My Nonprofit Reviews
Andreaeyes
Review for CF Roundtable (published by the United States Adult Cystic Fibrosis Association (USACFA)), Beaverton, OR, USA
CF Roundtable has always been a strong support mechanism for me. It allows me to see what others in the CF community experience in good times and bad. I usually read the newsletter cover to cover and learn new things from what others do. CF Roundtable is also a good resource for new therapies in the pipeline as well as ideas in dealing with CF.
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Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
A lot
Did the organization use your time wisely?
Quite well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2014
Review for Cystic Fibrosis Research Institute (CFRI), Palo Alto, CA, USA
Great non-profit, puts money towards cf education and research.
Wonderful!
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If I had to make changes to this organization, I would...
not change a thing
How would you describe the help you got from this organization?
A lot
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2014
Review for CF Roundtable (published by the United States Adult Cystic Fibrosis Association (USACFA)), Beaverton, OR, USA
When I first heard about this newsletter 20 years ago, I had been looking for support and finding none. When I got my first issue of Cf Roundtable, I felt connected and less isolated. I usually read the newsletter cover to cover and sometimes a couple of times while waiting for the next issue. It gave me hope to read of others who were living longer and healthier lives with CF. It also allowed me to see how others with the same disease coped with their various trials and tribulations. I could relate to these people who wrote articles and became familiar with those who wrote often.
It is 20 years later and I find myself volunteering for the newsletter and still enjoy the articles from those who share their stories to offer support to alert others to a certain situation that can occur, for instance, after lung transplant or with CF-related diabetes or chronic prednisone use. I still find this newsletter and organization a useful in living with CF.
This year has been exceptional for the USACFA as they are now offering the newsletter for free to everyone and people are respondng very positively by subscribing in large numbers. It is an honor to be part of this organization and hopefully to be part of it for many more years.
More Feedback
Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
A lot
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2013
