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2014 Top-Rated Nonprofit

Lupus Research Alliance, Inc.

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Nonprofit Overview

Causes: Health, Medical Research, Specifically Named Diseases Research

Mission: The mission of the Lupus Research Alliance is to prevent, treat and cure Systemic Lupus Erythematosus through medical research.

Programs: The mission of the Lupus Research Alliance (LRA) is to find better treatments and ultimately prevent and cure Systemic Lupus Erythematosus (SLE or lupus), a debilitating autoimmune disease, through medical research. To accomplish this mission, the ALR engages in active grant making management, working hand-in-hand with investigators to guide and drive the research process. 

ALR’s unique funding model supports promising research efforts with the goal of improving the lives of people with lupus in the near future. Through a competitive peer-review process and an innovative venture-capitalist approach, projects by the ALR aim to translate results from the research bench to the bedside. Because the ALR’s board of directors pays for administrative and fundraising expenses, 100% of all other contributions goes to support lupus research programs like SLEGEN.

Community Stories

18 Stories from Volunteers, Donors & Supporters

2

Volunteer

Rating: 5

I have had Lupus for over 30 years and started as a volunteer with the ALR Central New Jersey in 2009 where I met many new people in the Lupus community.

The first thing that impressed me about the organization was the fact that 100% of the donations are strictly to fund Initiatives that hopefully will take us one-step closer to helping find a cure for lupus. The more people know about lupus, the better support there will be for those living with the disease and the sooner we can conquer it.

Throughout the years, many family members and friends have been diagnosed with Lupus and because of my experience with ALR, I introduced them to the website that is very informative. Thank God for ALR.

1

Volunteer

Rating: 5

This organization is an instrumental force in lupus research and lupus awareness. All donations go directly toward research. As a lupus patient, it is rewarding to know that people are committed to finding a cure and ALR is connected with an extensive number of doctors as well as researchers who are on the forefront of best practices. I not only serve on the Multicultural Task Force, but I am also a walker for the cause. I highly respect the efforts of ALR.

Claudine M.

Volunteer

Rating: 5

Awesome mission. 100% goes to research. Donate, donate, donate.

1 Melissa223

Volunteer

Rating: 5

I have been in my battle with lupus for almost 20 years. And have never made it to a "remission" stage, it seems as if I am in a constant flare. I had tried every medication on the market with no avail. Then I was enrolled in a research study to try a new drug since none of the current ones available did anything for me. I ended up not being able to complete the study, but the one great thing that came out of my journey was that I learned about the ALR. I was intrigued, I had to know more. The Alliance for Lupus Research is a great charity that raises money and awareness for lupus research. And unlike most charities the ALR has no overhead costs, the founder pays the staff and board members. That means 100% of all money raised/donated goes directly to research. The study that I originally was enrolled in later passed all tests and requirements with the FDA, shortly there after a new drug falled Benlysta was released. It was the first new lupus drug released in over 52 years thanks to the help and funding by the ALR. By far this is not our cure, but it's one step closer. This is one charity that when you donate to, you can take pride in knowing the fact that every single penny donated is going directly to research, and know that you were a part of the next step on the way to a cure.

Volunteer

Rating: 5

I have been involved with the ALR for the past five years as a walker, team captain and member of the Multicultural Outreach Task Force. It is an amazing organization filled with caring and dedicated people with the same goals -- to prevent, treat and cure lupus, as well as spread lupus awareness. One of the things that makes it stand out is that it is not just a nonprofit organization, it is a FAMILY! I have been to many events and walks and I can honestly say. There are no strangers -- we are all one family and we care about all of our members. I have had the privilege and honor to meet so many wonderful people from the ALR staff to members of the committee. Hats off to the many, beautiful women that I have met and come to know and love who suffer with this disease every day with so much courage. They are my friends and my family.

Brenda68

Volunteer

Rating: 5

The Alliance for Lupus Research has taught me as a Mom in denial, to accept the diagnosis for my daughter. ALR educated me about the disease. Through that process not only have I accepted it's challenges, I have made it my life's work to fight alongside ALR to find a cure.
I have found that only ALR understands the importance of research and the necessary collaboration with other organizations working with Lupus patients and supporters.

Volunteer

Rating: 5

I have Lupus and started volunteering with the ALR a few years ago. I love that 100% of the money raised goes to research. I also like that the board is always thinking of ways to spread awareness to the entire country with new Walks and the new Multi Cultural Task Force.
The ALR is a great organization that has helped me spread awareness and shine a light onot the effects of lupus.

1

Volunteer

Rating: 5

I am a Lupus patient and have been volunteering with ALR for years. The ALR is an amazing organization. There are many charitable organizations but what attracts me most to the ALR is that 100% of all donations go to the funding of Lupus Research. Also, ALR is a family; they take personal interest in each lupus patient, donor and volunteer. They provide a wealth of information for individuals such as electronic communications, literatures and seminars. I really enjoy the video series The Faces on Lupus, which provide a wealth of information from patients’ stories to doctors sharing their research breakthrough. The ALR offers hope to those of us with Lupus.

2 Kelly145

Volunteer

Rating: 5

I'm a Lupus patient that has volunteered with the ALR since 2008. I admire the way this organization has pulled together multicultural communities the way no organization ever has before. Keep up the great work ALR~You've made a difference! K. Kelly

Volunteer

Rating: 5

The Alliance for Lupus Research is one of the most professional organizations I've worked with. I've been a partner with the ALR for the past 5 years and it's because of the interpersonal relationships I've made with the staff and the organization's laser focus on finding a cure.

The ALR continues to seek innovative ways to raise awareness and engage sponsors.

It's not too often that you find an organization that utilizes 100% of its financial support towards its cause.

I'm proud to be a partner.

Volunteer

Rating: 5

The ALR is an amazing organization. It was founded by a wonderful individual with a cause near and dear to his heat and is supported day-to-day by hard working and compassionate ALR employees and volunteers. I am both a volunteer and an investment committee member at the ALR so I see first hand how they bettered the lives for individuals and their families that are affected by the disease. This is the largest private foundation for lupus and only one that donates 100% of the funds raised to Lupus fund research in order to find a cure. One strong example is that the ALR made Benlysta, the first FDA-approved treatment for Lupus in 50 years, a possibility. However, every day the ALR will continue to fund and evaluate new drugs and look into repurposing existing drugs to treat and ultimately cure lupus.

1 Shanelle G.

Volunteer

Rating: 5

The ALR has done soooo much for Lupus Research. I'm actually on one of the new therapies that they've funded. I've been able to interact with the staff who are all so awesome, so sincere, and so hardworking to find new ways to find a cure for Lupus. I've even met the doctors whose research they've funded and they were all so passionate. I feel the ALR has done AMAZING work to help people like me who are living with Lupus.

April50

Board Member

Rating: 5

Recently the ALR presented a forum for lupus patients in Kansas City, Missouri. It was informational and presented in such an engaging way that when it ended, I wanted to do more. More, in fact, that I now serve as board member for their National Multicultural Outreach Committee, representing the greater Kansas City, Missouri area. Having been recently diagnosed with Lupus, I know the value of education, outreach, and research in proactively addressing lupus issues.

Volunteer

Rating: 5

10+ years in with the ALR. Great org., great strides thus far!

Mary292

Volunteer

Rating: 5

I have been involved with this organization since 2005. I can honestly say that they genuine, sincerely and trustworthy. I was honored from 2006 to 2008 to be selected to go to Washington D C to speak to congressional leaders on their behalf. I had the chance to meet most of the board of directors in each of those years that came out to the reception. I like that the donations raised are not frivolously wasted and are carefully monitored. With the ALR, I feel like someone cares. I love the founder, Woody Johnson, for creating this organization. The information that I get each month helps me to help others. I enjoy the ALR staff. I visited the original office and was greeted warmly. Everyone is down to earth and make you feel like your an old friend. I enjoy being affiliated with this organization.

1

Client Served

Rating: 5

When I first discovered that the ALR (Alliance for Lupus Research) directs 100% of donations directly to lupus research I was shocked. The information and resources they provided me were easy to understand and helped me cope with a chronic disease.

2

Volunteer

Rating: 5

I've volunteered with the ALR for 5 years now, raising money and helping with their walk in Baltimore. I'm not sure why the rating is so low on Charity Navigator. Because the board of directors pays all expenses, 100% of the funds raised go towards research. I would think that would count for a lot more.

3

Volunteer

Rating: 5

I have been raising money for the Alliance for Lupus Research since 2006. I started working as a volunteer in 2007 ans organized the San Luis Obispo County Walk With Us to Cure Lupus. We are now planning our 4th annual walk! Alliance for Lupus Research has some of the passionate staff and volunteers. There is a very high level of financial accountibility since the board of directors covers all operating expenses. They have moved Lupus Research into the fore front and have funded research that has helped unlock so many of the mysteries that surround this horrible diesase. Not only does the ALR do great work, but they bring me hope that maybe my daughters will not have to suffer from this disease like I have. The heart of this organization is in the right place, and they put their money where their mouth is. I am proud to volunteer for the ALR