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Barb28

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1 reviews

Review for International Topical Steroid Awareness Network (ITSAN), Dacula, GA, USA

Rating: 5 stars  

For 4 years my husband, now 78 years old, has suffered a skin malady. We have tried to trace the origin but no one could give us a definite diagnosis. He was told it was 'winter itch', then a dermatologist told him it looked like 'some kind of bite'. Then he was treated for scabies - all the treatments included topical steroids as well as some other potent drugs. During the time since then he has seen 5 dermatologists, 2 allergists, 2 naturopaths, an arthritis clinic, National Jewish Hospital and tried acupuncture. With one or two exceptions, they all told him to continue the topical steroids.
We spent many hours on the internet trying to find our own answer and finally, last spring, through ITSAN, we found pictures of red skin, thick and ugly, that looked forever like what he was dealing with. And we found Dr. Rapaport. At that particular time my husband had been scheduled - we already had our plane tickets - to go to Mayo's in Rochester, MN. But he was in such great misery he simply could not have made the trip to MN, or California for that matter. So I sent pictures to Dr. Rapaport and he confirmed that Bill was suffering Red Skin Syndrome. And, he prepared us for the long recovery time after completely stopping steroids.
It has not been an easy 10 months, there were many times we faltered, unsure we were taking the right path, but with the support of others connected to ITSAN we can see (or at least hope for) a light at the end of this long tunnel. I can only thank Heaven that ITSAN had that site and we were able to finally have hope that he may again have some good years left.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Role:  Client Served