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adventure_mama

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Review for International Topical Steroid Awareness Network (ITSAN), Dacula, GA, USA

Rating: 5 stars  

I have donated to, volunteered for, and accepted support from ITSAN for the past year. ITSAN provides an essential service to families and individuals embarking on withdrawal from topical steroid addiction. My son was 3yo when I found ITSAN at 2:30AM, sitting up with him yet again while he scratched away at the skin that was supposed to heal from the doctors' medications that had never fully worked, then quit working outright and made the problem worse. We found Dr. Rapaport and was able to get this knowledgeable professional working with us and our doctors at home in CO. The biggest thing for me was the emotional support as new symptoms appeared, flares came and went, and finally progress was made. My son is 85% clear now, which we have much of our lives back that had been lost. It is an arduous journey. Think drug/alcohol recovery x5 because of lack of support from the medical community. ITSAN saves lives daily. My son is about to turn 4yo, and I am so grateful he will be able to live a healthy, itch free life soon. He is recovering his growth that was stunted due to the topical steroid prescriptions, and that is just amazing.

If I had to make changes to this organization, I would...

find more volunteers and donors for them. Their founder was finally able to gain an audience at a national conference for dermatologists and the National Eczema Association has formed a committee to evaluate the topical steroid withdrawal we are all going through. A parent and survivor have co-authored a children's book that has been extremely beneficial to both my sons. I helped coordinate a booth at an allergy awareness fair. Every one of these activities take time and money.

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2014

Role:  Donor
 
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