International Topical Steroid Awareness Network (ITSAN)

This is the only organization of its kind helping those going through Topical Steroid Withdrawal. I'm so grateful for ITSAN and all it does to help sufferers and raise awareness!

Cannot say enough about the work this organization does to raise awareness and push research forward for this debilitating and preventable condition.

This nonprofit saved my son's skin and his life. I don't know what we would do without ITSAN. Thank you for being the voice of the patient.

ITSAN was the first resource I found that helped me realize that I had been suffering from steroid withdrawal. I took the information they provided to my doctor and was officially diagnosed last year. Their resources have been invaluable throughout this awful process, especially their online support group, medical and scientific research pages, and their ongoing advocacy for those suffering with steroid withdrawal. I am so thankful for this group and all the tireless work they are doing on behalf of our community.

ITSAN rescued me from steroid induced skin hell! Everyone working for them are heroes and continue to raise awareness throughout the world about Topical Steroid Withdrawal Syndrome, a very real and preventative condition. God bless ITSAN!

It was such an important resource for me when I was new to TSW. I felt listened, validated, and had a whole community waiting for me. Thank you for speaking for us and advocating for the unheard.

Now-days it is difficult to find the group people among whom one feels comfortable to express himself safely. ITSAN is a rare gem. It is coalition of people who are kind and supportive to each other in a search to ease or might even heal a very invasive and painful skin condition. In a short period of time I read so many genuine inspiring stories and found many helpful tips and suggestions. I belong to many different support groups. ITSAN by far one of the best .

I’m one of the unlucky ones to have developed TSW from 25 years of using topical and oral steroids. I’ve been to so many dermatologist for treatment and was constantly told that I (still) had eczema. Finally after posting about my condition on social media, someone referred me to ITSAN, and that was a major game changer. I finally realized that I was going through TSW and that I wasn’t alone. What a relief! ITSAN is a great community for us who suffer and need to vent or looking for a virtual hug. This condition is horrible so being able to talk about it with likeminded is so important for your mental health in the process.

I have been suffering from Topical Steroid Withdrawal Syndrome for over five years, and ITSAN has walked with me and has helped me understand and make sense of my suffering. They also advocate for patients and help spread the word to doctors that topical steroids are NOT safe and effective but in reality are DANGEROUS. Thank you ITSAN!

Because of ITSAN ive found a lively community that became my daily place to connect with for support and a deeper connection with people that experience the same symptons as me. Literally a life savor.

They have educated me about TSW. As someone who was lost when starting my journey, ITSAN helped to navigate my experience

Thanks to ITSan I started TSW, found the answers that the dermatologists would not tell me and my skin healing so well. What an amazing organisation!!! Thank you.

They are very responsive and great in participating in their community. I feel less alone since finding ITSAN and am thankful everyday for them and hope awareness is spread more.

This charity helped my son when we found answers nowhere else. Thank you ITSAN.

This really has been a great support network for me. There has been hardly any support from the NHS and doctors are clueless on TSW. Coming here has enabled me to get the information I need to help me through this chronic illness.

ITSAN has advocated for the TSW community like no other and validates us when medical professionals won’t. Without this organization I would have never discovered or been educated on what I am going through, and quite honestly without this information on the website might not be here anymore. I thank ITSAN for everything they have done and continue to do! Medically accurate information and a community can be found here!

I owe so much to Itsan and the support they give. I am so so so forever grateful I found them when doing some research about the painful, worsening rashes on my skin. Their helpful descriptions and links and symptoms lists all rang true for me and gave me the confidence to stop using steroids. My following symptoms were in line with their descriptions, and I have come out the other side with strong clear skin. The team are kind and thoughtful with their responses and the support group that they have set up on Facebook is an absolute lifeline during the horrendous withdrawal time.

If it wasn’t for ITSAN I would be at a complete loss. They have provided a safe, inclusive and collaborative space for sufferers. Pivotal to sharing information, resources, and connecting a community of support. We need this especially in light of how little recognition, research and genuine support there is out there for (T)SW. Thank you to ITSAN for SAVING so many lives.

If it was not for ITSAN, I would never have understood what was happening to my 8 year old who was experiencing steroid-induced eczema/steroid withdrawal. The page "For Doctors" helped me communicate with my GP and dermatologist on the symptoms. The "Coping with TSW Syndrome" page was so helpful that I cannot imagine without having such information as none of our doctors could tell us what was installed for us.

This group was a lifesaver for me. I was a lifelong user of lots of different steroids (40+ years) I was at the end of my rope physically and mentally ( red all over, burning etc...) i went to a Dermatologist and he prescribed Clobetsol for my back. That really put me over the top and I got even worse. I found this group and then knew what really was going on for me. I didn't have severe eczema- I was in TSW already and then quit all my steroids cold turkey. This group is just the best group of understanding people. Thanks so, so much for everything!

ITSAN has been extremely helpful and supportive throughout our daughters TSW journey. I’ve found informational resources from their website that has helped me find supportive doctors, navigate discussions with current doctors, and stay informed with current strides in the medical community regarding the harm topical steroids can cause. They’re prompt and kind when replying to emails and have gone out of their way to provide our family with the utmost care and support.

I have learned so much from this incredible group.

They changed my life.

Thanks for the great source of information that you are. You do a great job. Thanks to you I could put a name to the condition, I knew I wasn't alone.

My daughter went through Topical Steroid Withdrawal which is so horrible you can’t even imagine. ITSAN provided a wealth of information where every doctor we saw fell short. They were a place I could go to find real stories of recovery and also access academic research papers to give to our doctor and my daughter’s school. I also know they have been working tirelessly to bring awareness to the world about this condition to help prevent others from suffering. I know all of the people who work at ITSAN have a connection to Topical Steroid Withdrawal, either having gone through it themselves or cared for a child or close family member who has so I understand the desperation to prevent anyone else having to go through this and I truly appreciate all they have done towards this. As a mother of a child who has dealt with this condition I am so grateful there is a group of compassionate, smart, dedicated people to speak for us.

Guidance, support and hope is what I needed to get through with my condition. ITSAN provided that.

ITSAN was the best thing that has ever happened to me. My whole life I was told “you’re complicated” and prescribed stronger steroids. As a result, my body became addicted and when I ran out of cream, my skin reacted worse than I had ever seen. It wasn’t until I found ITSAN that I finally got my answers. The pain, emotions, and unknown timeline of TSW is nothing short of horrific. However, every splash of ooze, piles of dead skin, sleepless nights due to scratch fits, and the depletion of energy, collagen, and self esteem was beyond worth it. Once I started to heal, my skin grew stronger and has been the healthiest I’ve ever experienced in my 23 years of life. 21 years of topical steroid use, 33 months (almost 3 years) TSW. Thank you ITSAN and the community that built my new family. This organization has truly saved my life and I have met people around the world who spark true inspiration.

Saved my life from topical steroid abuse, a great resource for TSW sufferers worldwide!

Thank you ITSAN for always advocating for the TSW community. ITSAN was a lifeline for us when my son went through TSW. Now they are advocating at the highest levels to educate individuals, families, doctors, and even the FDA. Thank you again for all that you have done and continue to do ITSAN. So many people's suffering will be shortened or avoided altogether because of your work and compassion.

Itsan helped so much with information.

When I found my 4 year old daughter is going through TSW, I found this page so helpful.

Founded similar stories and pictures to ours.

Details from tsw was so helpful for me.

This was my first line source of tsw.

Thank you very much for your work!

Itsan gave me answers when I had none. They are so special and needed in our community. Don’t know what I would’ve done without them.

Itsan has been real help for my 6 year old son.. he's recovering slow but he definitely is!!!

ITSAN allowed me to confirm my suspicions I’d developed TSW and gave me the confidence to find a path towards healing. I’d be lost without them.

Saved my sons life! Will forever be grateful Used topical steroids for 4 yrs on him and he just kept getting worse. Took 28mns to completely heal from red skin syndrome but we did heal! 8 yrs later and my son uses nothing on his skin and it’s beautiful.

ITSAN was a life savior for me during my withdrawal from steroids. The information provided on their website is so informative and the ITSAN Facebook page helped me daily with my crazy, debilitating symptoms. Thank you ITSAN for being here for us!

ITSAN has so much information to offer you as you begin your TSW journey or if your in the middle of your journey. It helped me find so much information on the different stages my son would go though and what to expect. My son is 7 months TSW and I still find myself searching for more information on this website. I had a doctors appointment and printed documents to take with me to the visit in order to explain TSA and TSW. I’m so grateful for this organization!

Going in blindsided during my TSW journey, I was desperate to find others who are/had been going this TSW! I am so great full for ITSAN! It gave me HOPE AND FAITH!

Itsan provided free education materials online which helped me realise that my baby was going through Topical Steriod Withdrawal. After further research, I was able to find a local doctor in Australia and we ceased using topical steroids. My daughter is now recovered, and I thank you wholeheartedly. To think that it would have been something that would have lasted her whole life had I not realised and made the difficult decision to wean her off the medication that was hurting her

Lorri and her Angel's were a blessing you have no clue. I was very very stressed about feeding my girls I'm in a rural area we have nothing here. She and her Angel's blessed me with food and house hold essentials for once it was nice waking up to make breakfast for my girls. Forever in my heart I am grateful they themselves will be blessed

They're doing what they can to prevent a preventable illness! As an unfortunate long time topical steroid user, ITSAN's website, facebook communities, and videos have been extremely helpful in learning about TSW. I've been trying to find information on my why my skin, food sensitivities and allergies have been getting increasingly worse. I knew there was an underlying reason and doctors (even specialists - I've seen many!) have always been dismissive. Finding ITSAN has answered a lot of the questions I had and alot of questions I didn't know I should have had as well. I still continue to learn from them and their facebook community. Overall, it's a great non profit that really is trying to help people and create awareness.

I honestly can't thank ITSAN enough for helping me get to the bottom of my skin problems. I had seen many doctors and dermatologists who were unable to help (infact they made it worse). I wish everyone knew about the dangers of steroids- than goodness for ITSAN!

Finding this amazing organization literally saved my life! I’m so incredibly grateful for these wonderful people who work so hard to prevent this preventable condition from continuing to happen!

They are very good support group . I am thankful for this nonprofit who helped me survive through the darkest hour of at TSW

Awesome resource for people and families with members suffering from a reaction to topical steroids. I have a nephew who suffered with this for years, and ITSAN helped orient his family and turn things around. He's doing much better now.

ITSAN has truly saved my son's skin, as well as his health. Without ITSAN providing scholarly, peer reviewed reasearch, as well as member to member tips and encouragement, my son may not be well to this day. Nothing we did helped him or restored his health, until we learned about Topical Steroid Withdrawal Syndrome. It was only after going through horrendous withdrawals that his growth delay turned around, and his heart murmur (along with thickened heart wall and enlarged heart) resolved. I credit the tireless volunteers with putting this condition on the map. Thank you ITSAN.

This organization saved my daughter from on-going immense suffering—something umpteen doctors couldn’t do. My daughter is living life to the fullest now, no longer prisoner in her own skin. Forever grateful for their dedication to helping others and raising awareness about Red Skin Syndrome caused by topical steroids. Their website is informative and support groups invaluable— a true life saver. Thank you!

Almost 6yrs ago my skin was red, burning, I felt like and looked as if I'd been dipped in acid, my skin oozed , I was bone deep itchy 24/7 and my skin came off everywhere.
These were symptoms that lead me to Itsan and finally understanding that I had Red skin Syndrome/Topical Steroid Withdrawal, a very misunderstood condition caused by topical steroid use.
Itsan has been my lifeline while living with this condition. It is an amazing organisation, that's done so much in providing support to those suffering but also to furthering the education of RSS/TSW with the public, the medical fraternity and with government through advocacy, webinars, lobbying and sheer determination. Their website holds a wealth of information. Thank you Itsan for being such a great support to me and so many others

This is my grandson Oliver's story. He was diagnosed with severe atopic eczema at the age of one month. We were told to use over the counter hydrocodone on the red spots. We did and they would return so the doctor prescribed triamcinolone betamethosone and protopic. These potent drugs were used for 7 years until I learned the truth by googling Red, Skin and Oozing which led me to itsan.org. Thank God literally. If it weren't for Itsan we would still be living a nightmare. I am ever so grateful for this non profit. It was an answer to my prayers. Oliver was hospitalized many times for his skin. He had chronic staph and severe sinus infections. He started TSW in 2017 at the age of 7. He is 10 now and still having some skin flares but nothing like before. Since withdrawing off the steroids he has been healthy and not been on antibiotics! He is in school, thriving and living life to the fullest! Thank you itsan for all your tireless efforts. Without you we would still be in the trenches fighting this war without ammunition.
God Bless, Donna. (Nanna)

The co-founders of this nonprofit literally saved my life!

After watching my grandson being tortured with unbearable itching, my daughter found ITSAN and embarked on a course of action that cured him. It was a godsend!

SO, SO, SO grateful for the information that ITSAN provides! There are next to no doctors currently informing patients about the possibility of becoming dependent on topical steroid creams leading to a harrowing withdrawal and iatrogenic condition. After using these creams for over 20 years for my mild eczema, I started to develop a wide array of allergies. Discovering the correlation with long term topical steroid use, I weaned myself off of them - little did I know what was to ensue. I was bed-ridden for 1 1/2 years, lost my hair, developed a cataract, had horrible itching burning skin for years afterward. I am now doing amazing - have my life back and am just dealing with a few itchy spots on my knuckles and back of neck, which I believe will eventually heal as well. ITSAN was such a support through the worst of it - offering hope and guidance when no one else was.

ITSAN saved my life!! I would've never known what TSW was or how to cope with the healing process if it wasnt for the community and support of ITSAN. I'm so proud of the awareness the organization works for and how many people are being served because if it's good work! I am so happy to now serve as a board member and continue to foster our coordinated efforts!

ITSAN has been a lifeline for me and I could never thank this wonderful organization enough for everything it has done for me and all the TSW sufferers out there. The intention behind the foundation of ITSAN are completely pure and genuine and it’s reflected in everything they do.

The only reason that so many people become aware of exactly what has gone wrong with their skin after having used topical steroids, is ITSAN. This is an iatrogenic skin condition that is surprisingly devastating and semi-permanent. Many people are home-bound due to immobility and oozing skin - for months/ years at a time. Yet doctors do not acknowledge this condition - ITSAN is the single, unifying factor that supports patients, establishes ties to the medical community, and drives for research. A top notch organization.

Thank you ITSAN! FIVE STARS! The truth is, any negative reviews are not from anyone who ever was or ever will be affiliated with ITSAN. Please do not take the one star reviews seriously. They are selling a product that contains steroids and antibiotics that kills "staph" on the skin and supposedly "cures" eczema. Our community can not use steroids and were damaged by steroids. Because we can not use products with steroids, we can not use it, and we do not recommend using this product to our community. Because of this, proponents of the steroid/antibiotic mix comes in, writes multiple 1 star reviews, and has everyone they know click "found this review helpful." You can see most the of 1 star reviews have at least 14-17 "found this helpful." That should be a tip off that it's a fake. The 5 star reviews are legitimate and just placed by an individual --not a group. The 5 star reviews may have a few "likes", but they weren't written as a group with an agenda or axe to grind. ITSAN saved my child's life. It is run by the best humans on earth. It is unfortunate the type of trolling they have experienced by grown adults.

ITSAN is provides information and support that is other wise unavailable or goes against the grain. They are not an organization bought and paid for by big Pharma. They are not an organization with a doctor wanting everyone's money. ITSAN is run by volunteers. And it is absurd to see people say their eczema was cured because they had a staph infection. Most people who come to ITSAN have tried EVERYTHING, including antibiotics for a staph infection!
ITSAN saved my wife's skin and they are a great organization. Do your own research!

This is an amazing organization that saved my skin. After years of full body eczema, and escalating use of topical steroids, I am now clear of eczema for the first time in my life. And medication free. The withdrawal process was horrible and long, but that is what the body must do to heal. The naysayers on these comments (1 star reviews) are like saying let a heroin addict stay in the medication, because withdrawal is too hard. These are confused parents that don't want to put their kids through what needs to be done before their healed. Down the line they will see the truth. This approach is back by many medical research articles and when they say it is not, they are lying. ITSAN is doing great work. Change is tough for most people. Leaders are often criticized. ITSAN is a leader in health recovery! Thank you ITSAN!

This organisation glorifies suffering. Take lots of pictures of your flaky red skin and post an update every week or keep a blog and you will be know as a TSW warrior!!!

It's a crying shame that this organisation knows of a better way to heal yet censors it from their poor suffering followers, it really is a bunch of brain-washed individuals leading people who are vulnerable and suffering, so sad and downright wrong. Even the founder of this organisation has distanced himself from ITSAN.

ITSAN saved me from a life of worsening "eczema" and constant suffering. Without ITSAN, I never would have learned how topical steroids were actually damaging and causing my unrelenting, spreading, and worsening eczema rather than treating it. The healing journey is long for many people (including myself), but the support from ITSAN somehow makes it more bearable.

I'd be lost without the knowledge and support of ITSAN -- they have made a world of difference to helping me understand what is happening with my situation!!! Love them!

So supportive for a family member going through TSW

Not a group I'd recommend d. This group uses two non-peer reviewed studies to validate their theory that TSW is real issue. Sadly what they fail to realise is by stopping their medications cold turkey they allow a rebound effect to occur and when this happens the staph bacteria goes and has a party on their skin. They dismiss any medical help, actual no that's not true. They think taking black box medicine and suppressing the immune system is a better alternative.

My experience with this group was not a good one sadly. I had bright red skin, flaking everywhere, couldn't sleep, the itch was terrible, life was terrible. This group told me it is definitely a steroid addiction? Really? I found a different way that treated the bacteria that gets into eczema prone skin and when I said that's what I'd done they deleted me? I really think they are telling people wrong information or perhaps they just don't understand? They don't allow open discussion about the topic as they fear it so much. Why? Perhaps it challenges their belief system too much? Who knows? Perhaps they've suffered for so long that don't want to believe it has all been in vain?
My red skin was cured in two days and now I don't need any topical steroid anymore except for a tiny spot I get on the back of my neck and on my left wrist. I can go weeks without needing to use it. I can't understand why anyone wanting to give up steroids (if that's what they really wanted) wouldn't start where I have and taper off slowly. Honestly if that's the end goal, why put yourself through the horrible suffering. ITSAN are missing a huge point here. They could promote this better way and then talk to their "people" about avoiding triggers for flare ups, it would be a much happier place instead of a sad, depressing world of suffering.

I don't think this is the right group to look to if you want to heal your skin, they seem to be so caught up in long term suffering.

A steroid phobic community that encourages suffering. There are far less torturous ways to heal than this cold turkey method they encourage. ITSAN promote their way only and censor all other suggestions. I especially disagree with their ethos when it comes to babies and children.

Thank you to ITSAN for providing the information. My daughter been using steroids but it doesn't helped at all. After we stopped, her skin is much more healthier and we see the huge difference! Keep helping.

Not a place I'd recommend because of the high censorship and deletion of any whiff of an easier way to heal.
I guess it must be hard for the admins to admit there could have been a better way, especially when you've suffered or allowed your children to suffer so much. This organisation thrives on it's own pity and if you're not suffering you must not be doing it right. it's very idealistic to believe by using everything natural you will heal. I guess there is some truth in that but in this situation most people need medical help. Children have died at the hands of ITSAN, not a responsible organisation.

Itsan was very discouraging to me when I posted about other available options for treating my skin eczema. I was considering topical steroids and on mentioning this, I was made to feel like I was a horrible person. The one statement they kept repeating was that I was "delaying the inevitable". They believe that everyone who uses topical steroids is addicted. I do not understand the group mentality that exists in their forum but I am no longer a part of it. I am now back on topical steroids for the treatment of my skin, under the care of my doctor, and doing splendidly well!

As the Co-Founder of ITSAN and someone that started this journey 7 years ago I still get daily thank you emails from people around the world that have had their skin saved and their lives returned to normal because of the information that ITSAN has provided for them.

In some respects ITSAN is a whistle blowing organization. Many people (Mom's whose kids are addicted to Topical Steroids, Doctors who use topical steroids, Organizations that want to keep the status quo and doctors/people making money on the internet promoting their own products) don't want to hear ITSAN's message. It is an urgent and valuable message based on decades of medical research.

When an organization like ITSAN is making this much of a difference--questioning current medical treatment methods, they are going to ruffle some feathers. Do your own research and you will see that ITSAN is an outstanding organization. GOLD level on GuideStar for Non-profits, a member of the Coalition of Skin Diseases. ITSAN is a volunteer run organization.

It is laughable when stated that "someone is making money" at ITSAN. ITSAN is volunteer run and volunteers work countless hours only to help others. The reason I left ITSAN, as the Co-Founder, was because I was working 40-60 hours per week on ITSAN, all volunteer hours. As a small business owner, I had to get back to my own business.

ITSAN is a well run, transparent, professional organization bringing extremely valuable information to the world. They deserve 5 stars and global recognition for this work.

I think some mean well but there is clearly someone making money from behind the scenes. Why censor other ways to heal if there wasn't money to be made. Such a shame as people continue to suffer because of someone's greed.

Itsan is a wonderful organisation. I send thousands of eczema sufferers to their website from my blog (www.eczemahealing.blogspot.com), and every single person in need is welcomed into their community and educated on their options xo

This group saved my life. I was lost before and didnt really know whar to do when my eczema kept getting worst till i saw ITSAN and watched dr rappaport on you tube. Just knowing what i have and that i can be cured is an increfible and empowering feeling. Now im just looking forward to healing and maybe wearing a skirt w no stockings in summer. Thank you so much ITSAN.

Incredible charity providing support, resources and awareness to those suffering from RSS. As someone who has been dealing with this condition for over 3 years, itsan and its network of others going through the same thing really has been a life saver, I will forever be greatful to itsan

This organization is faking reviews, asking their Facebook friends with no connection to the organization to leave reviews.

I was a 3 year member of Itsan. You can still find many of my posts on the Itsan forum. I simply did not heal during this time. Even worse was that I spent several hours a day in the bathtub at the advice of those before me who were correct in telling me that this was the best way to find relief. I was completely out of touch with society. I had NO life at all. I was simply waiting around to be healed. It never happened.
Here's a great article that explains it much better. http://etsin.org/dr-aron-vs-topical-steroid-withdrawal-tsw/

This charity are really making a difference in terms of re educating on the appropriate use of topical steroids and how to get the best medical advice during withdrawal. Keep up the good work guys.

Helped my friend immensely! Typical steroids are a great medicine, but when done in excess or for people with steroid Sensitivities we really need people like this looking out for those in need!

Thanks to the work of ITSAN I'm now aware of the potential for topical steroid dependency and have moderated steroid use in my children with eczema. Prevention is better than cure, thank you for your work ITSAN.

This organization was key in helping a family fine and deal with red skin syndrome.

It has helped a really good friend get her life back. Very helpful thank you so much.

This organization has been incredibly supportive and empowering for a friend who has been struggling with withdrawal for many months. Very thankful for its work.

This page has become a place to state opinions on the benefits and negatives of not just ITSAN and the other connected Facebook Groups but the very thing they all encourage - TSW.

It is disturbing how hear-say is blatnetly passed off as fact by admins and others in these groups. People are advised - 'oh yeah it's probably not infected, just stick with it, and oh yeah it is probably TSW' - whatever they present.

The Dr who once started ITSAN has now distanced himself from it, that speaks volumes.

These groups are depressing places where not treating your skin is celebrated and people are not encouraged to seek medical advice. There are a lot of people in poor mental health and undetgoing unimaginable suffering, all the while saying ITSAN has saved them.

They say they just do what they do with no effect in others, but they are convincing others that they need to do the same.

People diagnose themselves just by matching photos up, it is horribly dangerous.

It's a good way to distribute information that helps people make better educated decisions about topical steroid use

Dreadfully sad and unnecessary suffering encouraged by poorly educated individuals. I researched it and I would NEVER do that to my child.

Have a friend that benefits greatly from this and deserves to be supported.

ITSAN has helped my sister greatly. She has been suffering from topical steroid withdrawal for about two years and the support of the community has given her the strength to carry on many times when she was at her wits end .

This charity helped my friend whose daughter has been dealing with topical steroid withdrawal! So happy there was help for her!

ITSAN helped me get my life back. If it wasn't for this organization, I wouldn't be here right now! They do everything they can to spread the word of the dangers of topical steroids, and support those of us going through the hell that is TSW. Forever thankful for ITSAN!

I'm so grateful that my friend shared the information about Itsan with me. There is a need to get word out about TSW and its groups like this one that will help spread the message of the potential dangers of topical Steriod usage.

Thank you Itsan! My son's skin thanks you! So glad we found you

ITSAN has been there for a friend of mine. A great organization!

Itsan is very supportive with relevant information helping those including myself who are going through tsw. Wonderful organization.

Itsan has been tremendous to a friend of mine going through the tough battle of TSW. Thank you!

ITSAN has helped an amazing friend of mine! She literally is spiderwoman!

ITSAN has helped a friend of mine going through TSW. She has spoken highly of this network, and the information you put out there is important. Thank you!

Itsan helped out a friend of mine :) I think it is great education as well for those who do not fully understand

ITSAN helped a friend of mine get through steroid withdrawal and they deserve all the highest reviews and regards in creating a community and access to important resources people in desperate situations need.

ITSAN has helped me get through TSW and encourage me to be a strong person. I am truly thankful for the support ITSAN has given me

Finding this site has given me not just invaluable advice but pretty much the only advice available. It has helped me with the resources I need to explain my TSW to my GP and my dermatologist. In this medical blindspot Itsan shines a crucial light.

Amazing charity! Wonderful origination that is helping many dealing with TSW!

ITSAN has been such a huge support during my withdrawal from steroids. I used for over 40 years on and off. Im 20 months off steroid creams now and have a tiny rash behind my knees, not even worth talking about. Life is normal again. No more prescriptions every bloody month and making sure you have a,b,c creams before you live. No more steroids or bundles of moisturisers. No more feeling like you have ants eating you 24/7 head to toe, no more grey pallor, poor circulation, fatigue. Get a grip. If you're using steroids as long as I am and you have these symptoms, you know what I mean. Life is too short.

ITSAN has helped my daughter tremendously. She is a fighter and never gives up. When things get tough she only gets tougher.

Itsan has helped a friend of mine tremendously and warns of the dangers of prolonged steroid use

Great organization! My wife is currently going through tsw and it has been a blessing having this organization out there for her to find spiritual support and guidance through. Knowing she is not alone in this struggle and that there are so many others who have suffered from this abundant medical malpractice and the over-prescription of corticosteroids.

I found out about Itsan in 2014 and it saved my life, and my skin is healing without steroids!! Thank you ITSAN! We will all heal, whether it's you that are going through this, a friend or a family member. We are here for eachother.

If it had not been for this organisation I would have been in a really bad way - I was overdosing on topical steroids and did not know it until I accidentally stumbled upon their website . It is a FANTASTIC NETWORK

Itsan has helped a friend of mine, thank you Itsan

ITSAN has helped me learn so much valuable information about the prolonged usage of Topical Steroids. I am so thankful to have found this site! It helped me figure out what was wrong with my skin. TSW/RSS whatever you want to call it....its really awful to go through, and knowledge is power! Wonderful website!

It has helped a friend of mine!!





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This website saved me. No one told me the dangers of steroids but I came across ITSAN one day and realized the horror of what was happening to my body. The withdrawal process has been ore bareable now that I know what has been happening is normal and I can also prepare for what is to come.

Itsan helped my friend great to get information on the cause!

Itsan has been a god send to me! Made me aware of the dangers steroids can do! I'm so glad I am with now where I am, and so much more happier in life! This needs to be spread so the world can stop the steroids and make adults and children stop suffering! Thank you itsan

After I stopped using steroids I realised my skin took the same length of time to heal using natural products so will stick to natural remedies that dont thin my skin

anyone who claims to be a medical professional and says that topical steroid withdrawal doesn't exist is so misinformed. finding itsan saved my life and my skin, I'm 14 months off steroids and nearly completely healed. my skin has never looked better! everyone with eczema needs to take this message VERY seriously.

This organization helped a friend with her daughters condition. Thanks!!

Itsan has really helped a friend - beautiful work they do!

Thank you for helping a friend of mine suffering from TSA!

They are helping me heal beautifully, and have helped many others. So glad I found ITSAN!

Good people, wonderful organisation. They deserve 7 stars! Thanks ☀️

This site is a literally a life saver for many people with much support and advice for a terrible condition brought on by pharmaceutical drugs. Deserves 10 stars.

To anyone claiming ITSAN isn't backed by science is wrong! It is FULLY backed by science AND experience. Dr Rapaport is the world leader on steroids and many more dermatologists out there are following the same path! It's the reason they tell you not to use steroids for more than a few days at a time! Thank you OTSAN for saving so many!

ITSAN has been a very helpful ressource. Provided professionnal tips on how to deal with problematic skin health.

ITSAN has helped a friend of mine who is battling severs steroid withdrawal symptoms.

This has been a lifesaver for a friend of mine! Thank you itSan for giving her, her life back!! :)

ITSAN when I stumbled upon your site all my questions about steroids were confirmed, thank you for your invaluable, life changing insights and support!
Lisa
Melb, Australia

ITSAN is a wonderful site full of people who are supporting each other and sharing helpful information. The site has helped my wife greatly and I would highly recommend it.

I have seen Itsan help many, many people including someone very close to me. Thank you.

I found itsan and realised I was not alone with my skin issues. I am 10 months in to tsw after using topical steroids all my life. It is the most difficult journey I have ever taken but knowing that others have walked the same road and come out the other side with the best skin of their lives gives me hope for the future.

Without ITSAN I never would have found out what is wrong with me, or gotten through withdrawal.

Thanks to Itsan I've found the answer after 10 years of using steroids, I was so depressed that my eczema was a lost cause.

It passed already a year since I've read all the information of Itsan, and I'm more than happy after all this I can be a really normal person, and Im really grateful with the forums, and facebooks groups for all the support, that helped me in all this process. I have to add, that Im from Guatemala, and I've known a lot of people all over the world that suffers from this! SO THANKS MANY THANKS ITSAN FOR PUTTING THE INFORMATION WERE ANYONE CAN SEE IT! THIS DESERVES MORE THAN FIVE STARS!

ITSAN has offered so much information and support during this healing process. I'm so thankful to have such a fantastic resource available.

I don't know where I would be right now without the ITSAN. Oh wait, I do. I would still be miserably addicted to potent steroids. Thank you for opening my eyes to the truth and allowing my body to start the healing process after so many years of damage.

They have helped a friend of mine and I know she couldn't be recovering as she is today without their support!

A little over a year ago, I was in a search for help after my doctor kept prescribing higher and higher dosages of topical steroids for my psoriasis on my scalp. The topicals would work at first but then my skin would get used to that and I was just getting worse. Thank God that I found ITSAN and another Facebook support group that shared the information about topical steroid addiction! It is a very real condition!!! If steroids are used over 2 weeks, you are setting yourself up! My doctor had prescribed the increasing dosages of steroids over many, many years. It was very difficult going through the withdrawal, but I am through the worst of it and doing so much better- without any steroid medications now!!! To those of us who have been through withdrawal, of course we want to shout from the rooftops when we have found what has helped us! Thank you ITSAN!!!

As a keratosis pilaris sufferer I have often used steroid creams to calm flares. I have never used it for more than the time prescribed but I can see why others would miss the memo or be so excited about results that they ignore. Organisations like this are vital to help those lost and in need. Good on you guys!

I wish I'd found ITSAN before I ever touched a tube of topical steroids. These drugs turned a very minor patch of eczema on one hand into a red raging hell on both of my hands, arms and legs. My doctor's recommendation: more and stronger steroids. Without the information and support on ITSAN I would not have made it through this last year. Topical steroid addiction and withdrawal is a very real and difficult process to go through. We need more awareness and support, not attacks by people who are still hooked on these dangerous drugs or promoting drug company interests.

I've had eczema since I was a kid. I've used steroids since I was a kid. Over the years they have stopped working and made my rash worse. I've been at a loss trying to figure out what was wrong. Since finding this website I have found amazing knowledge that has helped me immensely. Thanks ITSAN :-)

I am now 27 months TSW and have much stronger skin than when I started. I no longer have allergic reactions in the fall or inflamed bags under my eyes, two things I had chronically through a lifetime on topical steroids. If you have RSS I recommend seeing someone to help manage dryness and infection - these are the two components of TSW that need the most attention and care. Without ITSAN, I would still be addicted to steroids.

Helped me get myself on the road to healing! Thank you!

This group helped me through one of the hardest periods of my life.

ITSAN provides such a priceless source - it deserves more than 5* in my opinion!

You helped a very special person who has been struggling with TSW. Thank you.

ITSAN has been a big help! They helped out a friend of mine. Thank you!

Itsan helped a dear friend of mine! There needs to 've more information and people speaking up about this terrible, serious condition.

Itsan is a phenomenal organization. It has helped my friend and many others take control of their own health and restored their lives. Keep up the great work!

I was able to successfully confirm my child's condition using this website. Her health and happiness are a result of this information.

ITSAN has been my saving grace. After suffering for over 2 years with severe dermatitis, my skin is looking the best it has looked in years by simply stopping the use of topical steroids. I had no idea that steroid creams could exacerbate and worsen skin conditions. I am regaining my life thanks to ITSAN!

ITSAN has gone above and beyond to help a friend!!!!

I have a friends and their children going through RSS right now after years and years of constant steroid use. Luckily, it was caught early. It reminds us that doctors are only knowledgeable about stuff they have studied and learned and what is current for them, may not be current.

ITSAN saved my face...and my sanity ! No one believed my symptoms or had a clue how to break the vicious cycle. That was, until I found ITSA>

Without ITSAN I would not know that it was the very steroid cream I was applying that was causing my greatly worsening 'eczema '. Without them I would still be in a very dark place instead of leading of normal life.

You are helping an amazing person like Briana so you are doing great things

ITSAN has truly helped a friend going through TSW. It has saved her life. Thank you!!!

Itsan helped a friend of mine going through TSP...

Lots of very helpful information! Resources on something difficult to fibd support for

ITSAN is helped save my friends life. Thank you! They are a valuable resource to those suffering with TSW and for future education and awareness.

ITSAN has helped a friend of mine and deserves 5 stars!

ITSAN is a great source of information that has helped a friend.

ITSAN has provided information and incredible support to a friend of mine

Topical Steroid Withdrawal is real and the work ITSAN is doing to help spread that message and support those affected is so important.

Without ITSAN I could not make it trought first months of my withdrawal. Thanks!

Thank you ITSAN for helping a friend of mine. So wonderful and we are all so grateful.

ITSAN has helped a friend of mine. Thank you for the continued support and great work!

Itsan saved my 3years old sons life. Thank you. I will be grateful forever finding ITSAN and fund out about red slon syndrome

ITSAN has helped a friend of mine! Keep fighting the good fight!

I accidentally stumbled on to this site after many years of the topical steroids I was given were failing to relieve my eczema. The stronger steroid the worsening of my condition. This site saved my life! The support, the encouragement, just overall family atmosphere in this group was overwhelming! If you or a loved one is suffering from this terrible, incurable condition this is the site that will change your life for the better. Steroids are poisonous period.

A great place that is supporting a friend in need.

ITSAN has been essential to me and I couldn't do without it

Thanks ITSAN for helping Briana Wren... she is aa true soldier

This organization helped my friend through a very difficult time with her son. Such an invaluable resource for people who suffer from Red Skin Syndrome.

ITSAN helped a friend of mine and she is doing great because of it!

Great organization. Good job ITSAN, thank you! :) Because of you my friend is healed.

The information given from this group group helped a friend that had given up on all hope. Thank you for helping her and her daughter find real answers and solutions.

ITSAN is doing great work for a severely underserved community. Their staff is entirely volunteer, and many of them are suffering themselves while working hard to get the word out about this terrible condition. These people are saints and deserve all the praise in the world.

Don't believe the one-star reviews. They are fake, all coming from the same person who has an axe to grind. It's too bad this web site allows one angry person to flood an organization with fake reviews and bring the entire rating down for everyone else. This web site should not allow that to happen.

You are doing a good job get ng the message out. I have friends who are better off because of you.

Its an offers caring support for TSW. My grandson is well and happy now, and it's an supported their family all the way.

Keep up the great work! This is a little known cause, but so important for those who are affected. This organization had helped my friend and her daughter.

This group is so helpful and supportive! Thank you!

Thank you ITSAN. Keep up the great work. I appreciate all you have done.

After years of dead ends and desperation, this organization helped my friend not only find answers, but help heal her child. I am thankful for their help.

This organization helped a friend's son overcome a debilitating condition.

This organization was big support to a friend during a very difficult time in her life.

ITSAN is an amazing organization! They helped my friend through the harrowing ordeal of topical steroid addiction with her child. People need to know that this condition exists and that it is terrible! Drug companies that make steroid products want to sweep the suffering of these people under the rug so they can sell more products. We need ITSAN to bring awareness to the dangers of excessive topical steroid use.

I would have suffered a life riddled with steroids and continual questioning. ITSAN gave me the resources I needed to start my withdrawal.

Thank you! Your organization helped my friend and her son greatly!

This organization helped my friend's son when no one could figure out what was happening to him! Thank you!

This company is wonderful! It helped my friend out who had a son that went through steroid addiction.

ITSAN helped a friend of mine through one of the worst years of her life. Her son developed red skin syndrome as a result of (prescribed) lengthy use of prescribed steroid medication. It was torturous for her son and for her but they made it through withdrawals and he now has beautiful skin and none of the painful side effects. Organizations like this help bring awareness so that others don't have to go through the same (dr. prescribed) mistake!

So thankful for an organization that embodies the idea of allowing individuals to own their own medical experiences and who supports their efforts to find individual solutions that work. They have blessed the life of a dear friend of mine who was attempting to find answers for her son. Thank you.

This organization has been a life-saver for my sanity. They encourage you to find a Dr who is supportive of the TSW path. Dr Rappaport himself says if you're oozing and raw, to soak in epsom salt baths until that phase of withdrawal stops. Here you are in good company with others who are either in the same place as you are, or who have completed thei TSW journey and they are most supportive and helpful. You are not alone when you connect with the famiilies and individuals with ITSAN.

My son suffered severe eczema and rebounds from steroids so bad he broke out into hives when we ran out of his Triamcinolone and had to be put on Prednisone with more Triamcinolone. So thankful for ITSAN and being out of that vicious cycle. 29 mns steroid free and my boy is stronger, healthier and growing!

Thank you for the good work that you do! You guys helped a dear friend of mine, without you guys they wouldn't have gotten the information they needed!

Watched as my dear friends son suffered through this. It would be wonderful for parents like her to have a place to go for support!

Very helpful and informative about the dangers of prolonged steroid use

Wonderful in helping my friends son overcome red skin syndrome!!!

Information and support are powerful in times of distress. I know that steroids are addictive and I'm hoping more people can learn about this. ITSAN has been a beacon of information for our family. We need more of this.

We have been blessed by this organzation 10 fold. Our identical twin boys body was severely addicted to topical steroids. Anyone who says this doesn't exist truly has not experienced this. Their skin is beyond belief better and don't need any steroids at all.

This organization helped a dear friend as her son battled Topical Steroid Addiction. Thanks to her dedication and ITSAN he is finally leading a normal life. What a great group and great group of people.

Thanks! This is such a great organization. So much great information.

ITSAN helped my little cousin get through a rough time. His skin is happy and healthy now. Thank you!!!

This organization helped a friend through a tough time. So thankful you all exist!

Thank you so much for all of your information and support! Keep up the good work in raising awareness!

Thank you for helping out my dear friend and her family.

ITSAN was a godsend for my grandson. ITSAN helped my daughter to find information regarding her son's condition, which, unfortunately, few dermatologists are familiar with.

ITSAN's website specifically states that it does not provide medical advice, but only information. It has links to scholarly journals and testimonials, but leaves it to the user to decide how to use the information.

This organization was a huge help in helping one of my best friends treat her little girl. Until she found this page her daughter was miserable after coming across this page and it's invaluable information she was able to help her daughter who is now doing amazing!

My niece suffered from eczema since she was a baby. She was treated by several different doctors with medicines that contain steroids. It just continued to worsen as my sister-in-law kept searching for answers. She finally found ITSAN and with their help and support, my niece is finally almost completely healed and it is so nice to see pictures of her happy and healthy with clear skin!

This organization truly helped, even saved my friend and her son during the difficult days. So grateful there are organizations out there like yours.

Thank you! This has changed my life and my son's life. We're beyond grateful.

Thank you!! You have helped save my son. Without the education I have received my son would have continued to suffer.

Your organization helped a friends child when they thought all hope was lost! Thank you

ITSAN helped me to know what was going on with my daughter. We are 27 months steroid free and had a rough first 15 months. She has healed nicely and has beautiful skin now that is not dependent on steroids to keep it that way.

The information provided FOR FREE by ITSAN saved my daughter's life! When doctors scratched their heads and grasped at straws ITSAN had answers. They work so hard to share that information with doctors and patients.

Years of misdiagnosis and 15 months after finding ITSAN my daughter is healed. HEALED as in completely healthy and requiring no further treatment. Healed

Thank you. You've saved my child. This site gave a lot of good information.

Itsan has supported a dear friend of mine and her son. Great organization to work with. Top notch and first class!!

Thanks to itsan, my friend and her son have found peace of mind and skin.

You were able to help my friend's son get through a very hard time. I hope you can continue to help others by spreading the word that you can give them some support.

This organization totally helped my best friend as her son battled Topical Steroid Addiction. I am so glad that he has finally overcome the nightmare that topical steroids caused. He is finally leading a normal life. GO ITSAN!!!!

A big thank you!! My friend's son is happy and healthy!

Itsan saved my son's skin. We were supported by our local doctor. I support itsan in its mission to spread the word about TSW.

My son would be extremely sick to this day if it wasn't for ITSAN. Thanks, ITSAN, for your work!
Amy

Good job Itsan!!! Thank you for all you do! Keep up the good work!

A big Thank You...a friend of mine"s son is healthy and happy .