My Nonprofit Reviews

I have mesothelioma. I have survived post-diagnosis (more than 5 years) because I have had access to and care by some of the most expert medical personnel who are dedicated to not only treatment, but also developing new medicines to beat this disease. I found those doctors and nurses because the Mesothelioma Applied Research Foundation made the connection for me. Simply put, MARF is one of the primary reasons I am alive.

Moreover, the Foundation was and is instrumental in promoting and funding the research that may allow me, and my peers, to continue to hold back and defeat meso. Additionally, it offers support tailored to patients, to caregivers and family members, and to the bereaved. The Foundation also has created systems for peer-to-peer discussions and contact among those groups, which let the affected know they are not alone, and spread information on shared experiences, what works, what doesn't, and other items that save time and reduce stress for patients or caregivers.

The Foundation stands alone as THE nonprofit organization dedicated to aiding patients in receiving care, funding peer-reviewed research into new treatments and drugs, educating patients, physicians, and those at risk of developing the disease, spreading awareness of the disease and its causes, and advocating tirelessly in Congress and the DoD for funding for research.

This is an outstanding organization.

In full disclosure, several years after the Foundation started helping me find appropriate treatments, I was pleased to accept an invitation to join the Board of Directors. This review system only allows designating one relationship with the organization, and I have received far greater benefit as a "Client Served" than I will ever be able to repay as a "Board Member".