My Nonprofit Reviews
Melissa223
Review for Lupus Research Alliance, Inc., New York, NY, USA
I have been in my battle with lupus for almost 20 years. And have never made it to a "remission" stage, it seems as if I am in a constant flare. I had tried every medication on the market with no avail. Then I was enrolled in a research study to try a new drug since none of the current ones available did anything for me. I ended up not being able to complete the study, but the one great thing that came out of my journey was that I learned about the ALR. I was intrigued, I had to know more. The Alliance for Lupus Research is a great charity that raises money and awareness for lupus research. And unlike most charities the ALR has no overhead costs, the founder pays the staff and board members. That means 100% of all money raised/donated goes directly to research. The study that I originally was enrolled in later passed all tests and requirements with the FDA, shortly there after a new drug falled Benlysta was released. It was the first new lupus drug released in over 52 years thanks to the help and funding by the ALR. By far this is not our cure, but it's one step closer. This is one charity that when you donate to, you can take pride in knowing the fact that every single penny donated is going directly to research, and know that you were a part of the next step on the way to a cure.