My Nonprofit Reviews

This organization has been a wealth of information for my family and our dealings with Alport Syndrome. They also provided my daughter with Paul Silver Tribute grant towards her continued education

I currently serve as President so this review is little biased however I want to let the public know the following:

1) We are NEED based not income based. If you have a medical need that insurance will not cover we are here to try and assist.

2) We understand the importance for research funding, clinic trials etc and pray that in the future many diseases such area Cancer, Diabetes and Kidney Disease can be cured. However we are here for the NOW NEEDS. We want to make sure you have what you need now to beat these battles just in case that cure isn't found.

3) Our staff is completely volunteer. No 6 figure incomes here. We want every dollar going towards your medical needs.

4) We have VERY LOW OVERHEAD. We use $80 a year for our website and approximately $600 a year for insurance. Our meeting place is donated, our members pay for their own meals at dinners and our organization phone lines are even member ran and member paid.

5) Our volunteers host quarterly fundraisers to keep our budget increasing. We work hard to find the most cost effective yet reliable items when requested by an applicant. We work with many hotels, pharmacies and companies to keep costs down.

6) We have been honored as a top rated non profit in 3 of past 4 years and have ALL POSITIVE REVIEWS. We strive to do best for our clients in every situation.

7) While we maintain client confidentiality every penny spent and how it was spent can be found on our website under the NEWS section. The public deserves to know where their $ is going

Please share our name so we may share in helping more people.