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2017 Top-Rated Nonprofit

A Kids' Brain Tumor Cure (a/k/a PLGA Foundation)

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Nonprofit Overview

Causes: Brain Disorders Research, Cancer, Cancer Research, Health, Philanthropy, Public Foundations

Mission: To find less toxic, more effective treatments and a cure for children battling pediatric brain tumors by accelerating the pace of targeted scientific research. We are a catalyst for individuals and corporations to initiate fundraising projects to support these scientific efforts and to stimulate interest in this orphan disease. We create opportunities for clinicians and researchers to apply for grant funding for start-up, as well as follow through projects.

Results: We have raised $13 million in the past 7 years for targeted pediatric brain tumor research. Awarded 44 basic science and translational research grants at 23 different international medical institutions. Funded 3 national clinical trials and sponsored 8 international conferences for a multi-disciplinary group of medical experts to convene and collaborate and create a strategic direction for the most promising pediatric brain tumor research.

Target demographics: Anyone who has or cares for children or anyone who knows someone who battled/is battling cancer.

Direct beneficiaries per year: Help us find less toxic treatments and a cure by making a donation to ensure that we can continue to fund current pediatric brain tumor research and clinical trials.

Geographic areas served: United States

Programs: Children should fight for their dreams, NOT for their lives.

Community Stories

55 Stories from Volunteers, Donors & Supporters

Donor

Rating: 5

AKBTC Foundation was a great resource when my son was diagnosed with brain cancer. Now, we raise funds for AKBTC with the hope that one of the trials it funds will be the cure for our son. 100% of the proceeds are used for research. It is such an important organization. Please consider donating to AKBTC Foundation.

Volunteer

Rating: 5

great people doing great work for a great cause and I am so lucky to be able to be involved in the organization.

Vicki Seiden S.

Volunteer

Rating: 5

A Kids Brain Tumor Cure / PLGA Foundation is an amazing organization raising money for research for this underfunded disease affecting children. My son and I have been volunteering with and donating to this organization for several years. You cannot find a more dedicated, compassionate, and hardworking group of individuals.

Volunteer

Rating: 5

Awesome charity that provides resources for a worthy cause!

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Volunteer

Rating: 5

I have been volunteering with this organization for several years. A truly dedicated group of individuals helping to give a voice to a greatly underfunded cause.

Volunteer

Rating: 5

As a volunteer for PLGA for many years, I have seen firsthand the positive impact they have made in their community and the fight to find a cure for children's brain tumor. Keep up the awesome work!

Zachary G.1

Volunteer

Rating: 5

I've been able to watch AKBTC grow over the last few years, and have greatly admired the thought and effort that goes into every little bit of planning for events and fundraisers.

Donor

Rating: 5

Attended a packed Think Fit event with 350+ people that raised over $150,000 to benefit targeted pediatric brain cancer research! Great cause!

Volunteer

Rating: 5

Amazing organization that raises funds for research to cure children with brain cancer.

Ellen59

Volunteer

Rating: 5

The AKBTC is an amazing organization. It raises awareness for, and fund-raises on behalf of, much needed research for better treatments for children's brain tumors. They also are a beacon of information, strength and support for families facing the devastation htat their child has been diagnosed with a brain tumor -- providing helpful background, updated treatment information and locations for the best resources for these families. The AKBTC offers hope to future children with brain tumors and their families by supporting new clinical trials to find gentler treatments and hopefully cures for this insipid condition. I believe wholeheartedly that AKBTC deserves your highest ranking and awards.

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Volunteer

Rating: 5

A Kids Brain Tumor Cure is a wonderful organization supporting targeted research to find a cure for children's brain tumors. AKBTC does an amazing job reaching into local communities with events to raise awareness as well as funding for research. They have supported some ground-breaking research, that hopefully will lead to a cure to this dreadful disorder. AKBTC has a terrific, information-filled website and has staff available to help parents and family members who have questions about the disorder, resources available, etc. This is an outstanding organization that is well-run and very focused on its mission. It's a 10 out of 10 in terms of non-profits that deserve funding.

Professional with expertise in this field

Rating: 5

I know from personal experience how many people AKBTC helps each day. The organization supports parents in their darkest hours by working tirelessly to support innovative research and clinical trial options for children battling brain tumors. I cannot imagine what these parents would do without the support of AKBTC.

Professional with expertise in this field

Rating: 5

Low administrative overhead and high return on research investment with new treatments in clinical trials as a result of funding from AKBTC. I can't think of a better equation which adds up, giving hope to children battling the most common forms of brain tumors. With brain tumors rising to the leading cause of cancer death in children, this organization should be a role model for other groups to take action.

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1

General Member of the Public

Rating: 5

My cousin has a brain tumor and she has run out of treatment options, and A Kids' Brain Tumor Cure has given her hope that in the near future there will be other targeted treatments that will help her if the tumor starts to grow again. This would not be possible if this organization had not raised funds and awareness about this brain tumor. I have donated and volunteered to help this organization and I am so glad that they continue to fund research that will make a difference in my cousin's life as well as lives of many other children.

2 Amy Bisson S.

Donor

Rating: 5

Our son was diagnosed at 19 months old with a brain tumor. It didn't take us long to decide that we wanted to give back to the brain tumor community in every way that we could. We were lucky enough to find A Kid's Brain Tumor Cure and with their support, we've raised almost $70,000 since 2014. We couldn't have done this without the support of our friends and families. We will never stop fundraising for a cure.

Volunteer

Rating: 5

I have been involved with AKBTC for the last 7 years as a supporter and champion of raising awareness and funds for pediatric brain cancer research. I have found the foundation to be extremely transparent and goal-oriented. Their mission is clear: to find a cure for pediatric brain cancer, the #1 cause of cancer-related death in children. As a parent of a child who battled a brain tumor, I am intimately familiar with the current treatments for this disease. We desperately need less toxic and gentler treatments and a CURE for this heinous disease and I am forever grateful to AKBTC for leading the charge in funding treatment break-throughs.

Donor

Rating: 5

I have been involved with a number of nonprofits that support the pediatric brain tumor community. This org goes far beyond what similar orgs have accomplished. It is extremely well run and has made unprecedented progress in brain tumor research. The board of directors are a very bright group who make effective decisions resulting in this progress.

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Donor

Rating: 5

This organization has made critical, unparalleled progress with pediatric brain tumor research, and is extremely well managed.

Volunteer

Rating: 5

I have volunteered at six different fundraising events for A Kids' Brain Tumor Cure and have met some of the dedicated individuals who have a passion for eliminating childhood brain cancer. Whether meeting a clinician, volunteer, vendor providing services to the event or families impacted by this disease, everyone shares their energy and enthusiasm and so not only do I feel great about the cause, but I have a fun time at the event as well! I wish I could find more organizations that are able to combine these two elements as seamlessly as A Kids' Brain Tumor Cure.

Professional with expertise in this field

Rating: 5

Very professional organization. One of the first to use money raised for focused and targeted goals related to PLGA. Impressive Board and leadership.

1 Amy_236

Board Member

Rating: 5

This organization continues to build momentum in the research community drawing attention to the most common forms of childhood brain tumors. Making inroads in finding new, more effective treatments is the main mission and there are 3 new clinical trials opening to patients that would not otherwise have happened without the support of the amazing donors. Great organization with very very low overhead and very very high return on dollars invested! Congrats!

1

Donor

Rating: 5

This is an amazing organization focused on research and family support. We have a little friend with a brain tumor and we are so happy to support this organization and it's mission.

2

Client Served

Rating: 5

A Kid's Brain Tumor Cure had been a source of information as well as giving us a great family experience at Camp Sunshine in Maine this summer to relax and also get the latest information on low grade gliomas. Most importantly , A Kid's Brain Tumor Cure is funding research that hopefully will stop my granddaughter's tumor from growing. It is hard to put into words just how much we appreciate their efforts to find a cure for Low Grade Gliomas! Thank you so much !

1

Donor

Rating: 5

A Kids' Brain Tumor Cure means finding a home for this devastating disease, drawing attention to it--and racing against time, against odds, for the life of children who would be lost without it and sharing with their families in a way that enables all of us to care for each other.