My Nonprofit Reviews
camsmom3
Review for A Kids' Brain Tumor Cure (a/k/a PLGA Foundation), Needham, MA, USA
Two of my children have low grade glioma; one (my older daughter) has required treatment, one has not. When my older daughter was first diagnosed 10 years ago, there was NO organization dedicated to helping find a cure for her type of tumors. PLGA is the first organization to really focus on kids like my girls. Their work has been focused, well organized, and driven by parents who know first hand how much this research matters. In a remarkably short time this organization has made astounding progress in the battle to understand and out-fox low grade brain tumors.
In 2011 my daughter had tumor progression, and had to restart chemotherapy. She participated in a trial funded by PLGA. While the trial was not successful for my daughter, we gained a lot of hope knowing that FINALLY scientists were really working on NEW treatments for kids like my G--and that work was thanks to the efforts of PLGA. To have new drug trials is a huge step forward. PLGA can make that happen.
The work of PLGA IS making a difference, and we are so grateful for their efforts to give kids like mine a future. Thank you, PLGA.
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How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2014
Review for Camp Sunshine at Sebago Lake Inc, Casco, ME, USA
We found Camp Sunshine in February of 2011, nearly 7 years after our daughter was diagnosed with massive diffuse brain tumors. We did not know really what to expect when our family went to Camp the first time: what we found was love, age appropriate activities and fun for each of our 3 children, psycho-social support and community for the parents, and really, a lifeline for our family. Camp has been there for our family during our daughter's relapse in late 2011 and through her new treatments this year, we have been able to return to camp as a FAMILY and recharge for our ongoing battle. At Camp we meet other families who are walking the same path we are, and we are able not only to find strength for ourselves as parents (and information from leading experts in our daughter's disorder), but my daughter is able to laugh, and play, and actually be with other kids like her. We are so grateful for Camp Sunshine and what it has meant to our family.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
