocate for the support of the work of Invisible Disabilities Association and urge all to take advantage of the upcoming event Love Ideas Summit on November 16-21.

1

Advisor

Rating: 5

I was made aware of the Invisible Disabilities Association almost five months ago by a friend who was working with them on the idea for the Summit that will take place November 16 - 21, 2020. More than 40 years ago I suffered a skull fracture compliments of a drunk driver; twenty-nine years ago I had a toxic injury that burned my lungs compliments of a negligent gas station at which I was covered head to toe in gasoline . I never before realized these injuries had a category - invisible disabilities. Disabilities that I suffered with in silence because few could readily observe or comprehend the magnitude of their impact on my life. Working with the leaders of the organization on the summit opened my eyes to the value of what they do; it also opened my eyes to the dedication of these people and this exceptional organization. I am proud to have made my small contribution to this upcoming summit and will continue to support the Invisible Disabilities Association in whatever way I can.

1 Karyn B.

Advisor

Rating: 5

I am extremely cautious about which causes I support. When I stumbled onto the fact the Invisible Disabilities Association spends 96% of its budget on programs I thought, “That’s too good to be true.” So I checked them out. It turned out to be true! I was so impressed that I dug deeper...and I became more and more impressed. Here are some current stats: IDA currently has 189,000 Facebook followers; its had 264,000 Youtube views; and its Facebook posts regularly reach hundreds-of-thousands people, and sometimes tops a million people! In it’s 24-years of existence, founder Wayne Connell has never accepted any compensation from his association. IDA is possibly the most efficiently run nonprofit on the planet.


Karyn Buxman
Friend and supporter of the Invisible Disabilities Association
Author of “Lead with Levity” and “Funny Means Money: Strategic Humor for Influence & World Domination” (ForbesBooks, 2021)
Founder of The HumorLab
Neurohumorist

1

General Member of the Public

Rating: 5

Let me tell you the real inside story about IDA founder Wayne Connell...He’s kinda crazy. He is a wild-eyed optimist. He is a workaholic. IDA helps hundreds-of-thousands of people, and for 20 years of its 24-year existence Wayne has run it completely on his own. Five days a week he works a full-time “real” job, and at night he puts in several hours on IDA. And he works on IDA over most weekends. And I don’t think he’s taken a vacation in 5 years. Okay, so here’s the goal: We all need to join together and figure out a way to get Wayne fired from his full-time job...so he can devote 100% of his time to helping the world. Here’s the plan: We need to join his army of volunteers and help raise a gazillion dollars for IDA so Wayne can do more of what he was born to do!


Greg Godek
Author of the #1 bestseller “1001 Ways to be Romantic”
Founder TheRomanceProject.com
Co-creator with Wayne of the Love Ideas Summit (LoveIdeas.org)

1

Professional with expertise in this field

Rating: 5

Invisible Disabilities Association is a stellar resource in the disability community that remains committed to supporting individuals living with invisible illnesses and their loved ones. As an employee of company that partners with IDA often, I've witnessed firsthand how IDA serves those who may need guidance on navigating an invisible disability, or just validation that what they're going through is real and that they're not alone. Thanks, IDA, for everything you do!

1

Professional with expertise in this field

Rating: 5

This organization recognizes a highly underserved, under appreciated population: those of us with invisible disabilities. I have been involved with them through the lens of a stage 4 colorectal cancer survivor. Not all patients in treatment lose their hair or lose weight, but yet go through brutal treatments that render us scarred, battered, and beaten down unseen to the naked eye. I am pleased to bring awareness to this issue through the good work of IDA.

1

Volunteer

Rating: 5

I have been volunteering with this organization for a little while now and have seen nothing but genuine care and compassion from Wayne and Sherri. They are truly in this for people who have invisible disabilities or who are caregiving for someone who does. Their passion for helping those in need or those who just want to share their story and be included in a community is as plain as day, and anyone who has reached out to the Invisible Disabilities Association can see and feel that. It has truly been an honor and a pleasure to work with such a kind and dedicated team.

1

Volunteer

Rating: 5

I am excited about IDA because they are committed to awareness, support and making a difference in so many peoples lives. As well as bringing value to audiences with their talented connections, leaders, speakers to help support those in need.

1

Professional with expertise in this field

Rating: 5

I am Gary Barg Founder and Editor in Chief of Todays caregiver magazine and caregiver.com and author of three books on family caregiving including" You Are Not Alone" regarding Covid-19 caregiving. I was pleased to be asked to take part in Invisible Disabilities Association's Love IDEAS Summit. This is an extremely important organization shining a light on a often overlooked issue for family caregivers and our love ones

1

Volunteer

Rating: 5

Invisible Disabilities Association (IDA) is surely one of a kind in its approach to raise awareness and to highlight individuals who are suffering but do not LOOK like they are suffering. They are saving lives and erasing stigma around Invisible Disabilities. They should definitely be noticed for their great work!

- Phoenix J, Young Philanthropist Chair

1

Professional with expertise in this field

Rating: 5

I first saw Invisible Disabilities on Facebook. Since I contracted Lyme Disease, I have been hit with the words, "You don't look sick" repeatedly from family and friends. Maybe it was said to make me feel better, but I was already struggling to get a diagnosis so it just made things more confusing. I am not able to be as involved with IDA as I would like, soon I hope. I am proud to be part of a group that recognizes, gives assistance, support and provides a soft place to land for the people with invisible disabilities. Thank you again and again.

1

Professional with expertise in this field

Rating: 5

The Invisible Disabilities Association (IDA) provides tremendous awareness and support to individuals who have a disability that is not visibly apparent. outwardly the individual may look fine, which makes it hard for their family, friends, and the general public to understand what they experience. The support groups help individuals connect with other to share their experience and get helpful information. I am pleased that my organization supports IDA.

1

Professional with expertise in this field

Rating: 5

Numerous discussions with the leaders, attended their Gala 2 years in a row and while I was on the board of the Autism Society of America I worked with Invisible Disabilities to put our support for their effort to get an invisible disabilities marker on state driver licenses and ID cards. As an autistic person this is important as I may respond in a way that is different and would much prefer any law enforcement has an easy reference as to why instead of assuming bad intent.
From looking at what they have accomplished and they budget they have done it with they are probably the most efficient non-profit I have seen.

1 Shay S.1

Client Served

Rating: 5

My experience with the organization has been amazing. Having dealt with the challenges that I face with Invisible disabilities its nice to have found an organization that understands and supports me.

1 Lori A.4

Professional with expertise in this field

Rating: 5

Invisible Disabilities is a wonderful organization and charity who helps bring national awareness and helps make resources available to those like myself who suffer with invisible disabilities or a hidden disability. They have a community area on the site where people can interact with others who deal with the same illness as well as they try to connect with businesses and individuals in the country who share a similar mission. In my professional life, I have also interacted with the staff of IDA and they have always been a pleasure to work with and we are working to collaborate on various things and attend their Awards gala each year. I admire what they are doing because many people associate a disability as someone who is handicapped or 'in a wheelchair' and they are helping to bring awareness that disability is not always something you can 'see.'

1

General Member of the Public

Rating: 5

What a God given joy to be able to share what you have with others WOW!
If you have ever been down and out and so sick that you could not even move without a helping hand - then you kinda know what I am talking about.
I believe this is what the Invisible Disability Association is all about.
Being able to help those who are not able to help themselves.
What an honor to be a helping hand. You can smile within itself.

1

Professional with expertise in this field

Rating: 5

I have been working with the disabled for nearly 13 years and any program that supports those I am all in. I currently am a certified work incentive coordinator and working with an employment network via the ticket to work program. I love this program!!! I see success being more than just an income, so much more.

1 Paula V.3

Professional with expertise in this field

Rating: 5

Very dedicated and diverse group of persons committed to improving the lives of persons with Invisible Disabilities through advocacy, awareness and resources. Paula Vieillet- My Employment Options

1

Volunteer

Rating: 5

I went to the 2018 annual gala as a guest of client that is very involved in volunteering for the organization. I had never heard of IDA, or really given any thought to invisible disabilities. I had an incredibly eye-opening evening as a learned of various invisible disabilities and what those that live with them go through on a day-to-day basis. I learned that family and friends that I care deeply about have some of these invisible disabilities and I'd never truly thought about the struggles that come with them. Fast forward to 2019 I was honored when Wayne Connell (founder, president, CEO) asked me to serve as one of the Young Professional Co-Chairs for the 2019 annual gala. I gladly accepted and helped garner attention for the event. I was so excited to have my family and friends attend in hopes that would feel the same impact I had the year prior. Undoubtedly they did and it was a wonderful event yet again. IDA does so much for so many people that live with invisible disabilities and it is truly inspiring how they bring people together from all over the world to bring attention to their cause and create communities of support.

1

Donor

Rating: 5

I'm proud to support and donate to Invisible Disabilities Associations. I know my donations are going to great programs like the National ID Program that will help all people with invisible disabilities. IDA is great at bringing together many different disease groups to work together as allies and learn from each other.

Client Served

Rating: 5

I loved how IDA reached out to all with invisible disabilities and published any submissions of anyone who wanted to participate in Invisible Disabilities Week. It's so rare for the disabled community to get such a bright spotlight, open to all.

1 burly1057

Donor

Rating: 5

What can I say about this great nonprofit Invisible Disabilities Association and the awesome work they're doing for those who have Invisible Disabilities across this country? They just completed their annual Gala on 18 October 2019 and what an awesome event with live testimonials from their honored awardees and guests. They raise a lot of money for their cause and they need your giving heart and donations to continue their great mission of encouragement, education, and connecting people and organizations touched by illness, pain and disability around the globe. Please envision with them, a world where people living with illness, pain and disability will be Invisible No More®. I support and endorse this nonprofit as one of the great organizations in America making a difference. COL (Ret) Mikel Burroughs, Invisible Disabilities Heroes Award Winner for 2019.

1

Professional with expertise in this field

Rating: 5

This organization brings awareness for patients who do not have any obvious outward signs of disability. Well managed by people with the best intentions in their heart.

1

Donor

Rating: 5

Invisible Disabilities Association really cares about the individuals they advocate for and work hard at making a tangible difference.

2 Jodi P.1

Volunteer

Rating: 5

I am honored and thrilled to be a part of the invisible disabilities association team. I myself have lived with and invisible disability for 18 years & quite frankly, awareness is lacking for this community. A large percentage of T.B.I. sufferers live on disability. The cost to get therapy and get some recovery is not covered by western insurance,
Many invisible disabilities do not have a standardized treatment program therefore therapies. etc. are not covered under western medicine insurance. The therapies, treatments must be paid cash out of pocket. Cost for recovery is hundreds of thousands of dollars, up-ward of a million dollars. The invisible disability association is bringing awareness and education to the community. It is my hope as a member of the IDA committee to bring so much awareness to the millions of people living with invisible disabilities that we can get the therapies, treatments & recovery work needed for people living with IDA'S..... acknowledged , accepted and covered by western medicine insurance. the invisible disabilities association is a much needed organization that deserves to be main stage in our country , helping the millions of americans who live with I.D.A.S have a voice.

1

Professional with expertise in this field

Rating: 5

Wayne shared the great message of "Invisible No More!" with us. IDA is raising awareness of the insidious impact of disabilities which can't be seen. Thank you for your continuing good work IDA, you are making a real difference!

1

Donor

Rating: 5

Amazing work, facing an uphill battle to change hearts and minds.

3

General Member of the Public

Rating: 5

I find the Invisible Disabilities Association to a be credible and friendly source for help for encouraging people living with Invisible Disabilities. The hearts of the founders and people involved with IDA are amazing! They connected me to resources and people that can help and support me navigating the pain and struggles of daily living with an invisible disability. Thanks for all you do IDA. And for BELIEVING me!

4

Client Served

Rating: 5

IDA has been a great resource, and gives me opportunities to work with my kid. They let me know that I’m being heard. I’d recommend them whenever I get the chance.

4

General Member of the Public

Rating: 5

LOVE this organization. Was so touched by all of the efforts that went into their 2018 gala. They talked about how
Alaska has taken their logo to designate those with invisible disabilities on their state drivers licenses. We need this everywhere! Thanks to Wayne, Sherri, and all of their ambassadors for this organization.

4

Client Served

Rating: 5

Great organization run by truly compassionate people. No matter your illness or condition, IDA will ensure you find a home within this community.

4 Brittani S.

Volunteer

Rating: 5

My experience as a volunteer far exceeded my expectations. Invisible Disabilities Association truly goes above and beyond providing families and individuals time, tools and support for what it means to live with an invisible disability. This organization was built on understanding, love and bringing as many smiles to people as possible. IDA is truly all about understanding- something the world needs much more of! I can't recommend it highly enough- we all need to smile and understand more- especially those among us who are truly struggling living with an invisible disability. IDA truly deserves so much more than 5 stars, they are truly a gift! I love being apart of this organization and appreciate all they do to bring awareness to people living with an invisible disability.

4

Professional with expertise in this field

Rating: 5

I have been totally impressed with the Invisible Disabilities Association. It is a great organization that focuses on segment of the population often overlooked. It is so much easier to raise awareness when a person looks sick or is clearly unable to handle life tasks.
When these symptoms are invisible, it is so much harder. This group is professional, focused and dedicated to helping those people. I have had the opportunity to meet with Wayne Connell and was moved by his dedication and commitment.

4

Client Served

Rating: 5

IDA helped me find resources and a community, it has helped my daughter cope with her Invisible disability!

3 LoneStarState

General Member of the Public

Rating: 5

I had the opportunity to work on a project with Invisible Disabilities. The founders and the board of directors are some of the most caring, well-meaning people I have ever met. In the process of working with them, I learned much about the lives of people with invisible disabilities.

Daily life can be extremely challenging for people dealing with chronic pain and illnesses that are not seen by others. Educating the public about invisible disabilities was a daunting challenge from the start, but founders Wayne and Sherri Connell were not intimidated by the immensity of the task. They boldly continue to rise up against adversity on behalf of their membership and this critical mission.

I have great respect for IDA, its leadership team, mission, and goals. Bravo and best wishes for your continued success.

Previous Stories
2

Client Served

Rating: 5

Invisible Disabilities Association is doing incredible work helping to bring attention to the millions of people in the U.S. and around the world that have physical, mental or neurological conditions that limit either their movements, senses, or activities but their condition is invisible to the onlooker. Unfortunately the very fact that this condition is invisible leads to misunderstandings, false perceptions and judgments. I experienced this first-hand when my mother became ill with severe stomach pain and doctors kept misdiagnosing and treating her for a heart condition. She nearly died with a super bug before they realized what it was. Now she suffers with many other conditions as a result even though she appears healthy to others. Invisible Disabilities has really helped me understand how to be more supportive as a caretaker and also has made me feel less alone.

1

Professional with expertise in this field

Rating: 1

I am really disappointed that the Invisible Disabilities Association has chosen to retain their incorrectly granted trademark for "Invisible Disabilities" rather than instead pursuing a trademark for "Invisible Disabilities Association". The phrase "invisible disabilities" has been around for many decades, is embedded in the ADA, and is an important identity marker for many of us. There are three trademark symbols on the cover photo of this page alone! this is absurd. I am an academic working in disability studies and "invisible disabilities" are part of my identity, not a phrase for corporations to profit from or limit the usage of. This is a gross misuse of trademark law and very sad to see from an association whose supposed purpose is to benefit us.

3

Professional with expertise in this field

Rating: 5

I have worked with this organization for over 6 years and watched it grow and reach thousands of people with chronic pain and illness or have issues that you cannot see but are reminded daily of their disability. This organization provides a great resource for both the care giver and the person dealing with their issues - it offers support and resources to improve your life.

2

Volunteer

Rating: 5

I have been associated with Invisible Disabilities Association for many years. I have mostly attended the yearly Gala and was a volunteer for 2 years to help with the Gala event.
This organization has helped encourage and inform countless hurting people about how to
care for friends and family members who have an invisible disability. The leaders of this organization are very caring people who are motivated by love and doing things with the highest quality.

Each year I am amazed at the energy and tireless devotion invested by the leaders of this organization and how tenacious they are at overcoming obstacles and problems associated with running a people focused organization. Every year there are quite a number of caring volunteers and committed businesses that I noticed put in a big effort because they love people and believe in what this organization does and stands for.

If you struggle with an invisible disability or a family member who does - you are not alone. I highly recommend that you take an open and honest look at the people that run this organization and you will find that they are very honest and loving people who do not have any secret agendas or selfish motivations. They simply want to bless others.

They have certainly blessed my life and opened up my heart to care for others better.

Sincerely,

Randy Stanton

3

Board Member

Rating: 5

I have been volunteering for the IDA for nearly ten years now and have seen the dramatic impact they make on the community. This is such an underserved audience, and IDA is living its core values daily, fighting to give a voice to people who otherwise may not have one, or be misunderstood.

2

Board Member

Rating: 5

This organization is a true non-profit and re-invests any dollars back into the organization's aggressive awareness mission. All volunteer board of directors, comprised of senior executive professionals aligned with the Founder's vision.

3

Board Member

Rating: 5

I have been a volunteer with IDA since 2012. I have seen firsthand the positive impact that IDA has on those touched by invisible illness and disability. I am one of them. IDA seeks to bring understanding and awareness about invisible illness to family members, friends, caregivers, and anyone touched by ID. EVERYONE has a story-- we all know at least one person who is dealing with an illness or disability that does not show on the outside. I continue to get inspiration from the thousands of people who have found encouragement, understanding and other support not only from IDA, but from our support communities and from one another. We have worked hard to raise awareness, through our online communities, recognition events, and the growing ID community who participate in the annual Invisible Disabilities Week in October. I hope that through our programs, and through the generosity of those who give their time, tell their stories, and contribute to IDA, we can continue to encourage, educate and connect people worldwide. I am proud to be affiliated with this organization.

Previous Stories
2

Board Member

Rating: 5

I'm honored and excited to be a part of this organization, and helping IDA to expand its mission of necouraging, educating and connecting those touched by invisible illness or disability.

2

Professional with expertise in this field

Rating: 5

This organization puts its constituents first in everything they do.

1

General Member of the Public

Rating: 5

I have been living with a rare eye disease since the age of 5, going into the hospital monthly to get steroid shots in my eyes. At the age of 12, I lost sight in both of my eyes. Three months later I gained partial sight back in my right eye. In my early 30's I was diagnosed with Lupus and dealt with chronic pain. In this journey I found myself slipping in and out of the "Invisible shame" I tagged myself with. One day I was blessed to meet the founders of Invisible Disabilities Association, Wayne & Sherri Connell. They touched my life in a profound way by showing me unconditional love and introduced me to to this amazing Org.

3

Client Served

Rating: 1

Please think twice before donating to this organization. You are not directly helping the people most in need of help, you are helping the association to sell their wares to only those who can afford it and grow their company. Disgusting! Only interesting in selling their wares. They create materials that would help strengthen relationships between those with invisible disabilities and the people around them. But if you are actually disabled by your invisible disability and can't afford their helpful materials it's tough luck to you. They only want to sell, and not really help those who could benefit most from what they claim they are trying to help with. Very ugly IDA, very ugly.
They refused to help in any way with a coupon or code for books or pamphlets (for which their site store is set up for) and then wrote this... "We are a small organization with a big heart and a big reach! At this time we have no coupons and our website is at the lowest discounted rate from Amazon. We are volunteer based and therefore our small team of volunteers are working extremely hard to bring awareness, education and support to millions around the world, in addition to their jobs, families and/or disabilities.

Because we want people to have a place to share their websites, blogs and articles, we have our Facebook Page open for people to post on our Visitor Page and we have over 169,000 readers! This is also a great way to Share your story with others in our Invisible Disabilities Association Community on Inspire! We have over 4,000 members of our community and Inspire has over 750,000. Please read Inspire's Community Guidelines before posting."

Big heart?! Nope. So in other words... we can't give you any help in communicating better with your loved ones, but write for us so we can grow and sell our stuff to other people. Just ugly.

UPDATE: Received two notes from IDA today. Seems they are now reaching out to offer a few of their communication assisting materials as a gift. A very nice gesture. I will update again upon receipt. I still feel that they would best serve their intended purpose if they would have a decent percentage of donations go to supplying materials (the pamphlets and books) to the people who most need them (and can't afford them due to actually being on disability). I hope that in the future they will find a way to accomplish this.

2

General Member of the Public

Rating: 5

This has helped me so much by helping me understand not only what I go through but also my friends and family! Thank you so very much!!!

3

Volunteer

Rating: 5

IDA has empowered me to use my voice so that others can be heard! After undergoing some major lung surgeries, I was left with chronic pain. I live with this pain every day. I've been from doctor to doctor and was started to feel like I was crazy. That was when I was introduced to the Invisible Disabilities Association. Through IDA, my thoughts were validated and most importantly, I was understood. People from all over started reaching out to me to share their stories. I was empowered, empowered to share those stories and mine so that many more would know that we understand. IDA has opened my eyes up to a new world. A world full of hope, kindness and understanding. I'm so grateful to IDA for the work they do, so much so that I have joined their team as an Ambassador so that I can continue to help make those living with an invisible disability, invisible no more!

4

Professional with expertise in this field

Rating: 1

I put my role as a "professional with expertise in this field" instead of "member of the general public" because there are no greater experts on invisible disabilities than those who have them. It is ethically and morally wrong for a company to trademark an identity like this. Should "white" or "black" or "Latino" be trademarked? Should "man" or "woman" be trademarked? Should "American" be trademarked? No, no, and no, and yet, "invisible disabilities" has a trademark. The Association is acting incredibly harmfully towards my community because of this.

3

Professional with expertise in this field

Rating: 5

I believe that IDA continues to provide awareness and give a voice to individuals who otherwise would be isolated and abandoned. I have been working with the founders for almost two years in an effort to expand this voice into the built environment and provide a shift in design , construction and materials selections that reflect the unseen sensitivities of IDA members .

2

Donor

Rating: 5

Becoming aware of invisible disabilities has changed my perspective about many people, and my understanding of them. We have a daughter who suffers from chronic pain, and IDA has increased my awareness of her life and struggles. Of course, this message transfers to many people I know, who always "look good."

2 Aaron58

General Member of the Public

Rating: 5

They are a great organization that truly beliefs in helping people.
Aaron

2

Volunteer

Rating: 5

Working diligently to create a special Idea Home to educate the public about Invisible Disabilities through a home tour and educational programs!
Contact Wayne and Sherrie for more information today!
ONwards and UPwards!

7

Client Served

Rating: 1

How dare the IDA trademark the term "invisible disabilities." I am not a brand, and my identity is NOT to be determined by someone who is not themself a sufferer. You do not speak for us. HOW DARE YOU THINK OTHERWISE.

This organization is only interested in making money, not for advocating change or supporting those with invisible disabilities. They block criticism on their social media, and do not listen to the voices of those who they claim to support. DO NOT TRUST THEM.

8 Jessica290

General Member of the Public

Rating: 1

This organization is trying to trademark the term " invisible disability" You can't trademark our identities!

8

General Member of the Public

Rating: 1

*zero stars*
Invisible disabilities should not have to include (tm). I am a person. I have invisible disabilities. "Invisibible Disabilities" is not a name to be claimed or made up company title. The term has existed long before this org. Invisibile disability is a part of my identity. My identity, who I am, and my disabilities should not be trademarked. Shame on this organization. It clearly has no true understanding of disabilities or moral ethics.

10 Sofie S.

General Member of the Public

Rating: 1

I have several invisible illnesses, and you have no right trademarking them - you have to be pretty horrible to do such a thing.

8

General Member of the Public

Rating: 1

The Invisible Disabilities Association does not connect people and organizations - rather the IDA silences people and organizations. The IDA seeks to build a wall around Invisible Disability (tm) - and the king at the center is Wayne Connell. Watch out, if you don't fit into Wayne's brand of Invisible Disability - then this organization may try to silence you.

13

Professional with expertise in this field

Rating: 1

Any organization ballsy enough to trademark a term used by so many to define their identities should also be ballsy enough to face up to their critics instead of blocking them on Twitter and refusing to answer for their actions.

Attempting to set your organization apart by trademarking "invisible disability" would be just as offensive if it was any other identifying characteristic. Having an invisible disability could mean being overlooked by the medical community, misunderstood by family, friends, or coworkers, or struggling to meet everyday challenges. Now it also means coming to terms with the fact that a very basic identifying, perhaps community-rallying label, has been co-opted by one organization.

Please choose to support literally any other organization with your time and money.

9

General Member of the Public

Rating: 1

The Invisible Disabilities Association has no logical right to the term "invisible disabilities."

I have an invisible disability. This is part of who I am. My identity is not for sale.

The term "invisible disability" has been in use for about a century. The fact that the IDA were able to copyright the term drives home the point that there is too little awareness of invisible disabilities--and the IDA is profiting from this. Adding injury to insult, they drove the Invisible Disability Project off of Facebook; a community of 50,000 people. They have reportedly sent cease and desist letters to others who use this established, descriptive term. The US Government has been using this term (through the ADA, EEOC, ODEP, etc.) since long before the IDA got their copyright. Is the IDA going to sue them, too?

The IDA protests that their stakeholders and Facebook followers have not expressed concern about the trademark. Yet they block their critics from their Facebook page!

It appears that the Invisible Disabilities Association is more interested in making a "brand," raising money, and selling t-shirts than helping people with invisible disabilities.

11

Client Served

Rating: 1

I have multiple invisible disabilities. The man who started this organisation is NOT disabled, much less invisibly so, and is actively silencing those of us who are by sending cease and desist notices telling us not to say we have invisble disabilities because he trademarked the term -- a term that's been in use for over a century.

If you want to support people with invisible disabilities, support US, not an abled person who is bullying and silencing us!

10

Client Served

Rating: 1

This "non-profit" has trademarked a term in use for over 100 years, and has attempted to monetize the phrase recognition to their own benefit, to the detriment of other charities and activists who use have been using the term extensively for years. They have refused to communicate with community leaders who have contacted them in attempt to resolve this. If I could give zero stars, I would.

9

General Member of the Public

Rating: 1

I cannot imagine a non-ableist argument that would rationalize how this organization has conducted itself around their recent trademarking of the general term "invisible disabilities". Simply by trademarking the term (which I've read they attempted to do once before and were denied, they were really committed to this), they cop-opted countless voices, people who use this term as a part of their identity.

IDA then reportedly used their trademark protection to silence whole groups of people, removing and blocking their access to media (Facebook takedown). And now I'm seeing how their representatives are responding to criticism from individuals in the community - tipping their hand to show an ableist, "we know what's best for you" attitude.

If you're researching IDA here because you're wondering if they are worth donating your time, money, or services to, I would recommend that you keep looking. It seems that IDA does not care about the very people they claim to represent.

9

General Member of the Public

Rating: 1

The way that this organization and its representative have talked to and about Disabled people and invisible disabilities demonstrates profound ignorance of and contempt for our community, our bodies, and our political identities. Nothing about us without us and so nothing with the Invisible Disabilities Association.

12 Aleks S.

General Member of the Public

Rating: 1

This organization is clearly acting in detriment to the very people they claim to want to help. Whether this is a calculated move or a gaffe, I cannot trust them to represent me or people like me.