Starlight is a wonderful organization working to make children’s lives better. Our family’s life has been touched by their generosity to help make a deeply challenging medical Issue much easier to cope with. They have spread starlight upon us all. Thank you and God bless.
Starlight Children’s Foundation has brought lots of joy to my 5yr old son Andrew who is currently fighting a rare form of Leukemia. Starlight provided Andrew with the most comfortable, and not to mention the cutes hospital gowns. The gowns make Andrew feel like he his wearing pajamas and not the normal hospital gowns.
This organization helped with getting my niece and her family to a Cubs game this past April, and they were able to get some of the Cubs team to meet the family, and they had the opportunity to throw out the first pitch. Class act organization!
so grateful for the product in that it really helped our family when our son was in the hospital to make it feel like it wasnt in the hospital and he was able to be a real kid.
This nonprofit is totally amazing! We are a recipient of the Beautiful gowns and have worn them time and time again throughout many procedures! It’s wonderful to look back at photos and know that he was able to have a moment of just being a kid and show people the muscles on his shirt instead of feeling very sterile and having PTSD about having the standard one put on. So grateful and look forward to the future to see what Moore this nonprofit can do to help others!
Starlight is such a wonderful group! We got to help Jack, their 2018 Design a Gown winner celebrate his fantastic design and special win at a Cubs game this Spring! Starlight has helped put smiles on the faces of so many sick children-wonderful job and mission!!
This organization, headed up by wonderful people, create a warm, fun atmosphere in an otherwise sad and cold environment by adding happiness and fun to hospital stays for sick children. Seeing first-hand how their soft, functional hospital gowns made my now-one-year old daughter more comfortable during one of her many hospital stays was incredible. They are like make-a-wish for hospitalized children. I just wish more people knew about them and their amazing mission and purpose.
I first learned of Starlight when they worked with Michaels for the create a gown contest. A friend of ours, their son, actually ended up winning!!! We were lucky enough to join at the Cubs game when they announced the winner. We met some people from starlight, and it is obvious how passionate they are about what they do. I’ve also since seen, many children who are sick in gowns given to them from starlight. They are an incredible organization. 5 stars for starlight!!!
I have watched Starlight come alongside my friends, the Backe family. The support and encouragement the family received during the design a gown contest was fabulous. We had so much fun cheering them on and joining them at the Cubs game, while also supporting a wonderful cause. This foundation brings joy to children who might otherwise not find it in their current situation.
Starlight has helped my daughter and her friends fighting an ultra rare disease called Alternating Hemiplegia of Childhood, get comfortable and funny gowns to wear during their frequent hospital stays. They have brought joy to my sick child and gave brought smiles to a difficult time.
Starlight has been a wonderful resource for my family! They are a kind, compassionate group of people who are trying to do good things in this world. Keep up the great work Starlight!
Starlight Children's Foundation has been an amazing resource for my niece who has spent the last 15 months caring for a critically ill infant. Her family was blessed to be introduced to this non-profit and to use the resources it provided to assist with the navigation required to care for her daughter as well as her family. We loved watching the design a gown contest, voting for our favorites and learning more about the amazing stories that went along with the entries. Bravo Starlight!
My grandson designed a hospital gown in honor of his baby sisters congenital heart defect, and was selected as the winner of the contest from hundreds of entries. Starlight donated 30,000 gowns to hospitals throughout the country and my granddaughter was able to wear one during her hospital stay this past summer for her 3rd open heart surgery. The gowns help all children feel more comfortable during a difficult time. Starlight does many other things to comfort children during their hospital stay. What an amazing organization!
While we focus each and every day on finding the joy and being grateful for all we have as we navigate this new part of our life- taking care of a critically ill child, the Starlight gown contest added a lot of fun, novelty, and joy to our lives. We met their amazing team, had incredible experiences, and most importantly felt so much pure joy and fulfillment in our hearts making a difference for other hospitalized children, because we know how much it means when someone brightens your day.
One February afternoon, I was waiting for Everly to wake up from one of her 28 minute naps and for Grandma to drop Jack off back home from school. I was flipping through the high risk clinic binder we were given a few days after she was born. In it contained a section entitled “support/resources for families” that I had never had time to really dig into. There were lists of websites. I typed Starlight Children’s Foundation in and up popped the gown contest. Because of Everly’s fragile state, we spent most of the winter months at home, finding ways to have fun around the house. Jack enjoys arts and crafts. This was the perfect activity for a cold, wintery Chicago weekend coming up. I was immediately drawn to the contest because it was win/win. Jack and I would have fun doing an art project together and some kid somewhere was going to get a gown donated from Michaels because of us designing and submitting a gown. We encouraged our family and friends, especially friends Jack’s age, and also people who followed my blog about Everly’s health to design and submit gowns because what an easy way to get a gown to a hospitalized kiddo somewhere, thanks to Michaels. We never imagined that Jack would be finalist, let alone the winner. But we couldn’t be prouder of all he’s done to raise not only awareness to people about bringing joy to hospitalized kids but also the prevalence of childhood illnesses, like CHD.
The first time we noticed a real need for a change in hospital gowns was a few months before Everly was born. Jack had just turned 5 and was having a tympanoplasty which is a skin graft in your ear to fix a hole that hadn’t closed from ear tubes when he was younger. Jack’s two big complaints were about the taste of the sleepy medicine and about the hospital gowns. He just could not get over how he couldn’t wear underwear and how his rear end was sticking out. Afterwards when people asked about his surgery, the majority of the time was spent talking about his extreme dislike for the gowns and how could his parents possibly make him wear that.
Fast forward to designing our Starlight gown… Jack and I just loved the fact that the gowns tied on the side instead of the back and wondered if some day Evie would get to wear a gown like that instead of the traditional tie in the back ones.
Fast forward again and Everly did in fact get to wear a Starlight gown and it was just as wonderful as we dreamed it would be. The bright colors and soft fabric made us feel like she looked more “normal.” It covered up the all the thick chest drain tubes and the bright red incision down her chest and all the millions of IVS and monitors. And for her, I’m sure she enjoyed how soft and comfortable it was. For us, we enjoyed how good it made her look. And don’t we all feel a little better when we look good? I know for me, when I’m living in the hospital, a shower and clean clothes makes me feel like a whole new person. Back to that comfort piece…. I used to be a teacher and I always joked that my best lessons and best student learning took place on Fridays because we got to wear jeans and jeans were more comfortable than dress clothes.
As she came out of the fog of the anesthesia later in the evening after surgery she was pretty grumpy. I asked our nurse if we could get her dressed because she doesn’t enjoy being naked. Plus hospital rooms are super cold. We put her in her gown and she immediately got a little better. And the benefit of the Starlight gown versus the traditional gown... the ties on the sides allowed her to lay comfortable on her back. Can you imagine laying flat in a traditional gown with knots down your spine?
This past surgery (her third open heart surgery before the age of one!) was a rough one. Probably our roughest yet. For a few reasons… 1- she was older and more aware. 2- she was doing so much more prior to surgery, she wasn’t just a little baby who laid around all day anymore like in previous surgeries. 3- although we had complications in all 3 heart surgeries, this one was the worst.
The day before we were gearing up to head home post open heart surgery, Everly was on a mat on the floor playing happily and babbling and interacting with our favorite nurses. We had gotten to go outside that day for the first time since before surgery and the whole team felt that really helped Ev’s spirits. At 4 pm, she was as happy as could be. By 6 pm, she had taken a turn for the worst. She was practically unresponsive and had very labored breathing. By this point since we were anticipating being discharged the next day, everything had been removed except one small peripheral IV. No more central lines. No more chest tubes. For days she was unresponsive, moaning, and just rolling back and forth. It took several days for the ultrasounds and echos and chest xrays and blood labs to show what was going on. Once it was determined what type of infection she had, it was the first time I didn’t feel completely confident that she would recover fully from this infection or that we would be bringing our baby back home. It was the first time all the specialists’ faces dropped and turned white- and these people have seen it all. Lots of discussion. Lots of meetings. New specialists brought in. and then back in when the thick chest tubes that were inserted between her ribs. In went an IV into her neck because all the other IV real estate had been used in the first surgery a few weeks prior. They tried to treat the infection with medications and the chest tube for drainage. Unfortunately, a week after she took a turn for the worst, the team determined surgery that would reopen her chest and wash out the infection was going to be the best and fastest way for her body to fight this infection and give her the best chance at recovery. Thankfully, our team is brilliant and that wash out surgery really did help, combined with a continuous flush and IV antibiotics. This infection sent us back home with a PICC line where I administered IV antibiotics daily and a nose feeding tube because she was too weak to eat on her own for weeks. But thankfully we were able to take our baby home. And that’s just CHD for you. Just when you think you are going down one road to home, the GPS reroutes and back into the operating room you go.
Having Everly wear Jack’s gown in the hospital was really great for our family. I always like to bring things that feel like home… our own blankets, our own socks, our own bottles. This personalized gown was an extra added touch. I spent a lot of days and sleepless nights in the hospital rooms alone with Everly. I couldn’t help but remember highlights of the gown competition and Cubs game while listening to the beeping of the monitors. While Everly is awake, I try to talk to her a lot. Sometimes I run out of things to say after so many days. It was nice to be able to talk to her about the hearts on her gown and who made them and why.
Jack thought it was super cool- phenomenal actually, he must’ve learned that word from You Tube Kids- to see his sister wearing the gown. He thought it was neat that everyone in the hospital knew him when he walked in. The doctors let him have some extra time and privileges in the ICU room with Everly than most siblings get because they knew how awesome and well behaved he was from all his tv appearances. Although we didn’t give him many opportunities to see all wires and tubes and monitors when visiting, his eyes would grow a little larger if he caught a glimpse of everything attached to her, so I think if we dug a little more, he would’ve told us the gown helped her condition to seem less scary. Quite frankly, she was scary enough for him to look at with the gown on. Her eyes were open but no one was home. She’d look right through you. All while moaning.
Jack also really enjoys seeing pics of other kids in the gown he designed. He’s had some tough questions about Everly’s heart. In fact, he even asked Santa for his number one present for Santa to fix her heart. Seeing other kiddos in his gown allowed us to talk about other families going through similar situations that we are.
This year hoping for less times we need to wear our Starlight gowns- less hospitalizations due to illness. And maybe, just maybe - fingers crossed- the next time she needs to wear one she’ll be in the next size.
We are so grateful for the Starlight crew and the nationwide community that has given us so much support. We’ve been blown away by all the msgs for Everly and all the votes for Jack.
"We are proud to support Starlight Children's Foundation," said Todd Mulvahill, President of Papa Murphy's Seattle Co-Op. "Making a difference in our local community is important to Papa Murphy's and we look forward to continuing our support of children and families in the greater Seattle area."
“Starlight is so much more than just toys and games,” says Tanya Ybarra, M.S., C.C.L.S., a child life specialist at California Hospital Medical Center in Los Angeles. “Where you see a can of Play-Doh, I see a tool to help my pediatric patients understand how cancer cells form a tumor, and how we treat it to help them get better.”
“Niagara cares deeply about children and their families and through our corporate giving we aim to support those who face insurmountable challenges,” said Kristen Venick, Director of Niagara Cares. “By partnering with Starlight Children's Foundation we are able to bring some fun and comfort to a child's hospital stay and distract them from the often daunting care they are receiving. We are proud to support this program in all of our Niagara communities.”
Connecting with nature helps children heal. Whether they are learning to cope with a catastrophic injury or a life-changing diagnosis, medically-supervised camp experiences support and empower kids and teens as they gain independence and self-confidence and develop social/emotional, communication, and leadership skills. Specialty programs include those for burn survivors; children who require respiratory assistance; and children living with craniofacial abnormalities, cancer, kidney and liver disease, and other diagnoses. Help bring the joy of camp to kids in your community.
You have the power to stimulate creativity and help kids in your community heal. Art, music, and pet therapy can transform a child’s healing journey and improve health outcomes. Specialized therapists play an important role in a patient’s overall treatment plan, reducing pain and anxiety; improving motor skills and speech and language; enhancing self-esteem and confidence; encouraging self-expression; preparing patients for procedures; and teaching coping strategies that can help children recover from trauma, both emotionally and physically.