My Nonprofit Reviews
Review for Starlight Children's Foundation, Culver City, CA, USA
I have lived with Juvenile Rheumatoid Arthritis for nearly my entire life. The complications from this disease and the medications that I take for it are many and painful. I also live with asthma and other conditions. Early last year I was sitting at home unable to do much of anything because I was so sick. It occurred to me to wonder if there was any way for me to connect with peers who also were sick. I was lonely, sad, and had no way to discuss my pain with anyone. After a simple Google search Starbright World came up at the top of the list. I couldn't believe that I hadn't heard of SBW before. I applied to join that day.
SBW has been an amazing influence in my life. Ever since joining I have felt so much less isolated. When I'm too sick to leave the house I still have someone that I can talk to. The people on SBW are friendly and welcoming. It's hard to be sick, but with SBW it gets a little bit easier. You can talk freely about your illness without fear of being judged. People can share their experiences with different procedures and medications and help others through their journey.
If I had to make changes to this organization, I would...
Expand so that more people knew about it. I wish that I had found SBW so much sooner than I did. I'm from a rural area in the midwest and no one here at any hosptial had even heard of Starlight Foundation. I would also make sure that SBW had an app for my phone. A lot of the time I want to log on when I'm in the ER or at the hospital and I don't have my laptop (but have my phone!) And I want to be able to log into chat and talk to people for comfort.
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