My invisible disabilities are "epilepsy and "diabetes". I also had "brain surgery" over a decade ago which has eliminated my "short term memory". I follow the "Invisible Disabilities Association" on Facebook because they provide needed: information, communication, support and a forum for people like myself. I am able to share with others, my invisible disabilities, the pain, the struggles and challenges that I deal with in life, each and every day. At the same time, I am listening and learning about others like myself that are fighting the same or similar battles. We are able to learn from each other and give each other hope and helpful advice, but most importantly to know that others walk similar paths as us and they truly care..
I have worked with this organization for over 6 years and watched it grow and reach thousands of people with chronic pain and illness or have issues that you cannot see but are reminded daily of their disability. This organization provides a great resource for both the care giver and the person dealing with their issues - it offers support and resources to improve your life.
I have been associated with Invisible Disabilities Association for many years. I have mostly attended the yearly Gala and was a volunteer for 2 years to help with the Gala event.
This organization has helped encourage and inform countless hurting people about how to
care for friends and family members who have an invisible disability. The leaders of this organization are very caring people who are motivated by love and doing things with the highest quality.
Each year I am amazed at the energy and tireless devotion invested by the leaders of this organization and how tenacious they are at overcoming obstacles and problems associated with running a people focused organization. Every year there are quite a number of caring volunteers and committed businesses that I noticed put in a big effort because they love people and believe in what this organization does and stands for.
If you struggle with an invisible disability or a family member who does - you are not alone. I highly recommend that you take an open and honest look at the people that run this organization and you will find that they are very honest and loving people who do not have any secret agendas or selfish motivations. They simply want to bless others.
They have certainly blessed my life and opened up my heart to care for others better.
I have been volunteering for the IDA for nearly ten years now and have seen the dramatic impact they make on the community. This is such an underserved audience, and IDA is living its core values daily, fighting to give a voice to people who otherwise may not have one, or be misunderstood.
This organization is a true non-profit and re-invests any dollars back into the organization's aggressive awareness mission. All volunteer board of directors, comprised of senior executive professionals aligned with the Founder's vision.
I have been a volunteer with IDA since 2012. I have seen firsthand the positive impact that IDA has on those touched by invisible illness and disability. I am one of them. IDA seeks to bring understanding and awareness about invisible illness to family members, friends, caregivers, and anyone touched by ID. EVERYONE has a story-- we all know at least one person who is dealing with an illness or disability that does not show on the outside. I continue to get inspiration from the thousands of people who have found encouragement, understanding and other support not only from IDA, but from our support communities and from one another. We have worked hard to raise awareness, through our online communities, recognition events, and the growing ID community who participate in the annual Invisible Disabilities Week in October. I hope that through our programs, and through the generosity of those who give their time, tell their stories, and contribute to IDA, we can continue to encourage, educate and connect people worldwide. I am proud to be affiliated with this organization.
I'm honored and excited to be a part of this organization, and helping IDA to expand its mission of necouraging, educating and connecting those touched by invisible illness or disability.
This organization puts its constituents first in everything they do.
I have been living with a rare eye disease since the age of 5, going into the hospital monthly to get steroid shots in my eyes. At the age of 12, I lost sight in both of my eyes. Three months later I gained partial sight back in my right eye. In my early 30's I was diagnosed with Lupus and dealt with chronic pain. In this journey I found myself slipping in and out of the "Invisible shame" I tagged myself with. One day I was blessed to meet the founders of Invisible Disabilities Association, Wayne & Sherri Connell. They touched my life in a profound way by showing me unconditional love and introduced me to to this amazing Org.
Please think twice before donating to this organization. You are not directly helping the people most in need of help, you are helping the association to sell their wares to only those who can afford it and grow their company. Disgusting! Only interesting in selling their wares. They create materials that would help strengthen relationships between those with invisible disabilities and the people around them. But if you are actually disabled by your invisible disability and can't afford their helpful materials it's tough luck to you. They only want to sell, and not really help those who could benefit most from what they claim they are trying to help with. Very ugly IDA, very ugly.
They refused to help in any way with a coupon or code for books or pamphlets (for which their site store is set up for) and then wrote this... "We are a small organization with a big heart and a big reach! At this time we have no coupons and our website is at the lowest discounted rate from Amazon. We are volunteer based and therefore our small team of volunteers are working extremely hard to bring awareness, education and support to millions around the world, in addition to their jobs, families and/or disabilities.
Because we want people to have a place to share their websites, blogs and articles, we have our Facebook Page open for people to post on our Visitor Page and we have over 169,000 readers! This is also a great way to Share your story with others in our Invisible Disabilities Association Community on Inspire! We have over 4,000 members of our community and Inspire has over 750,000. Please read Inspire's Community Guidelines before posting."
Big heart?! Nope. So in other words... we can't give you any help in communicating better with your loved ones, but write for us so we can grow and sell our stuff to other people. Just ugly.
UPDATE: Received two notes from IDA today. Seems they are now reaching out to offer a few of their communication assisting materials as a gift. A very nice gesture. I will update again upon receipt. I still feel that they would best serve their intended purpose if they would have a decent percentage of donations go to supplying materials (the pamphlets and books) to the people who most need them (and can't afford them due to actually being on disability). I hope that in the future they will find a way to accomplish this.
Invisible Disabilities Association is doing incredible work helping to bring attention to the millions of people in the U.S. and around the world that have physical, mental or neurological conditions that limit either their movements, senses, or activities but their condition is invisible to the onlooker. Unfortunately the very fact that this condition is invisible leads to misunderstandings, false perceptions and judgments. I experienced this first-hand when my mother became ill with severe stomach pain and doctors kept misdiagnosing and treating her for a heart condition. She nearly died with a super bug before they realized what it was. Now she suffers with many other conditions as a result even though she appears healthy to others. Invisible Disabilities has really helped me understand how to be more supportive as a caretaker and also has made me feel less alone.
This has helped me so much by helping me understand not only what I go through but also my friends and family! Thank you so very much!!!
IDA has empowered me to use my voice so that others can be heard! After undergoing some major lung surgeries, I was left with chronic pain. I live with this pain every day. I've been from doctor to doctor and was started to feel like I was crazy. That was when I was introduced to the Invisible Disabilities Association. Through IDA, my thoughts were validated and most importantly, I was understood. People from all over started reaching out to me to share their stories. I was empowered, empowered to share those stories and mine so that many more would know that we understand. IDA has opened my eyes up to a new world. A world full of hope, kindness and understanding. I'm so grateful to IDA for the work they do, so much so that I have joined their team as an Ambassador so that I can continue to help make those living with an invisible disability, invisible no more!
I put my role as a "professional with expertise in this field" instead of "member of the general public" because there are no greater experts on invisible disabilities than those who have them. It is ethically and morally wrong for a company to trademark an identity like this. Should "white" or "black" or "Latino" be trademarked? Should "man" or "woman" be trademarked? Should "American" be trademarked? No, no, and no, and yet, "invisible disabilities" has a trademark. The Association is acting incredibly harmfully towards my community because of this.
I believe that IDA continues to provide awareness and give a voice to individuals who otherwise would be isolated and abandoned. I have been working with the founders for almost two years in an effort to expand this voice into the built environment and provide a shift in design , construction and materials selections that reflect the unseen sensitivities of IDA members .
Becoming aware of invisible disabilities has changed my perspective about many people, and my understanding of them. We have a daughter who suffers from chronic pain, and IDA has increased my awareness of her life and struggles. Of course, this message transfers to many people I know, who always "look good."
They are a great organization that truly beliefs in helping people.
Working diligently to create a special Idea Home to educate the public about Invisible Disabilities through a home tour and educational programs!
Contact Wayne and Sherrie for more information today!
ONwards and UPwards!
How dare the IDA trademark the term "invisible disabilities." I am not a brand, and my identity is NOT to be determined by someone who is not themself a sufferer. You do not speak for us. HOW DARE YOU THINK OTHERWISE.
This organization is only interested in making money, not for advocating change or supporting those with invisible disabilities. They block criticism on their social media, and do not listen to the voices of those who they claim to support. DO NOT TRUST THEM.
This organization is trying to trademark the term " invisible disability" You can't trademark our identities!
Invisible disabilities should not have to include (tm). I am a person. I have invisible disabilities. "Invisibible Disabilities" is not a name to be claimed or made up company title. The term has existed long before this org. Invisibile disability is a part of my identity. My identity, who I am, and my disabilities should not be trademarked. Shame on this organization. It clearly has no true understanding of disabilities or moral ethics.
I have several invisible illnesses, and you have no right trademarking them - you have to be pretty horrible to do such a thing.