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Review for Arizona Myeloma Network, Glendale, AZ, USA

Rating: 5 stars  

I have worked with Arizona Myeloma Network since 2005 and over the years I have seen this organization adapt to the needs of the cancer survivors and the caregivers and families. They offered conferences , workshops, events, resources and so much more. I am proud to be associated with such a progressive organization.

Role:  Professional with expertise in this field
 

Review for Arizona Myeloma Network, Glendale, AZ, USA

Rating: 5 stars  

An organization for the family with a cancer member and especially for the caregivers

Role:  Professional with expertise in this field
 

Review for Arizona Myeloma Network, Glendale, AZ, USA

Rating: 5 stars  

I have been a volunteer at the Cancer Caregiver Educational Programs offered quarterly and I would like to share what these programs have meant to the participants and how they have explained how cancer changes their lives.
I learned I was stronger than I ever thought I could be.
Caregivers are the in-sung heroes; cancer component magnifies it.
I was trying to do everything for myself.
I needed this program. I traveled 2 hours from Prescott to be here. I can't continue to go to my husband's support groups.
I didn't want to ask for help; especially for a family member.
I prefer to be treated as a normal person - not always being asked about my cancer; prefer to talk about baseball.
It's been difficult to try to figure out how to help my friends with cancer.
Husband is doing well after a transplant; this forced me to live in the present moment.

These programs are offered at no charge to the public. The purpose of the programs are to provide cancer caregivers practical knowledge, skills and strategies necessary to effectively care for themselves as the care for a "cancer patient". Our patients' program evaluations tell us that the following are the most beneficial: able to share our experiences with everyone who is here today.
Finding resources and emotional support.
Learning from others and their stories.
The tips for caring for myself so I can better take care of my family.
I had no idea this information was available. I'm glad the program was focused on the caregiver.
Hearing from others in similar situations/not feeling alone during this journey.
Listening to everyone on how they deal with their feelings and the patients feelings.

There are a series of educational modules that can be presented as half day programs, lunch hour programs, 2 hours programs. The modules vary from Cancer in the Workplace, Navigating the System, Communication, Holiday Stress and many more.

Fund raisers and grants are used to help support the free programs. Collaboration with partners is also important to gain state wide impact. A caregiver module has been presented yearly at the Living with Myeloma Conference with an attendance of 300+.

A Women Leaders task force has been developed to assist with fund raisers, advocacy and awareness. These women are leaders in our state and have an interest in the cancer caregiver educational programs.

Golf events; 5 k race/walk events, have promoted caregiver education, awareness and advocacy. Newsletters are sent on a regular basis to continue program awareness.

Partnerships with key organizations strengthen the message about the importance of caregiving for cancer patients on a state wide level and national level: AARP, INSYS, Arizona Caregiver Coalition, Medicare RX, Multiple Myeloma Research Foundation, AzBIO and many more.

The CEO and Founder has been on several TV and radio spots sharing information about the cancer caregiver education programs. She has also been the speaker at several events sponsored by the community or other cancer organizations.



Role:  Volunteer
 

Review for Arizona Myeloma Network, Glendale, AZ, USA

Rating: 5 stars  

Working with Arizona Myeloma Network gives you an opportunity to work along side the CEO and Founder, which is a rare experience these days in which there are usually layers of management. You can also experience the passion which the Founder radiates on every single program. Donations no matter how small, mean a big deal to this organization and you will be thanked for your contribution. It is a pleasure to be associated with Arizona Myeloma Network.

Role:  Professional with expertise in this field