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Review for International Topical Steroid Awareness Network (ITSAN), Dacula, GA, USA

Rating: 5 stars  

ITSAN was a lifeline. I would have never known what was going on with my son had it not been for this charity. They provide information and support. The information, I discussed with my doctors. They all supported the process of topical steroid withdrawal, as all other treatments had been exhausted and were producing side effects -- in addition to Red Skin Syndrome. The support, I depended on. Red Skin Syndrome is a debilitating condition. It is not chronic. But in the acute phase, support from others who have come out the other side is vital. It is a shame that the December 14-15th 1 star reviews were written by people who have never utilized ITSAN for support, but are instead wishing to sell their product. If stopping steroids improves the condition in 12 months time, and using steroids for 3 years straight did nothing but cause full-body burning/shedding/weeping skin, which would you choose? Thank God for ITSAN! My son's skin no longer burns, sheds, cracks, and/or weeps. He is healthy and well, and now all of his doctors are aware of Red Skin Syndrome and the damage topical steroids can cause for some unfortunate users.

Role:  General Member of the Public