The money this nonprofit collects ALL goes to research for a cure for Angelman Syndrome. They are tireless in getting the word out about the syndrome and are very supportive for families of Angels.
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My beautiful granddaughter has Angelman Syndrome. Living far away, I feel helpless. It is wonderful to know that the Foundation for Angelman Syndrome Therapeutics is doing so much to find a cure, to educate, and to support families and caregivers. The volunteers who run it take their only reward in a job well done. I don't know another group that does as much for our Angels or is getting us closer to a cure. I congratulate them and thank God FAST is doing so much for our Angels.
FAST gives all parents with Angelman Syndrome hope, they are charging ahead with funding for research to help try to find treatments to help our children and hopefully a cure. They are a board of volunteers that really make the most of the money thats fundraised pumping almost all of it into research. They are not paid staff. I really think with FAST we will get a cure soon.
When our son Ryland was diagnosed we were devastated! Then we were introduced to FAST! We actually have hope Ryland might one day lead a normal life. The entire FAST Organization if filled with wonderful dedicated people, without them we wouldn't have hope for a cure. We thank them from the bottom of hearts for working so hard and being so dedicated in helping our children.
Foundation for Angelman Therapeutics is one of the best organizations I have volunteered for. They work tirelessly to help our children. The hope they have given our children and families means so much! Thank you FAST!
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My son Joey was diagnosed at 2 1/2 years of age, it wasn't until years later when FAST was formed that I truly had HOPE, hope for a treatment, better communication with specialists for our Angelman Community, and hope for communication. Since FAST was formed it has truly changed our lives for the better, I truly cannot thank them enough.
My son, Jimmy, was diagnosed with Angelman Syndrome at 9 months of age in 2000. There was no talk of a cure, just a life of maintaining his existence. It was heartbreaking. When I first started hearing about F.A.S.T. a few years later, I didn't pay much attention. I had already been told by PROFESSIONALS all that my son would not do.
But the foundation was not going away, in fact, it was getting stronger. It was also being supported by parents that I knew and respected.
My dreams have been replaced by bigger and better ones. If not for my child, then for someone else's child, which makes all the support worth it.
FAST is setting an unprecedented example of how a foundation should be run. They are streamlining the way research is conducted for individuals with Angelman Syndrome. FAST takes a very innovative approach to bridging the gap between parents' reality and research. They do a marvelous job of motivating parents to understand that a cure is within our reach. FAST's mission aligns with everything I want for my child. You can't get anything better than 100% of donations towards research to benefit our loved ones!
My granddaughter was diagnosed over six yrs ago. All the literature out there told us she would never walk, talk or do things for herself. It is by the grace of God that a mother of another child with AS had the dream of forming an organization made up up fellow Angelman families/friends that wanted more for their children. More for my granddaughter. That is when FAST was formed and they began searching for researchers that saw the possibilites, researchers that BELIEVED in our children/grandchildren. Researchers that would dedicate their lives to finding a cure for AS. To my knowledge FAST is the only organization in the world to fund a human clinical trial on Angelman Syndrome. That speak volumes considering they have only been in existence 5 yrs. My support, my prayers and my families devotion lies with the Foundation for Angelman Syndrome Therapeutics. They have the drive and willingness to bring our children born with AS a cure one day soon. Hope Reigns Supreme!
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I nominate the Foundation for Angelman Syndrome Therapeutics for their continued outstanding support of my granddaughter and her fellow angels born with Angelman Syndrome. It is because of this organization that we just completed the first ever human clinical trial on a medication that may bring hope to her and all her friends with AS. This organization has been in existence less than 5 yrs and is totally nonprofit, ran by parents and friends of those with AS and ALL funds go for research projects. Not one board member collects a pay check. They are all volunteers working towards a cure for AS.
Anybody who's ever received a diagnosis of a developmental and/or neurological disorder for their child knows how incredibly difficult those first few days/months are. It was no different for myself, as I can still remember the sensation of being gut punched, curled up in a corner and distraught, not even trying to contain my anger and fear.
It was only after I'd summoned up the courage to look up Angelman Syndrome online, to actually commit to understanding what life for my son (and for the rest of our family) was going to look like from here on out, that I came across FAST and their mission to fund research into Angelman Syndrome therapies. It sounded too good to be true; I went from the lowest point in my life to something resembling elation. I had to do background research on the organization to make sure that the information on the site was legitimate and not pandering to the hopes and dreams of Angelman caregivers and parents. After getting in touch with several members of the FAST board (all of whom reached out to me personally after seeing my facebook post on my son's diagnosis), I was sold on the goals and mission of FAST.
The foundation has provided hope, education and a community that galvanizes whenever there is something that can help those afflicted with Angelman Syndrome and I'm not sure where we would be right now without their hard work and commitment.
When my daughter was diagnosed at 11 months, I was saddened there was likely nothing to be done about it. I am a developmental biologist by trade so I knew that if the brain formed incorrectly, the cards had been dealt. Imagine my surprise and delight when the research began to show that Angelman Syndrome is not a developmental defect, but a biochemical defect. In other words, my daughter's brain formed fine, it just wasn't working properly.
With that knowledge, when I was asked to join the Foundation for Angelman Syndrome Therapeutics (FAST) at its inception, I did not hesitate. I serve as the Chief Science Officer for FAST. Since then we have funded over 1.2 million dollars in research in just three years, have funded preclinical work that led to a clinical trial, and funded the clinical trial which ended this past March. We are a small group of dedicated parents, friends and family members in an incredible community determined to change the world for our loved ones and anyone who is dealing with a defect in learning and memory.
Through the Foundation we have also provided educational summits to the community free of charge. These summits covered communication and literacy for those with Angelman Syndrome in 2012, and this year will focus on Sleep Issues and Challenging Behaviors. We are taking any and all steps possible to make the lives of those with Angelman Syndrome the very best they can be.
Join us and be part of the miracle - www.CureAngelman.org
Over the past 35 + years my family and I have been associated with other foundations and charities by serving or being served. In our joint opinions, the Foundation for Angelman Therapeutics is rated one of the best. We became aware of them because of our 33 yr. old son who was diagnosed with Angelman Syndrome at age 10. We have been 100% satisfied with the service received through the foundation but also with the way this all volunteer organization utilized the donation of our time and money. I would not hesitate to recommend F.A.S.T. to a newly diagnosed parent looking for support and information, a donor looking for a place to donate their hard earned dollar or as a place for someone to volunteer their time and services.
Soy abuela de una niña con Sindrome de Angelman. FAST está realizando actualmente un ensayo clínico en humanos con minociclina, que nos llena de esperanzas en cuanto a la cura de este sindrome. Puede suceder pronto y será gracias al esfuerzo, dedicación y duro trabajo desarrolado por FAST , conseguir un futuro mejor para todas las personas afectadas. Gracias.
Tengo una hija que padece el sindrome de Angelman y gracias a la FAST ahora por primera vez en toda su vida tenemos la esperanza de que pueda tener un futuro mejor. GRACIAS FAST!!!. Juan Jose Palomares - Madrid - Spain.
Tengo una hermana que padece el Sindrome de Angelman y gracias a la FAST ahora por primera vez tenemos la esperanza de que tenga un futuro mejor. Gracias FAST!. Daniel-Madrid-Spain
Tengo una hermana, Elena, que tiene el síndrome de Angelman y gracias a la Foundation for Angelman Syndrome Therapeutics por primera vez tenemos la esperanza de que mi hermana pueda tener un futuro mejor. Gracias FAST!!. Cristina - Madrid (Spain).
Soy madre de una niña de 28 años que padece el síndrome de Angelman. Foundation for Angelman Syndrome Therapeutics nos ha dado por primera vez una esperanza de un futuro mejor para nuestra hija. GRACIAS FAST!!.
My daughter is 10 and has Angelman Syndrome. When we got her diagnosis 9 years ago, our neurologist cautioned us from reading the reports on the internet about people with Agelman. Since then, research has exploded. Now we expect the development of a therapeutic during her lifetime. FAST is making this possible as they funnel every cent toward research. The icing on the cake is that the staff and support and community of FAST is not just geared toward research; the support they provide (through personal relationships) is immeasurable.
There was no question that FAST stood for everything that I believed in and wanted to support as a parent of a newly diagnosed little boy with AS. This organization is committed to fighting for our children and spending every cent (100% to be exact) in the most efficient and productive ways that will produce life changing outcomes. The very first potential treatment for AS was funded by FAST and a community that worked hard to raise the funds needed to start the clinical trial that is currently under way. FAST's passion and determination is actually changing the way medical research is being funded and they have completely restored faith and hope that brighter days are ahead.
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The mission of FAST has brought my family much HOPE during some initial dark days after discovering my son's AS. To learn that FAST is committed to funding the research that will bring meaningful treatments into the lives of our kids NOW while continuing to find the ultimate cure in the near future--- is simply amazing. What's even more amazing-it's driven by a volunteer board/scientific board & staff. Funds being raised via FAST are making big things happen and truly changing the landscape of our kids futures!
Great foundation! I have 3 grade kids with Angelman's! Olivia 7 1/2, Harrison 6 and Dennis 4! Stacy R is the same mom of all 3. She is awesome and so is FAST! So very worthy of this praise! FAST gives us HOPE! Olivia's middle name!?
FAST has helped unify the community that cares about individuals with Angelman Syndrome, with a message of HOPE for a treatment for this devastating neurogenetic disorder. The organization's leadership volunteers the time and skills necessary for running the organization. Many necessary supplies and services are donated, meaning almost all of every dollar donated goes towards our mission of improving the lives of those with Angelman Syndrome and funding research for a cure. Members are empowered and inspired to contribute their own skill sets and resources to assist in the running of the organization and to fundraise creatively. This young and vibrant organization has already supported great progress in awareness and research funding.
FAST is an incredible organization dedicated to finding a cure for Angelman Syndrome. It has already made incredible progress and with further support will make even greater gains in the search for the cure.
After 25 years of living with Angelman Syndrome, the Foundation of Angelman Syndrome Therapeutics has located and funded research for a "cure". One day, with the help of FAST to funnel much needed research dollars, I hope to hear my son speak. Once he speaks, the world will open for him. No other organization has been able to do what FAST has done in just a few years.
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FAST has been wonderfully effective in raising awareness of Angelman Syndrome and funding studies aimed at mitigating the very difficult symptoms of this condition. The board and administrators are 100% volunteer and all monies raised go directly to services. In addition to raising awareness and funding studies, they provide information, support and hope to families (and professionals) dealing with Angelman Syndrome.
When my daughter, Elena, was diagnosed with Angelman Syndrome (AS), a severely limiting neuro-genetic disorder that causes seizures, developmental delays and other challenges, there was little to no hope offered to me. Thankfully, several other parents refused to accept this and FAST, the Foundation for Angelman Syndrome Therapeutics, was formed. FAST's sole purpose is to facilitate a cure for AS. Along the way they have funded a very promising clinical trial, sponsored and funded up-and-coming scientists, provided education and resources for parents, and united a community of families in hope. Entirely staffed by volunteers, most of whom are parents of children with AS, 100% of every donation goes directly where it is needed - finding a cure for our kids!
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When my daughter was first diagnosed with Angelman Syndrome, there was no cure, and little hope for one. Thankfully, FAST is working to change that. As an all-volunteer organization, every dime donated to FAST goes toward finding a cure for Angelman Syndrome. In 2011, FAST volunteers helped unite and inspire the AS community to win the grand prize of $250K in the Vivint Gives Back contest. A month later, one of FAST's-funded scientists discovered that a common antibiotic, minocycline, restored functioning in an Angelman Syndrome mouse-model giving us hope that our children could not only be cured, it could happen soon! Only a few months later, FAST put the prize money to great use and funded the Minocycline human clinical trials. But FAST hasn't stopped there. FAST is continuing to gather fund donations, including a recent anonymous donation of $250K, and is continuing to fund and support scientific research. I know there will be a cure for Angelman Syndrome very soon, and it will be due in large part to FAST and all of its hard work. Thank you, FAST!
FAST me ha dado la Esperanza que ya no tenía,pero gracias a Dios conocí de ellos pronto.Mi hija es un Ángel Angelman syndrome y cada dia lucho duro por mantenerla saludable y pronto pueda ser candidatA a cualquier avance que FAST tenga, pues trabajan muy duro para avanzar y pronto encontrar un tratamiento que por Qué No,pueda ser la cura pronto. FAST we Love You All.Thank you for giving Us Hope.
FAST is best nonprofit organization for all the wonderful help and hope that they have given to our Angels!! Thank you FAST!!!
In order to supplement the national foundation, this organization was started to raise more funds for study, as I understand it. As a group of parents, there is a more personal feel to the parent involvement. With the funds already raised, a clinical trial has been started already. More power to the participants! We all are hoping while we wait for the results.
As an advocate, volunteer, client served, and medical professional I give Kudos to this completely volunteer based organization. How such a young non profit can become so positively involved in the Angelman Community in such a short period of time speaks loudly to the passion and committment FAST has for supporting, advocating for, and funding promising Angelman Syndrome research. They go above and beyond to make those affected by AS feel empowered to "speak up" for a more inclusive life, to "speak up" for more research, and to "speak up for a viable therapeutic and cure". They fund researchers who see those with AS as people first, and research second. Reaserchers who are professionally invested and humanly invested. Thank you FAST keep up the positive message of hope that you have instilled in this community!
FAST is the best non profit because its giving families hope that one day our beautiful angels might be able to live a more functioning life. Its because of this organization that I can wake up every morning with hope.
super organisation ! toujours à la point de la recherche. un énorme espoir pour nous, parents d'enfants angelman. Comme vous dites dans votre pays : two thumbs up !"
FAST is a wonderful organization that is focused on a goal that all of us parents want to see reached: finding a therapeutic for Angelman syndrome. The organization is run by people that really care about kids with AS - as many in the organization have children with AS. We are all thankful for the work that FAST does and want to see it grow and grow!
F.A.S.T. is the most amazing organization to be involved in. I as a Nana am involved with this organization at a arms lenght. My Grandaughter Arianna (my soul mate) has benefited from their participation and committment to the Angelman Community. F.A.S.T helps the Angel Parents and children they are supportive and giving. We are so lucky to have such an organziation to bond with ua as grandparents, parents, siblings and children of those who have Angelman.
As a parent of a child with Angelman Syndrome, there are just not enough ways to express my appreciation for the work that F.A.S.T is doing. They are the driving force behind AS awareness and the advances in research that we have seen over the last few years. There is absolutely just no stopping F.A.S.T. in their mission to find a treatment for Angelman Syndrome. In addition to their work in research, they have developed an amazing community of parents/caregivers/educators/scientists that supports each other unconditionally. F.A.S.T. is most definitely making the lives of people living with AS and the world in general a much better place.
My daughter was diagnosed with Angelman Syndrome in 2007 when she was just over one year old. The information we received was incredibly bleak and we were devastated. Not long after we discovered F.A.S.T and were given wonderful information and discovered they were hopeful that a treatment would be found in the near future which would improve our childrens lives. Since then we have been full of hope, and are incredibly excited about the current trial in Florida. Thank you F.A.S.T for everything you do for our Angel Families. Anne Gribbin
I cannot say enough wonderful things about the FAST organization and all of those that it serves. This organization has opened up so many doors for our children and families. The real hope of a cure for our children would not be possible if it were not for this group and the amazing team of doctors and researchers they have put togethr. And as for the community of people that are now a prt of my life because FAST exists....where do I begin? It just doesn't get any better. We laugh together, cry together, get angry, argue, pray, hope, dream. Being able to share our experiences with one another, receive advice and give advice has been so beneficial and rewarding as an Angelman parent. Thank you to all of those that are giving so much for our children. And thank you for allowing me and my family to be a part of an incredible group of individuals. God Bless FAST!!
As the parent of a young adult with Angelman Syndrome, I have the deepest appreciation for the untiring effort and support that the all volunteer staff of F.A.S.T puts forth, not only to find a cure for our children, but to provide a network of families and professionals that are a constant source of information, ideas and support. i believe the lives of families with AS children have been, and will continue to be, profoundly improved because of F.A.S.T
Our son was diagnosed with Angelman Syndrome in 1998 and we were given no support or hope for his future. Through FAST, we have been given great hope for our sons' future and we have discovered a community full of support and love. We are so grateful to the Board of Directors, all of which are volunteers and most of which are parents to a child with A.S., and to the Scientific Advisory Board of FAST, a team of terrific, dedicated people, for all that they have done and continue to do. FAST have created an A.S. community, given us all hope and shown the world that our Angels are awesome and they deserve nothing less than the very best!!
FAST is an amazing charity. It has only been in existance for a few years but it is already funding a clinical trial which could be life-changing for our children with Angelman Syndrome which is a devastating developmental seizure disorder which can be life threatening. FAST never stops with it's mission to find a cure. The board is made up of volunteers who work so hard for no reward other than the chance of finding a miracle. As busy as they are, they still take the time to care about the parents they are helping and I am honoured to call them my friends.
I have a beautiful daughter with Angelman Syndrome and through a search with Google, found this site. It is very informative and sets you up with hope for the future. Of all the staff I have encountered, they have nothing but helpful and always willing to talk to me at anytime of day or night. Thank you FAST!
I am a Speech-Language Pathologist and have had the honor of working for three families and their children who have Angelman Syndrome. I am also personal friends with one of the Tampa 24 participants. FAST is providing a hope that we never thought possible when I met my first Angel 8 years ago! Families have resources and an endless source of encouragement thanks to FAST. They are tireless and dedicated. Thank you FAST for giving us all the support and inspiration to keep fighting to cure Angelman Syndrome!
We found out my daughter Sadie had angelman syndrome a year ago! Are lives were rocked to the core. We found alot of hope from FAST. There organization is doing incredible work in advancing theraputics to help our children with this crapy disorder. The scientist work extremly hard and they are very willing to talk to any parent that has questions. This oraganization could likely cure angelman syndrome somthing that even 10 years ago seemed impossible.
Somos nos papas de España con un hijo con Sindrome de Angelman. Estamos muy pendientes de FAST y de su investigación y dándoles las gracias por todo el esfuerzo y el trabajo que realizan para todas las personas con Sindrome de Angelman de todo el mundo. Muchas gracias a FAST desde España.
Because FAST exists, I have hope. My son has a neuro-genetic condition that fewer than 500,000 people on the planet have. On the maternal 15th chromosome, there is a portion where the gene expression is critical - because it's purpose is to create a protein which helps people learn. It also has other implications. My son has two paternal copies of this chromosome. Some patients with Angelman Syndrome have a maternal copy, but a piece is missing, or in the wrong place. There are all kinds of research efforts in place due to organizations such as FAST. FAST is wholly volunteer-run. FAST is amazing. FAST holds an annual event in December to raise funds and recognize the parents, bring us together under one roof for fellowship. Because of the recently begun Minocycline clinical trials, which FAST has been instrumental to, I have hope. As a single (divorced) mother to a child with Angelman Syndrome, I sometimes struggle to smile while I am at work. My son brings me a lot of happiness when I am at home. FAST helps me smile when I get frustrated because I know they are dedicated to curing Angelman Syndrome. They will not stop until there is a cure. And the knowledge that they gain is not limited to AS but could potentially serve Autistic or Alzheimer's patients and Epileptic patients. This is life-changing and I will be forever grateful to these people and their dedication.
My daughter has Angelman Syndrome, a rare neurogenetic disorder. When you recieve the phone call that your child has a genetic disorder and will never speak, will suffer from seizures, and will need care and assistance her entire life, the future can start to look very bleek and scary. The work that FAST supports has shown that there is a light in that future! This research not only has the potential to impact those of us with children who have AS, but the implications of the work FAST supports reaches far and wide- through the autism, alzheimers, and even more communities!!! If the work that FAST is doing creates what is essentially a cure, or even close to it, for AS- a GENETIC CONDITION- then that would open up so many possibilities and provide so much HOPE that a therapeutic cure could be found for all genetic conditions. This research will help my daughter find her voice. And that, that is priceless.
FAST is an amazing organization brings and fights for hope. A organization that has a tight knit community, bonded and constantly inspiring and encouraging one another. I would never wish for a syndrome for my child or any, but if it had to be, I am glad it is Angelman Syndrome. Because now I have the great fortune calling FAST members and community~ friends!!!! Mom to Carmyn, Paula Hawthorne
I am a step mommy of an Angel that my husband and I take care of full time. I knew nothing of Angelman Syndrome and I had to learn really FAST. LoL The Foundation for Angelman Syndrome Theraputics has taught me so much and has a great way of supporting other parents of children with AS. For all involved to work for FAST to find a cure, you truly are Angels yourselves! Thank you for all that you do! We Love FAST!!!
My son was recently diagnosed with Angelman Syndrome and this organization is giving us some hope of a better future for my son.
Thank you FAST for providing my family and the AS community HOPE. I am so thankful to have your orginization help my beautiful daughter Emma and her friends. We love all the hard work you do, and for you to do it out of the kidness of your heart and not your pocket. Bless You!
FAST is an amazing group of people dedicated to making the lives of our Angels better. Thanks you for linking us to amazing research trials, conferences, and just keeping us in the loop with other families.
FAST is an outstanding organization with dedicated board members committed to finding a cure for Angelman Syndrome. My three year old daughter was diagnosed a little over a year ago, and since receiving this devastating news, FAST has been a beacon of hope. We have also been introduced to an amazing community, and I honestly do not know where our family would be without this incredible support. I only wish there were more than five stars to rate!! Thank you, FAST!!
FAST is simply AMAZING! This is a non profit organization that goes to great lengths to find ways to improve the lives of individuals who are affected by Angelman Syndrome. FAST does not soliciate parents for money, but instead, goes through other outlets to secure funding. This organization truly cares and shows that through their actions daily. Thank you for all that you do!!!!!!!!!! HOPE REIGNS SUPREME!
When our child was diagnosed with Angelman Syndrome last year our world seemed to fall apart. We were obviously worried for the future of our son and concerned about the life he would lead. However when we started researching his condition we quickly came across FAST and its not an understatement to say that they changed how we view the future of our son, both through the work we saw they were doing, and they way they communicated that work to the community. They have given us real hope that a cure or therapeutic will be developed that will help our son lead a very fulfilling life.
With an All Volunteer base this Organization goes above and beyond. Not a single dime goes to wages or salaries! In its few short years it has literally moved mountains on a rare neuro-genetic disorder many scientists and researchers had yet to even hear of. From organization formation to a fully funded human clinical trial in 4 years sent a ripple through the Angelman Community that had never been seen before. For the first time in this disorders history the word HOPE was being raised up and echoed through the families of those they represent. FAST believes in this cause because they are part of this cause! They are parents, family members and caregivers of Angelman children, they want this as much as we do. Donating to FAST one can be assured that money WILL make a difference where it counts most.
FAST is made up of a wonderful, caring, friendly group of people who are dedicated to their cause. They have given our family much more than support and encouragement... they have given us HOPE :-)
FAST is an amazing organization that I can't praise enough. They are dedicated to finding a cure for Angelman Syndrome, a condition that my daughter has been diagnosed with. The fact that they were able to start clinical trials for a cure so soon after their conception shows they mean business and won't quit until our angels are helped.
FAST is a tremendous organization led by an amazing group o volunteers. FAST has an amazing ability to mobilize the community and connect like minded individuals to cause change **now**! Thanks you FAST!
FAST has galvanized the Angelman Syndrome community with extensive promotion of awareness and raising the profile of Angelman Syndrome in the community and has acted as a form of liquid gel to bring together many families throughout the world and let them know that there is hope there is progress in research that gives real prospects of cures of some or even all of the traits of Angelman Syndrome. Get behind this and work together as a community for all our children to realize their potential in life and for an end to the uncertainty and fear caused by the frailty of the younger children no longer at risk of having such a short life.
FAST is an outstading nonprofit organization. Having a child with a rare genetic disorder can be a scary and lonely journey for the parents, but the support with receive from FAST has changed that outlook. These volunteers work to promote awareness and research of Angelman Syndrome. They provide the parents with the latest information on the therapeutics and treatments available. Thank you FAST for giving us hope!
FAST is an amazing group of volunteers who's mission is to help speed the research for a cure/treatment for Angelman Syndrome. The foundation is nearly 100% staffed by dedicated parents of Angelman Syndrome children. Not only has this foundation brought together a community of AS afflicted families, but it has taken a seriously diagnosis of "NEVER-Will-DO's" and turned it around to a feeling of "HOPE". Families can now imagine what their children will be able to achieve in life. They may get to hear their child's voice, they may see their child live without seizures, they may see them live an independent life, but mostly they may get all their lost dreams back again. There is nothing more devastating than to have a child and then have all your dreams and hopes taken away in one breathe of getting the diagnosis of Angelman Syndrome, but now FAST has turned those lost dreams around to being possible. It is hard to share the feelings a parent has when embraced by this group of people. I am lucky to sit on the board of FAST and even more lucky to be able to touch the lives of so many other families who have gone through exactly what I have gone through. The members of FAST the community of supporters is like no other and I am blessed every day to call myself one of them. This foundation has turned my life around and I am a better person, friend and parent for it.
FAST has been wonderful in pulling the Angelman Community together. FAST helps to keep us informed and gives us hope. I am very thankful for this organization and the people I have met thru FAST.
FAST is a wonderful non profit organization who are giving the AS community hope! I thank you for all your hard work and dedication. It is nice to have an organization that truly understands first hand about AS. With FAST there is HOPE!
We recieved my sons diagnoses when he was 16 months and he is 10 now. I was told there is NO hope for a cure. FAST has given me something back I lost years ago. I am so blessed to be apart of this amazing world of Angels and this organization. Because of FAST and all their dedication and hard work my son is part of something that is the most amazing thing in the world to us, a second chance at a brighter tomorrow. Thank you FAST for everything you have done and you helped restore HOPE!!
When we recieved our son's diagosis of Angelman Syndrome, FAST helped to provide us with information and even better HOPE! Thanks for all the hard work for our gorgeous Angels.
FAST has been provided us with so vital information regarding scientific research. We always will be grateful for the diligent people who is involved in this foundation. Thank you
FAST has given my family so much hope. All the dedication the staff puts into finding a "cure" for our Angels keeps my spirit and hopes higher than I could of ever imagined. The support they give us along this journey is an added extra special bonus. Thank you to all the staff at FAST!!!!
FAST is a wonderful organization! The staff is phenomenal, and work nonstop for our children diagnosed with Angelman Syndrome. They think outside of the box, and by doing so, give me hope that my child with Angelman Syndrome might one day walk and talk. If you need help, they are there to help. I have no doubts that this organization will be behind the eventual cure for AS. Thank you, FAST.
FAST have embraced me into a worldwide family of support when my son was diagnosed with AS 4 years ago - without FAST, we would have been lost. They work tirelessly to raise funds and awareness in the hope that one day a cure WILL be found for AS.
FAST is an amazing nonprofit organization! The board members work hard to find a cure for Angelman syndrome. They are all volunteers, no one takes home a paycheck. FAST thinks outside of the box looking for already FDA approved drugs to help our loved ones live a life without the daily struggles that having Angelman Syndrome creates. FAST has just funded a human clinical trial of minocycline based on the research of Dr Edwin Weeber and his lab. Great things are happening because of the FOUNDATION FOR ANGELMAN SYNDROME THERAPUTICS!
We received the diagnosis of Angelman Syndrome for our granddaughter in 2004. At the time of her diagnosis, both her neurologist and pediatrician provided outlooks on her future that were incredibly bleak. Through funding research and public awareness programs, FAST has given the families of the Angelman community hope. We are all observing a clinical trial of a medication that may yield positive results in treating some or all of the characteristics of Angelman Syndrome. This was unheard of in 2004! FAST gave us hope for a brighter future for our children. It is truly a wonderful organization!
Foundation for Angelman Syndrome Therapeautics is amazing!! They are a very supportive organization focused on the Angelman Syndrome, and thanks to them the clinical trials are possible. This sounds all very nice, but it is not only a nice sounding thing: can you imagine how these clinical trials could change the live of our child with A.S.? I just don't have enough words to thank them from the bottom of my heart for every single thing they are doing to help us. It is just overwhelming!
Want to say thanks for all the hard working members and volunteers of FAST. If it were not for this organization our children would have to work harder to achieve their goals. I would have no knowledge of research and the great things going on in the angel community. As a parent of an Angel, everything is harder, but FAST makes a little easier.
FAST is an absolutely amazing organization that gives hope to many Angelman syndrome families. When a child is diagnosed with AS the doctors tell you that there is no cure, no therapeutic for this syndrome, but FAST gives hope that there is. They actively seek to find a therapeutic and put an end to the suffering of our angels. I can't even begin to express with words the passion they put behind trying to accomplish this goal. FAST is a blessing to all the AS families.
FAST hit the ground running and has been from the start! Since they started it has been one minded - help all of the sweet individuals with Angelman Syndrome. They have brought together a global network of parents and families and put them in touch with doctors who work tirelessly to change the lives for the better for the families. Follow FAST and watch the great things they are up to!
Our daughter has been blessed with the opportunity to participate in the minocycline trial. Thank you FAST for fighting fast for our angels and allowing hope to reign. We never could have imagined this possibility of such research when our daughter was first diagnosed with Angelman Syndrome. Having people in charge who have their own angels makes FAST so special and understanding as well. Thank you!
Foundation for Angelman Syndrome Therapeautics is absolutely amazing!! My granddaughter Jenna has AS and FAST has been the single most supportive organization we have found. We are one big loving, supportive, uplifting family because of what FAST has given to all of us.They say the little things are the most impotant, and FAST has certainly exceeded this with all of their patience and support when so many of us are fearful and confused. This organization has really shown what people can do when they really care!! We love you all at FAST !!!!
I love and I do mean love the closeness of this foundation. I also feel it is a more personal foundation. I absolutely adore the fact that the dedicated board is all has an angelman child...to me this is a very vital part of a foundation in that they *understand* and we are all coming at the same level. The researchers are caring and understanding and I feel like their hearts are really in finding a cure rather than the almighty dollar leading them. I would also like to thank all the dedicated volunteers who make things happen!!! If information is needed they will find it if they don't know it. I could go on and on but to sum it up I think I would say it is: Informative and On a personal level making parents feel of Angelman kids feel validated. Thanks for all you do!!!!!!!!!!!
When I first heard of FAST, I didn't think much about it. But within a few months, it's all I could hear about. This organization has led the way to our clinical trials that are happening right now. Studies that have never been done before, finding out new things beyond my imagination! FAST has brought together thousands of families from across the world. I am a proud member of 5 different Faebook support groups who I chat with EVERY day, and most importantly, my daughter was accepted into not one, but TWO of the trials. I couldn't be more proud. Thank you FAST for changing all of our lives and restoring hope where there was none.
Having a child with a rare syndrome (Angelman Syndrome) and living in a fairly remote part of the world (New Zealand), my outlook for the future had been fraught with anxiety, and the journey had been a lonely and isolating experience. However, since the formation of the Foundation for Angelman Syndrome Therapeutics, my entire outlook on the future has done a dramatic turn-around. Paula Evans and the Board of FAST are the most dedicated team we could wish to have on our side. As a non-profit organisation, they willingly share their own time and expertise in a relentless quest for a 'cure' - a search for therapeutics that will help our children lead better lives. FAST’s integrity and their proactive approach as they tackle this challenge, have also inspired parents around the world. They have united us into a strong global community, offering uplifting friendships, vital and relevant information, and wonderful day-to-day support. As a non-profit organisation run by volunteers, I want to sincerely thank the Board of FAST for raising the bar so high. They pursue their objectives with thoroughness and vigour, and are definitely the FAST-est on the block. Well done for the successful funding of the current clinical trials which have gained so much international attention. I am VERY thankful to be part of such an outstanding organization!!
My son has Angelman Syndrome and is 25 yrs old. It took years of learning and working with him and years of parents hoping endlessly for something that could just help our children. It seemed hopeless listening to researchers and doctors and I left the community-sharing on line. However, when I returned, I found the FAST Organization and learned how starting with one mom (Paula Evans) brought together parents and professionals to the present day of current trials of a medication that may help our children. FAST makes a commitment of never giving up and they also continue to support us and our children. This is a GREAT Nonprofit!
FAST has given me hope that one day my daughter will be able to do the things we once believed would never be possible. What they have provided the Angelman community is a sense of belonging - that we are a family and that they will stop at nothing to ensure that the best therapeutics are available to our angels. The FAST board is comprised of volunteers so that every cent raised is purely for research. I am honored to be a part of such an organization.
FAST is a wonderful organization, they are so dedicated to their work and put us families affected by Angelman Syndrome first.
I am very thankful for FAST and all Paula Evans and the whole board does for all of us!! This is an amazing organization! As a parent of a child with Angelman Syndrome, I cant thank them enough for all they do for our community. They have put so much time into finding therapeutics for our angels. We are truly blessed to be a part of this amazing organization.
Foundation for Angelman Syndrome Therapeutics is an amazing organization! As a parent of a adult with Angelman Syndrrome I cant thank Paula Evans and the board of FAST enough for the time and commitment they have put into finding a cure for our angels. FAST gives hope to all of us parents that one day our children will say the words that we all pray for! Thank you FAST for all you do!! I am blessed and thankful to be part of such a great organization!!
I first heard about this organization as it was starting up. I watched from a distance as Paula Evans and several other parents brought their hopes and dreams from a mere seed to a seedling and then watched as that seedling grew into a full grown tree(organization). This non profit group has dome amazing things over the past few years and has reached out to parents and researchers of those who have been diagnosed with Angelman Syndrome. The sincerity , determination and continuous support and growth of the organization drew me in and I am proud to support it in any way I can. I no longer watch from a distance but follow the group and encourage others to do so. It's track record and all volunteer board are impressive . I know any time or donation I can contribute will be utilized wisely and will be valued. FAST is an approachable , transparent non profit and I am proud to have them in my son's corner.
FAST is an amazing non profit organization. The way that all the members donate their time and efforts to our community to help all of our children is so selfless. I will never be able to tell them how wonderful they are for everything they do for us.
FAST is a wonderful non profit organisation. Their dedication and work is absolutely amazing. As a parent of a child with Angelman Syndrome I feel so lucky to have someone that works tirelessly for the same goal that us parents have. Thank you for giving us hope
The entire goal of this charity is to cure Angelman Syndrome. The board is made up of parents, caregivers, and friends of children and adults with Angelman Syndrome, and they serve on this board voluntarily and for no compensation. I have seen firsthand that this is a time-consuming effort and many of the board members do this in addition to their regular jobs. They ask nothing in return but for us to raise awareness and funds to further AS research. When my daughter was diagnosed with AS ten years ago, we were told that there was no cure and that she would be dependent on others for all of her needs for the rest of her life. Because of FAST, this has changed. The cure for Angelman Syndrome has now become a reality. Right now, a clinical trial is being conducted to test a treatment for AS. Our daughter is part of this clinical trial, which is something that I could have only imagined ten years ago. I am so grateful for the dedication that FAST has to our children and to the entire Angelman Syndrome community. I have nothing but the utmost respect for FAST as an organization and will support them in any way that I can because this organization believes in the miracle of a cure for our daughter.
Most non-profit organizations are made up of paid employees who basically have no need of the sevices provided by the organization. This is not the case with FAST. These people who run the organization have a NEED for the funding to go exclusively for research, and DESIRE for a cure and empathy for all those whom it serves. No salaries are involved, it is strictly volunteer. They have worked hard to bring together a world wide community, an extremely strong community, of people with children with an extrmely rare disease. The money they raise goes for research for a CURE of the disease, not a temporary remedy or therapy.
I never knew a non-profit could be so motivated and powerful before I was a part of FAST. I am thrilled to have a team of people gunning for exactly what I am--a cure for my son's disease. It's remarkable in the few years of its existence what FAST has already been able to accomplish in raising money for research and grants for a cure. I'm thrilled to be both a part of and a recipient of the good that FAST is doing!
FAST is a wonderful organization that helps spread awareness and raise money for research for Angelman Syndrome. Without their help and generosity, our Angelman community would not have the hope for a better and brighter future. Awareness is the key as many do not know about AS, and do not know the physical hardships those with AS nave. Without awareness, there would be fewer resources to help fund research necessary for better treatments for seizures and cognitive delays. As a parent of a child with AS, I hope that someday my daughter will be free from seizures, and that someday she will have a voice of her own.
My daughter was diagnosied just over a year ago with Angelmans Syndrome. With that diagnosis we were give little to no hope that our daughter would live a happy successful life. Then I met the FAST community. They work tirelessly to find a therapeutic treatment for our children and they have brought the Angelman community together like nothing I have seen or heard of before. They have given me back hope for my daughter. For that I am most thankful because without hope you have nothing.
Foundation for Angelman Syndrome Therapeutics is an amazing organization! It's founder Paula Evans is a mom who saw a need for a focus on development of treatments and an eventual cure and began a mission to do just that. She has stopped at nothing to raise funds and has made a current treatment trial happen. Along with Paula the entire board has worked tirelessly to ensure that the organization stays on a path that will meet the treatment needs of all individuals with AS. Without them the current trial simply would not be happening. Thank You FAST!!!