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Review for Twin to Twin Transfusion Syndrome Foundation, Inc., Bay Village, OH, USA

Rating: 5 stars  

I do graphic work for the TTTS Foundation from time to time as a volunteer. I owe the TTTS Foundation so much for all they did for me. I was suspected TTTS from 8weeks on but did not "get" TTTS until 3 days before I had to deliver at 28weeks. At 16weeks I was sent to a local "specialist" for TTTS. All that to say that I knew NOTHING about TTTS - it was just letters to me - until I reached out to Mary at the Foundation who promptly replied and gave me a TON of information on boost and bedrest as well as what questions to ask my Dr and what to be looking for and aware of. Had I not known that informaiton I would have been blind throughout. Mary played a key roll in supporting, as my husband was deployed during my pregnancy. Also she gave me contact info bywhich I was able to reachout to Dr DeLia who called me back from his own vacation to give me information and talk with me about my concerns. After my girls were born and home from the NICU I made myself available to the TTTS Foundation however needed as my way of "giving back" to them for all they did for me. At that time I became more and more aware of what all they do and even more-so loved and appreciated all they do!

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Role:  Volunteer