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Foundation for Angelman Syndrome Therapeutics

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Nonprofit Overview

Causes: Health

Mission: Dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

Results: Minocycline Clinical Trials commenced April 2012

Target demographics: by raising funds to research therapeutics

Geographic areas served: supporting those affected by Angelman Syndrome

Programs: Fast's primary goal is to advance research leading to a cure for as.

as as is a rare disorder, the community of parents and caregivers of individuals with as rely heavily on social networking to become informed and seek advice and guidance on the challenges which the disorder presents. Its is one of fast's objectives to educate, support, and strengthen this community. In december 2014, fast brought together 527 parents/caregivers to hear about the latest research on as, the goals and objectives of fast, its progress towards meeting those goals and plans for the future. Speakers included the head of fast's scientific advisory board, dr. Edwin weeber, who cured as in the mouse model, as well as dr. Rebecca burdine, fast's chief science officer, colin farrell, jai courtney, retta sirleaf and paula evans. In addition, networking/mentoring opportunities were facilitated so that people caring for individuals of the same age or with similar circumstances could exchange experiences, information and guidance and solidify relationships.

literacy and advancing adventures in communicating camp for individuals with angelman syndrome and their families.

Community Stories

101 Stories from Volunteers, Donors & Supporters

Lois8

Volunteer

Rating: 5

The money this nonprofit collects ALL goes to research for a cure for Angelman Syndrome. They are tireless in getting the word out about the syndrome and are very supportive for families of Angels.

Previous Stories

General Member of the Public

Rating: 5

My beautiful granddaughter has Angelman Syndrome. Living far away, I feel helpless. It is wonderful to know that the Foundation for Angelman Syndrome Therapeutics is doing so much to find a cure, to educate, and to support families and caregivers. The volunteers who run it take their only reward in a job well done. I don't know another group that does as much for our Angels or is getting us closer to a cure. I congratulate them and thank God FAST is doing so much for our Angels.

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Donor

Rating: 5

FAST gives all parents with Angelman Syndrome hope, they are charging ahead with funding for research to help try to find treatments to help our children and hopefully a cure. They are a board of volunteers that really make the most of the money thats fundraised pumping almost all of it into research. They are not paid staff. I really think with FAST we will get a cure soon.

General Member of the Public

Rating: 5

When our son Ryland was diagnosed we were devastated! Then we were introduced to FAST! We actually have hope Ryland might one day lead a normal life. The entire FAST Organization if filled with wonderful dedicated people, without them we wouldn't have hope for a cure. We thank them from the bottom of hearts for working so hard and being so dedicated in helping our children.

Judy33

Volunteer

Rating: 5

Foundation for Angelman Therapeutics is one of the best organizations I have volunteered for. They work tirelessly to help our children. The hope they have given our children and families means so much! Thank you FAST!

Previous Stories

Donor

Rating: 5

Foundation for Angelman Syndrome therapeutics is an amazing nonprofit organization! They are made up of wonderful volunteers who give so much of their time to help find a treatment for Angelman Syndrome. I am so thankful to all of them for giving us hope for our children.

Geri W.

Client Served

Rating: 5

My son Joey was diagnosed at 2 1/2 years of age, it wasn't until years later when FAST was formed that I truly had HOPE, hope for a treatment, better communication with specialists for our Angelman Community, and hope for communication. Since FAST was formed it has truly changed our lives for the better, I truly cannot thank them enough.

Cherri C.

Client Served

Rating: 5

My son, Jimmy, was diagnosed with Angelman Syndrome at 9 months of age in 2000. There was no talk of a cure, just a life of maintaining his existence. It was heartbreaking. When I first started hearing about F.A.S.T. a few years later, I didn't pay much attention. I had already been told by PROFESSIONALS all that my son would not do.
But the foundation was not going away, in fact, it was getting stronger. It was also being supported by parents that I knew and respected.
My dreams have been replaced by bigger and better ones. If not for my child, then for someone else's child, which makes all the support worth it.

Donor

Rating: 5

FAST is setting an unprecedented example of how a foundation should be run. They are streamlining the way research is conducted for individuals with Angelman Syndrome. FAST takes a very innovative approach to bridging the gap between parents' reality and research. They do a marvelous job of motivating parents to understand that a cure is within our reach. FAST's mission aligns with everything I want for my child. You can't get anything better than 100% of donations towards research to benefit our loved ones!

Donna Y.

Client Served

Rating: 5

My granddaughter was diagnosed over six yrs ago. All the literature out there told us she would never walk, talk or do things for herself. It is by the grace of God that a mother of another child with AS had the dream of forming an organization made up up fellow Angelman families/friends that wanted more for their children. More for my granddaughter. That is when FAST was formed and they began searching for researchers that saw the possibilites, researchers that BELIEVED in our children/grandchildren. Researchers that would dedicate their lives to finding a cure for AS. To my knowledge FAST is the only organization in the world to fund a human clinical trial on Angelman Syndrome. That speak volumes considering they have only been in existence 5 yrs. My support, my prayers and my families devotion lies with the Foundation for Angelman Syndrome Therapeutics. They have the drive and willingness to bring our children born with AS a cure one day soon. Hope Reigns Supreme!

Previous Stories

Client Served

Rating: 5

I nominate the Foundation for Angelman Syndrome Therapeutics for their continued outstanding support of my granddaughter and her fellow angels born with Angelman Syndrome. It is because of this organization that we just completed the first ever human clinical trial on a medication that may bring hope to her and all her friends with AS. This organization has been in existence less than 5 yrs and is totally nonprofit, ran by parents and friends of those with AS and ALL funds go for research projects. Not one board member collects a pay check. They are all volunteers working towards a cure for AS.

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General Member of the Public

Rating: 5

Anybody who's ever received a diagnosis of a developmental and/or neurological disorder for their child knows how incredibly difficult those first few days/months are. It was no different for myself, as I can still remember the sensation of being gut punched, curled up in a corner and distraught, not even trying to contain my anger and fear.

It was only after I'd summoned up the courage to look up Angelman Syndrome online, to actually commit to understanding what life for my son (and for the rest of our family) was going to look like from here on out, that I came across FAST and their mission to fund research into Angelman Syndrome therapies. It sounded too good to be true; I went from the lowest point in my life to something resembling elation. I had to do background research on the organization to make sure that the information on the site was legitimate and not pandering to the hopes and dreams of Angelman caregivers and parents. After getting in touch with several members of the FAST board (all of whom reached out to me personally after seeing my facebook post on my son's diagnosis), I was sold on the goals and mission of FAST.

The foundation has provided hope, education and a community that galvanizes whenever there is something that can help those afflicted with Angelman Syndrome and I'm not sure where we would be right now without their hard work and commitment.

1 Rburdine

Board Member

Rating: 5

When my daughter was diagnosed at 11 months, I was saddened there was likely nothing to be done about it. I am a developmental biologist by trade so I knew that if the brain formed incorrectly, the cards had been dealt. Imagine my surprise and delight when the research began to show that Angelman Syndrome is not a developmental defect, but a biochemical defect. In other words, my daughter's brain formed fine, it just wasn't working properly.

With that knowledge, when I was asked to join the Foundation for Angelman Syndrome Therapeutics (FAST) at its inception, I did not hesitate. I serve as the Chief Science Officer for FAST. Since then we have funded over 1.2 million dollars in research in just three years, have funded preclinical work that led to a clinical trial, and funded the clinical trial which ended this past March. We are a small group of dedicated parents, friends and family members in an incredible community determined to change the world for our loved ones and anyone who is dealing with a defect in learning and memory.

Through the Foundation we have also provided educational summits to the community free of charge. These summits covered communication and literacy for those with Angelman Syndrome in 2012, and this year will focus on Sleep Issues and Challenging Behaviors. We are taking any and all steps possible to make the lives of those with Angelman Syndrome the very best they can be.

Join us and be part of the miracle - www.CureAngelman.org

JonathanandMom D.

Client Served

Rating: 5

Over the past 35 + years my family and I have been associated with other foundations and charities by serving or being served. In our joint opinions, the Foundation for Angelman Therapeutics is rated one of the best. We became aware of them because of our 33 yr. old son who was diagnosed with Angelman Syndrome at age 10. We have been 100% satisfied with the service received through the foundation but also with the way this all volunteer organization utilized the donation of our time and money. I would not hesitate to recommend F.A.S.T. to a newly diagnosed parent looking for support and information, a donor looking for a place to donate their hard earned dollar or as a place for someone to volunteer their time and services.

Ana Maria G.

Volunteer

Rating: 0

Soy abuela de una niña con Sindrome de Angelman. FAST está realizando actualmente un ensayo clínico en humanos con minociclina, que nos llena de esperanzas en cuanto a la cura de este sindrome. Puede suceder pronto y será gracias al esfuerzo, dedicación y duro trabajo desarrolado por FAST , conseguir un futuro mejor para todas las personas afectadas. Gracias.

1

General Member of the Public

Rating: 5

Tengo una hija que padece el sindrome de Angelman y gracias a la FAST ahora por primera vez en toda su vida tenemos la esperanza de que pueda tener un futuro mejor. GRACIAS FAST!!!. Juan Jose Palomares - Madrid - Spain.

General Member of the Public

Rating: 5

Tengo una hermana que padece el Sindrome de Angelman y gracias a la FAST ahora por primera vez tenemos la esperanza de que tenga un futuro mejor. Gracias FAST!. Daniel-Madrid-Spain

1

General Member of the Public

Rating: 5

Tengo una hermana, Elena, que tiene el síndrome de Angelman y gracias a la Foundation for Angelman Syndrome Therapeutics por primera vez tenemos la esperanza de que mi hermana pueda tener un futuro mejor. Gracias FAST!!. Cristina - Madrid (Spain).

1

General Member of the Public

Rating: 5

Soy madre de una niña de 28 años que padece el síndrome de Angelman. Foundation for Angelman Syndrome Therapeutics nos ha dado por primera vez una esperanza de un futuro mejor para nuestra hija. GRACIAS FAST!!.

Client Served

Rating: 5

My daughter is 10 and has Angelman Syndrome. When we got her diagnosis 9 years ago, our neurologist cautioned us from reading the reports on the internet about people with Agelman. Since then, research has exploded. Now we expect the development of a therapeutic during her lifetime. FAST is making this possible as they funnel every cent toward research. The icing on the cake is that the staff and support and community of FAST is not just geared toward research; the support they provide (through personal relationships) is immeasurable.

dplegend

Volunteer

Rating: 5

There was no question that FAST stood for everything that I believed in and wanted to support as a parent of a newly diagnosed little boy with AS. This organization is committed to fighting for our children and spending every cent (100% to be exact) in the most efficient and productive ways that will produce life changing outcomes. The very first potential treatment for AS was funded by FAST and a community that worked hard to raise the funds needed to start the clinical trial that is currently under way. FAST's passion and determination is actually changing the way medical research is being funded and they have completely restored faith and hope that brighter days are ahead.

Previous Stories

Volunteer

Rating: 5

The mission of FAST has brought my family much HOPE during some initial dark days after discovering my son's AS. To learn that FAST is committed to funding the research that will bring meaningful treatments into the lives of our kids NOW while continuing to find the ultimate cure in the near future--- is simply amazing. What's even more amazing-it's driven by a volunteer board/scientific board & staff. Funds being raised via FAST are making big things happen and truly changing the landscape of our kids futures!

General Member of the Public

Rating: 5

Great foundation! I have 3 grade kids with Angelman's! Olivia 7 1/2, Harrison 6 and Dennis 4! Stacy R is the same mom of all 3. She is awesome and so is FAST! So very worthy of this praise! FAST gives us HOPE! Olivia's middle name!?

Sharon57

Board Member

Rating: 5

FAST has helped unify the community that cares about individuals with Angelman Syndrome, with a message of HOPE for a treatment for this devastating neurogenetic disorder. The organization's leadership volunteers the time and skills necessary for running the organization. Many necessary supplies and services are donated, meaning almost all of every dollar donated goes towards our mission of improving the lives of those with Angelman Syndrome and funding research for a cure. Members are empowered and inspired to contribute their own skill sets and resources to assist in the running of the organization and to fundraise creatively. This young and vibrant organization has already supported great progress in awareness and research funding.

1 Bryan9

Client Served

Rating: 5

FAST is an incredible organization dedicated to finding a cure for Angelman Syndrome. It has already made incredible progress and with further support will make even greater gains in the search for the cure.

1 Linda86

Client Served

Rating: 5

After 25 years of living with Angelman Syndrome, the Foundation of Angelman Syndrome Therapeutics has located and funded research for a "cure". One day, with the help of FAST to funnel much needed research dollars, I hope to hear my son speak. Once he speaks, the world will open for him. No other organization has been able to do what FAST has done in just a few years.

Previous Stories

Client Served

Rating: 5

FAST gives us hope for a cure. FAST has caused me to believe I might one day have a conversation with my son.

Lulu C.

General Member of the Public

Rating: 5

FAST has been wonderfully effective in raising awareness of Angelman Syndrome and funding studies aimed at mitigating the very difficult symptoms of this condition. The board and administrators are 100% volunteer and all monies raised go directly to services. In addition to raising awareness and funding studies, they provide information, support and hope to families (and professionals) dealing with Angelman Syndrome.

Lisa106

Client Served

Rating: 5

When my daughter, Elena, was diagnosed with Angelman Syndrome (AS), a severely limiting neuro-genetic disorder that causes seizures, developmental delays and other challenges, there was little to no hope offered to me. Thankfully, several other parents refused to accept this and FAST, the Foundation for Angelman Syndrome Therapeutics, was formed. FAST's sole purpose is to facilitate a cure for AS. Along the way they have funded a very promising clinical trial, sponsored and funded up-and-coming scientists, provided education and resources for parents, and united a community of families in hope. Entirely staffed by volunteers, most of whom are parents of children with AS, 100% of every donation goes directly where it is needed - finding a cure for our kids!

Previous Stories
1

Volunteer

Rating: 5

When my daughter was first diagnosed with Angelman Syndrome, there was no cure, and little hope for one. Thankfully, FAST is working to change that. As an all-volunteer organization, every dime donated to FAST goes toward finding a cure for Angelman Syndrome. In 2011, FAST volunteers helped unite and inspire the AS community to win the grand prize of $250K in the Vivint Gives Back contest. A month later, one of FAST's-funded scientists discovered that a common antibiotic, minocycline, restored functioning in an Angelman Syndrome mouse-model giving us hope that our children could not only be cured, it could happen soon! Only a few months later, FAST put the prize money to great use and funded the Minocycline human clinical trials. But FAST hasn't stopped there. FAST is continuing to gather fund donations, including a recent anonymous donation of $250K, and is continuing to fund and support scientific research. I know there will be a cure for Angelman Syndrome very soon, and it will be due in large part to FAST and all of its hard work. Thank you, FAST!

Carmelita C.

General Member of the Public

Rating: 5

FAST me ha dado la Esperanza que ya no tenía,pero gracias a Dios conocí de ellos pronto.Mi hija es un Ángel Angelman syndrome y cada dia lucho duro por mantenerla saludable y pronto pueda ser candidatA a cualquier avance que FAST tenga, pues trabajan muy duro para avanzar y pronto encontrar un tratamiento que por Qué No,pueda ser la cura pronto. FAST we Love You All.Thank you for giving Us Hope.

Mickey B.

General Member of the Public

Rating: 5

FAST is best nonprofit organization for all the wonderful help and hope that they have given to our Angels!! Thank you FAST!!!

Laurena M.

Client Served

Rating: 5

In order to supplement the national foundation, this organization was started to raise more funds for study, as I understand it. As a group of parents, there is a more personal feel to the parent involvement. With the funds already raised, a clinical trial has been started already. More power to the participants! We all are hoping while we wait for the results.

Stephanie51

Client Served

Rating: 5

As an advocate, volunteer, client served, and medical professional I give Kudos to this completely volunteer based organization. How such a young non profit can become so positively involved in the Angelman Community in such a short period of time speaks loudly to the passion and committment FAST has for supporting, advocating for, and funding promising Angelman Syndrome research. They go above and beyond to make those affected by AS feel empowered to "speak up" for a more inclusive life, to "speak up" for more research, and to "speak up for a viable therapeutic and cure". They fund researchers who see those with AS as people first, and research second. Reaserchers who are professionally invested and humanly invested. Thank you FAST keep up the positive message of hope that you have instilled in this community!

Client Served

Rating: 5

FAST is the best non profit because its giving families hope that one day our beautiful angels might be able to live a more functioning life. Its because of this organization that I can wake up every morning with hope.

Faiza B.

Client Served

Rating: 5

super organisation ! toujours à la point de la recherche. un énorme espoir pour nous, parents d'enfants angelman. Comme vous dites dans votre pays : two thumbs up !"

Mariam S.

Volunteer

Rating: 5

FAST is a wonderful organization that is focused on a goal that all of us parents want to see reached: finding a therapeutic for Angelman syndrome. The organization is run by people that really care about kids with AS - as many in the organization have children with AS. We are all thankful for the work that FAST does and want to see it grow and grow!

AriNana

Volunteer

Rating: 5

F.A.S.T. is the most amazing organization to be involved in. I as a Nana am involved with this organization at a arms lenght. My Grandaughter Arianna (my soul mate) has benefited from their participation and committment to the Angelman Community. F.A.S.T helps the Angel Parents and children they are supportive and giving. We are so lucky to have such an organziation to bond with ua as grandparents, parents, siblings and children of those who have Angelman.

Rita D.

Client Served

Rating: 5

As a parent of a child with Angelman Syndrome, there are just not enough ways to express my appreciation for the work that F.A.S.T is doing. They are the driving force behind AS awareness and the advances in research that we have seen over the last few years. There is absolutely just no stopping F.A.S.T. in their mission to find a treatment for Angelman Syndrome. In addition to their work in research, they have developed an amazing community of parents/caregivers/educators/scientists that supports each other unconditionally. F.A.S.T. is most definitely making the lives of people living with AS and the world in general a much better place.

Anne42

Client Served

Rating: 5

My daughter was diagnosed with Angelman Syndrome in 2007 when she was just over one year old. The information we received was incredibly bleak and we were devastated. Not long after we discovered F.A.S.T and were given wonderful information and discovered they were hopeful that a treatment would be found in the near future which would improve our childrens lives. Since then we have been full of hope, and are incredibly excited about the current trial in Florida. Thank you F.A.S.T for everything you do for our Angel Families. Anne Gribbin

Kristie L.

Client Served

Rating: 5

I cannot say enough wonderful things about the FAST organization and all of those that it serves. This organization has opened up so many doors for our children and families. The real hope of a cure for our children would not be possible if it were not for this group and the amazing team of doctors and researchers they have put togethr. And as for the community of people that are now a prt of my life because FAST exists....where do I begin? It just doesn't get any better. We laugh together, cry together, get angry, argue, pray, hope, dream. Being able to share our experiences with one another, receive advice and give advice has been so beneficial and rewarding as an Angelman parent. Thank you to all of those that are giving so much for our children. And thank you for allowing me and my family to be a part of an incredible group of individuals. God Bless FAST!!

Libby T.

Client Served

Rating: 5

As the parent of a young adult with Angelman Syndrome, I have the deepest appreciation for the untiring effort and support that the all volunteer staff of F.A.S.T puts forth, not only to find a cure for our children, but to provide a network of families and professionals that are a constant source of information, ideas and support. i believe the lives of families with AS children have been, and will continue to be, profoundly improved because of F.A.S.T

Diane35

General Member of the Public

Rating: 5

Our son was diagnosed with Angelman Syndrome in 1998 and we were given no support or hope for his future. Through FAST, we have been given great hope for our sons' future and we have discovered a community full of support and love. We are so grateful to the Board of Directors, all of which are volunteers and most of which are parents to a child with A.S., and to the Scientific Advisory Board of FAST, a team of terrific, dedicated people, for all that they have done and continue to do. FAST have created an A.S. community, given us all hope and shown the world that our Angels are awesome and they deserve nothing less than the very best!!

Jackie15

Client Served

Rating: 5

FAST is an amazing charity. It has only been in existance for a few years but it is already funding a clinical trial which could be life-changing for our children with Angelman Syndrome which is a devastating developmental seizure disorder which can be life threatening. FAST never stops with it's mission to find a cure. The board is made up of volunteers who work so hard for no reward other than the chance of finding a miracle. As busy as they are, they still take the time to care about the parents they are helping and I am honoured to call them my friends.

1 Karina3

General Member of the Public

Rating: 5

I have a beautiful daughter with Angelman Syndrome and through a search with Google, found this site. It is very informative and sets you up with hope for the future. Of all the staff I have encountered, they have nothing but helpful and always willing to talk to me at anytime of day or night. Thank you FAST!

1 Lisa105

General Member of the Public

Rating: 5

I am a Speech-Language Pathologist and have had the honor of working for three families and their children who have Angelman Syndrome. I am also personal friends with one of the Tampa 24 participants. FAST is providing a hope that we never thought possible when I met my first Angel 8 years ago! Families have resources and an endless source of encouragement thanks to FAST. They are tireless and dedicated. Thank you FAST for giving us all the support and inspiration to keep fighting to cure Angelman Syndrome!

Anna20

General Member of the Public

Rating: 5

We found out my daughter Sadie had angelman syndrome a year ago! Are lives were rocked to the core. We found alot of hope from FAST. There organization is doing incredible work in advancing theraputics to help our children with this crapy disorder. The scientist work extremly hard and they are very willing to talk to any parent that has questions. This oraganization could likely cure angelman syndrome somthing that even 10 years ago seemed impossible.

Antonio G.

General Member of the Public

Rating: 2

Somos nos papas de España con un hijo con Sindrome de Angelman. Estamos muy pendientes de FAST y de su investigación y dándoles las gracias por todo el esfuerzo y el trabajo que realizan para todas las personas con Sindrome de Angelman de todo el mundo. Muchas gracias a FAST desde España.

Kathy-Kat A.

Client Served

Rating: 5

Because FAST exists, I have hope. My son has a neuro-genetic condition that fewer than 500,000 people on the planet have. On the maternal 15th chromosome, there is a portion where the gene expression is critical - because it's purpose is to create a protein which helps people learn. It also has other implications. My son has two paternal copies of this chromosome. Some patients with Angelman Syndrome have a maternal copy, but a piece is missing, or in the wrong place. There are all kinds of research efforts in place due to organizations such as FAST. FAST is wholly volunteer-run. FAST is amazing. FAST holds an annual event in December to raise funds and recognize the parents, bring us together under one roof for fellowship. Because of the recently begun Minocycline clinical trials, which FAST has been instrumental to, I have hope. As a single (divorced) mother to a child with Angelman Syndrome, I sometimes struggle to smile while I am at work. My son brings me a lot of happiness when I am at home. FAST helps me smile when I get frustrated because I know they are dedicated to curing Angelman Syndrome. They will not stop until there is a cure. And the knowledge that they gain is not limited to AS but could potentially serve Autistic or Alzheimer's patients and Epileptic patients. This is life-changing and I will be forever grateful to these people and their dedication.

Client Served

Rating: 5

My daughter has Angelman Syndrome, a rare neurogenetic disorder. When you recieve the phone call that your child has a genetic disorder and will never speak, will suffer from seizures, and will need care and assistance her entire life, the future can start to look very bleek and scary. The work that FAST supports has shown that there is a light in that future! This research not only has the potential to impact those of us with children who have AS, but the implications of the work FAST supports reaches far and wide- through the autism, alzheimers, and even more communities!!! If the work that FAST is doing creates what is essentially a cure, or even close to it, for AS- a GENETIC CONDITION- then that would open up so many possibilities and provide so much HOPE that a therapeutic cure could be found for all genetic conditions. This research will help my daughter find her voice. And that, that is priceless.

Paula J.

General Member of the Public

Rating: 5

FAST is an amazing organization brings and fights for hope. A organization that has a tight knit community, bonded and constantly inspiring and encouraging one another. I would never wish for a syndrome for my child or any, but if it had to be, I am glad it is Angelman Syndrome. Because now I have the great fortune calling FAST members and community~ friends!!!! Mom to Carmyn, Paula Hawthorne

Nicole28

General Member of the Public

Rating: 5

I am a step mommy of an Angel that my husband and I take care of full time. I knew nothing of Angelman Syndrome and I had to learn really FAST. LoL The Foundation for Angelman Syndrome Theraputics has taught me so much and has a great way of supporting other parents of children with AS. For all involved to work for FAST to find a cure, you truly are Angels yourselves! Thank you for all that you do! We Love FAST!!!

Jennifer115

General Member of the Public

Rating: 5

My son was recently diagnosed with Angelman Syndrome and this organization is giving us some hope of a better future for my son.

Don Y.

General Member of the Public

Rating: 5

Thank you FAST for providing my family and the AS community HOPE. I am so thankful to have your orginization help my beautiful daughter Emma and her friends. We love all the hard work you do, and for you to do it out of the kidness of your heart and not your pocket. Bless You!

Client Served

Rating: 5

FAST is an amazing group of people dedicated to making the lives of our Angels better. Thanks you for linking us to amazing research trials, conferences, and just keeping us in the loop with other families.

Client Served

Rating: 5

FAST is an outstanding organization with dedicated board members committed to finding a cure for Angelman Syndrome. My three year old daughter was diagnosed a little over a year ago, and since receiving this devastating news, FAST has been a beacon of hope. We have also been introduced to an amazing community, and I honestly do not know where our family would be without this incredible support. I only wish there were more than five stars to rate!! Thank you, FAST!!

Stephanie50

General Member of the Public

Rating: 5

FAST is simply AMAZING! This is a non profit organization that goes to great lengths to find ways to improve the lives of individuals who are affected by Angelman Syndrome. FAST does not soliciate parents for money, but instead, goes through other outlets to secure funding. This organization truly cares and shows that through their actions daily. Thank you for all that you do!!!!!!!!!! HOPE REIGNS SUPREME!

Mike Hanrahan

Client Served

Rating: 5

When our child was diagnosed with Angelman Syndrome last year our world seemed to fall apart. We were obviously worried for the future of our son and concerned about the life he would lead. However when we started researching his condition we quickly came across FAST and its not an understatement to say that they changed how we view the future of our son, both through the work we saw they were doing, and they way they communicated that work to the community. They have given us real hope that a cure or therapeutic will be developed that will help our son lead a very fulfilling life.

Tami M.

Client Served

Rating: 5

With an All Volunteer base this Organization goes above and beyond. Not a single dime goes to wages or salaries! In its few short years it has literally moved mountains on a rare neuro-genetic disorder many scientists and researchers had yet to even hear of. From organization formation to a fully funded human clinical trial in 4 years sent a ripple through the Angelman Community that had never been seen before. For the first time in this disorders history the word HOPE was being raised up and echoed through the families of those they represent. FAST believes in this cause because they are part of this cause! They are parents, family members and caregivers of Angelman children, they want this as much as we do. Donating to FAST one can be assured that money WILL make a difference where it counts most.

Constance R.

Client Served

Rating: 5

FAST is made up of a wonderful, caring, friendly group of people who are dedicated to their cause. They have given our family much more than support and encouragement... they have given us HOPE :-)

General Member of the Public

Rating: 5

FAST is an amazing organization that I can't praise enough. They are dedicated to finding a cure for Angelman Syndrome, a condition that my daughter has been diagnosed with. The fact that they were able to start clinical trials for a cure so soon after their conception shows they mean business and won't quit until our angels are helped.

Emilie5

Client Served

Rating: 5

FAST is a tremendous organization led by an amazing group o volunteers. FAST has an amazing ability to mobilize the community and connect like minded individuals to cause change **now**! Thanks you FAST!

Paul58

Volunteer

Rating: 5

FAST has galvanized the Angelman Syndrome community with extensive promotion of awareness and raising the profile of Angelman Syndrome in the community and has acted as a form of liquid gel to bring together many families throughout the world and let them know that there is hope there is progress in research that gives real prospects of cures of some or even all of the traits of Angelman Syndrome. Get behind this and work together as a community for all our children to realize their potential in life and for an end to the uncertainty and fear caused by the frailty of the younger children no longer at risk of having such a short life.

Anna19

Client Served

Rating: 5

FAST is an outstading nonprofit organization. Having a child with a rare genetic disorder can be a scary and lonely journey for the parents, but the support with receive from FAST has changed that outlook. These volunteers work to promote awareness and research of Angelman Syndrome. They provide the parents with the latest information on the therapeutics and treatments available. Thank you FAST for giving us hope!

Board Member

Rating: 5

FAST is an amazing group of volunteers who's mission is to help speed the research for a cure/treatment for Angelman Syndrome. The foundation is nearly 100% staffed by dedicated parents of Angelman Syndrome children. Not only has this foundation brought together a community of AS afflicted families, but it has taken a seriously diagnosis of "NEVER-Will-DO's" and turned it around to a feeling of "HOPE". Families can now imagine what their children will be able to achieve in life. They may get to hear their child's voice, they may see their child live without seizures, they may see them live an independent life, but mostly they may get all their lost dreams back again. There is nothing more devastating than to have a child and then have all your dreams and hopes taken away in one breathe of getting the diagnosis of Angelman Syndrome, but now FAST has turned those lost dreams around to being possible. It is hard to share the feelings a parent has when embraced by this group of people. I am lucky to sit on the board of FAST and even more lucky to be able to touch the lives of so many other families who have gone through exactly what I have gone through. The members of FAST the community of supporters is like no other and I am blessed every day to call myself one of them. This foundation has turned my life around and I am a better person, friend and parent for it.

Nealie T.

Client Served

Rating: 4

FAST has been wonderful in pulling the Angelman Community together. FAST helps to keep us informed and gives us hope. I am very thankful for this organization and the people I have met thru FAST.

1 Sharon35

General Member of the Public

Rating: 5

FAST is a wonderful non profit organization who are giving the AS community hope! I thank you for all your hard work and dedication. It is nice to have an organization that truly understands first hand about AS. With FAST there is HOPE!

Sara36

General Member of the Public

Rating: 5

We recieved my sons diagnoses when he was 16 months and he is 10 now. I was told there is NO hope for a cure. FAST has given me something back I lost years ago. I am so blessed to be apart of this amazing world of Angels and this organization. Because of FAST and all their dedication and hard work my son is part of something that is the most amazing thing in the world to us, a second chance at a brighter tomorrow. Thank you FAST for everything you have done and you helped restore HOPE!!

Gemma J.

Client Served

Rating: 5

When we recieved our son's diagosis of Angelman Syndrome, FAST helped to provide us with information and even better HOPE! Thanks for all the hard work for our gorgeous Angels.

1

Client Served

Rating: 5

FAST has been provided us with so vital information regarding scientific research. We always will be grateful for the diligent people who is involved in this foundation. Thank you