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sheldon.lai

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1 reviews

Review for Foundation for Angelman Syndrome Therapeutics, Downers Grove, IL, USA

Rating: 5 stars  

Anybody who's ever received a diagnosis of a developmental and/or neurological disorder for their child knows how incredibly difficult those first few days/months are. It was no different for myself, as I can still remember the sensation of being gut punched, curled up in a corner and distraught, not even trying to contain my anger and fear.

It was only after I'd summoned up the courage to look up Angelman Syndrome online, to actually commit to understanding what life for my son (and for the rest of our family) was going to look like from here on out, that I came across FAST and their mission to fund research into Angelman Syndrome therapies. It sounded too good to be true; I went from the lowest point in my life to something resembling elation. I had to do background research on the organization to make sure that the information on the site was legitimate and not pandering to the hopes and dreams of Angelman caregivers and parents. After getting in touch with several members of the FAST board (all of whom reached out to me personally after seeing my facebook post on my son's diagnosis), I was sold on the goals and mission of FAST.

The foundation has provided hope, education and a community that galvanizes whenever there is something that can help those afflicted with Angelman Syndrome and I'm not sure where we would be right now without their hard work and commitment.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

Role:  General Member of the Public