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2016 Top-Rated Nonprofit

Arizona Myeloma Network

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Nonprofit Overview

Causes: Cancer, Cancer Research, Health

Mission: Our mission is to promote collaboration, awareness, education and advocacy for improved treatment and quality of life, for multiple myeloma patients, their families and ALL cancer caregivers with special consideration to the underserved.

Results: True stories - Mission Accomplished Dear Barbara, my husband and I attended one of your conferences a few years ago shortly after my sister in Los Angeles had been diagnosed with multiple myeloma. It was the best thing we could have done. It was very informative and so well organized. We sat with a group of women during lunch whom shared their experiences with multiple myeloma and from them we learned who their doctors were. We passed this information on to my sister; she then made an appointment with one of those doctors (at Mayo) for a consultation. As a result she was more able to make a decision about her treatment. Thanks to you also, she continues to be doing well, feeling well. Just want to let you know we are happy that we attended your conference and wanted to share this with you. Sincerely, Doris March 2016 A new patient, who heard me (Barbara Kavanagh) speak on Fred Taylor's Radio program, never attended a myeloma meeting. He was so excited at the conference to meet other patients and the wonderful faculty. He shared that he had felt very isolated since most people he knew had never heard of myeloma and now felt less anxious and more hopeful. - Larry 2016 Living with Myeloma Conference

Target demographics: educate cancer patients, their families and ALL cancer Caregivers.

Direct beneficiaries per year: over 150 cancer caregivers and 300 myeloma patients and their families.

Geographic areas served: Arizona and all the funds we raise stay in Arizona.

Programs: Living with Myeloma Conference, Myeloma Scientific Roundtable and multiple Cancer Caregivers Education Programs all year long.

Community Stories

50 Stories from Volunteers, Donors & Supporters

Client Served

Rating: 5

My mom has Multiple Myeloma and I am her primary caregiver. The AZ Myeloma Network provides programs, information and access to professional we would not have otherwise.

Thanks so much to this great team of people that make a difference in the lives of those who need it most!

Volunteer

Rating: 5

I have volunteered and attended the Multiple Myeloma conference for many years and each year I learn about new advances in this field. Barbara and Jack are dedicated in helping and educating patients with Multiple Myeloma throughout the year .

2

Client Served

Rating: 5

I met Barbara and Jack after I was diagnosed with Multiple Myeloma 6 years ago. They have become like family to me and my family. We have attended the AzMN annual conference for the past 6 years. It is always excellent!!! Outstanding medical professionals present information in a manner that is easy to understand for those of us who are not in the medical field. What a wonderful opportunity it has been to personally meet and visit with doctors from various parts of the country who are top-notch in researching and treating those of us with this incurable form of cancer. I've also attended their excellent Roundtable a few times. Information presented at the Roundtable is of a more technical nature geared more toward medical professionals. It is a fantastic opportunity for medical professionals to earn continuing education units in a very positive environment. The Cancer Caregiver Seminars that AzMN began hosting about 3 years ago have been an amazing source of support for my family members who are my steadfast companions on this journey of cancer survivorship. They have found these seminars to be a great source of strength and a wonderful way to "recharge" themselves in their roles as cancer caregivers. One of the most special aspects of AzMN is the message of hope that is evident at every event. It is very encouraging for me and my family to know we are not alone in this journey with cancer. We now have a wonderful extended family which includes Barbara and Jack along with many wonderful volunteers and others who are also traveling the path of multiple myeloma themselves or with a loved one or friend. Congratulations, Jack, on being a 25-year multiple myeloma survivor! Congratulations, too, to you and Barbara as you celebrate 25 years of marriage! You are both a great source of inspiration to all of us. It is through the efforts of people like you and the collaboration AzMN is fostering among everyone involved in treating multiple myeloma that hopefully in the not-too-distant future, multiple myeloma will become a CURABLE form of cancer. Thank you for all you do to improve the quality of life for so many of us. For anyone considering making a donation, rest assured your contribution is going to a very worthwhile cause. I think you would be hard pressed to find any charity that makes better use of funds in providing a greatly-needed service to many people. When anyone is diagnosed with multiple myeloma, it obviously has a huge impact on family finances. The fact that all AzMN events are provided free of charge to cancer patients along with their family members and friends makes it possible for many people to benefit from these events when they might otherwise not be able to participate. Thank you, thank you, thank you, Barbara and Jack, for founding and energetically continuing this terrific organization!!!!!

General Member of the Public

Rating: 5

AZMN is a marvelous organization, always trying to find new ways to support cancer patients. I am a multiple myeloma survivor who has greatly benefitted from the wealth of information gained at their yearly spring conference. Barbara always finds experts in the field who are willing to donate a day with us. Not only do they speak about the latest treatments, but they are available to patients for individual consults. I am so grateful Barbara and her staff for doing this every year!

1

Volunteer

Rating: 5

I have known Jack and Barbara over 8 years. They work endlessly to help patients find doctors and provide top notch conferences so patients will know the latest treatments for Multiple Myeloma. They are the best

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Volunteer

Rating: 5

I have been associated with Arizona Myeloma Network for over 8 years. The organization cares about helping patients and educating them on resources available to them. Barbara and Jack work endlessly in providing the best programs and events possible. They are the best.

Kathleen G

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General Member of the Public

Rating: 5

I have known about the AZ Myeloma Network organization for several years. They are amazing offering support to those going through this cancer to the caregivers walking along side. The conferences are educational and well put on. They want to make sure those who were unable to attend due to their health or prior commandments have the information presented at their conference and the post the presentation on their website. They offer education and refer to resources to help you. Barbara and Jack give back to the community in a special way by helping people become educated and know they are not alone on this journey of cancer. I would give them an A+ and encourage people to donate to this great organization.

General Member of the Public

Rating: 5

I recently attended the 10th Annual Arizona Myeloma Network - Scientific Research Roundtable. This was the 3rd such event I have attended since developing Multiple Myeloma. Every year has been better than the previous.
This year's two day event included presentations from Doctors and Researchers from top hospitals and Cancer Institutes across the country.
I came away with a solid knowledge of the history of research and drugs developed, and understanding that current direction of research and treatment is toward Immunotherapy.
My Oncologist is one of the top ranked in the State, but would never have the time to explain all the history and reasons for the different Chemo drugs I have tried over the years.
From information I learned from A.M.N., I feel most comfortable being part of an Immunotherapy drug trial.
Thank you Arizona Myeloma Network for your support.

Barb44

Client Served

Rating: 5

My husband was diagnosed with multiple myeloma three years ago. We were told about the Arizona Myeloma Network by my father-in-law who saw an article about the yearly conference. We have attended the yearly conference three years in a row and each time we learn something new. I have also attended a seminar for care givers and found it to be very helpful. The experts they bring to their conferences and seminars are leaders in this type of cancer. The Arizona Myeloma Network has made a positive difference in our lives.

2

Client Served

Rating: 5

I can't say enough about the Arizona Myeloma Network! They are always there with information on my illness. One of the most honest organizations I have had the pleasure to be associated with...


God bless Them!

1

Board Member

Rating: 5

I have jus recently joined the AZ Myeloma Network Board, both Barbara and Jack are examples of true “Heroes,” they “live it, breath it.” This organization is part of who they are, never turning any patient and or caregiver away. I am proud to be a part of their journey.

1 Tai V.

General Member of the Public

Rating: 4

I live outside of Arizona, but have had the pleasure of following the programs and activities of the Arizona Myeloma Network in my role as a provider of Social Security Disability Insurance. I have been impressed by the quality of free educational programs and support networks this organization provides, as well as the commitment and passion of its founders.

1 Brian149

Client Served

Rating: 5

The Arizona Myeloma Network means a great deal to me and my family. They provide a great deal of support to caregivers and valuable resources for patients. The connections that we have made through the Arizona Myeloma Network have made a huge difference in my Mom's battle with Multiple Myeloma. I cannot imagine Arizona Myeloma Network not being a part of my family!!!

1

Former staff

Rating: 5

AzMN is a small and amazing organization that brings educational programs, and the latest information to patients and caregivers. Contact them and become part of the AzMN family.

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Advisor

Rating: 5

Arizona Myeloma Network does so much for such a grass roots organization!! I've been impressed with both their Living with Myeloma Conference with the Doctors coming from all of the country to discuss and be accessible to patients with both individual questions and the latest in the filed. Also, they take a team 7 hours North of the Valley with Doctors, specialist, and resources, to discuss all types of cancers for people living on the Navajo Reservation! The impact it's had up there is amazing!!! In addition to running two major conferences they also have seminars through out the year for the "Caregivers" of the cancer patients. This amazing organization is here to help not only Myeloma Patients but wants to educate anyone with Cancer and their loved ones.

1

Professional with expertise in this field

Rating: 5

The Arizona Myeloma Network (AZMN) plays a vital role in the community for patients, caregivers and the general public. Through education, support programs, and their work to raise public awareness, AZMN serves as a nexus connecting those in need to those who can help them on a journey that can be challenging and frightening. By providing expert information,connections, and shared experiences, AZMN helps patients, families and caregivers cope and through their example, fosters hope.

2 Cathy G.

Client Served

Rating: 5

At every program I see the direct positive and immediate impact Barbara and her team has on the cancer patient, family and friends that care for them. Attendees come to learn something new that they can put into action now. I compile the program evaluations and it is statements like this that make me proud to support AzMN: "I now understand the difference between my oncologist and the Myeloma specialists here" and "as a cancer caregiver, I learned to care for myself first. It is like the flight safety announcement 'put your own mask on first, before helping others' I get it now!".

Previous Stories
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Client Served

Rating: 5

The 1st time I met Barbara was when I was an "event planner" for a small cancer education non-profit. I asked Barbara to exhibit at our health fair. That was 5 years ago! Arizona Myeloma Network is a small but mighty non-profit. I have witnessed how relevant programming literally saves lives. The people at AzMN not only connect patients to local Myeloma (and other cancer) resources they also educate patients, caregivers and their families on obtaining the best quality of life. Barbara has my support, always.

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1

Advisor

Rating: 5

Working with Arizona Myeloma Network has opened my eyes to a disease that gets very little air time, but has a big impact on my life. The commitment, leadership and compassion the founder has for those who suffer with the disease is never ending.
AzMN developed critical programs right here in Arizona, with the vision to take them national and international.
Strong mission, strong leadership, strong board that's making a difference in many lives.

1 Boyermg

Volunteer

Rating: 4

I met founders Jack and Barbara at a support group for multiple myeloma patients. I was inspired by the mission of Arizona Myeloma Network. Their leadership is always positive and extends not only in the major cities of AZ, but to the Native A,epicanthic reservations as well. I chose to volunteer so that other patients and caregivers like myself can attend conferences for free and bring hope in the battle against myeloma. The positive leadership permeates throughout the organization, and I plan to continue in the work of AZMN.

1

General Member of the Public

Rating: 5

My association with this group is one of involvement through practicality and curiosity. I have this group to be hardworking and diligent in the pursuit of funds used to pursue a cure for myeloma. I wish them only the best. Dr. Z.

1

Professional with expertise in this field

Rating: 5

I have been associated with Arizona Myeloma Network (AzMN) for the past 3 years. It truly is a grassroots charity that has gone above and beyond in the advocacy and resources it provides to cancer patients and families. AzMN has an annual Myeloma conference that brings together cancer patients, caregivers, scientists, researchers, physicians, social workers, and other healthcare professionals. Patients get to interact directly with world class Myeloma researchers and have access to educational and support resources. Additionally, AzMN has added caregiver seminars that teach caregivers how to take care of themselves while caring for loved ones. AzMN also provides cancer support resources to under served populations like the Navajo with it's annual Navajo Cancer Conference for All Cancers. Barbara Kavanagh, the CEO and Founder, works tirelessly to provide programs and outreach services to cancer patients and families. This is truly a top-notch nonprofit organization!

1 Michelle253

Volunteer

Rating: 5

I volunteered for one of the Caregiver Conferences last year ---- afterward; I was so energized by the commitment and enthusiasm of this phenomenal group !!! I am so greatful to be a part of such a caring team. The Arizona Myeloma Network provides education for the community ( patients and caregivers) - as well as educational support for the Navajo Nation - This organization inspires me to do more for my community on a daily basis. Thank you !!!!