My Nonprofit Reviews
Review for Brain Tumor Foundation for Children, Inc., Atlanta, GA, USA
Evan Carswell, my son, was diagnosed at 15 with a rare aggressive brain cancer he died at 16, with his sweetheart Faith (diagnosed with a brain tumor). They were certainly not their disease however BTFC is definitely part of our families. Here’s partly why.
The financial burden of the disease is monumental for families. It is an easy choice between paying $400 for an electric bill and buying two doses of medicine. (or $30,000 for 60 shots) The medicine came first – Evan’s health came first – and our electricity was cut off. Thanks to BTFC’s wonderful Butterfly Fund, our utilities were restored – not once, but twice. And when I called to get donation envelops for the funeral they asked for Evan’s funeral expenses. It felt too much and I protested… but so grateful again for their donation….
Once the treatment starts you realize that in a few short weeks your child will not feel well. About one month into treatment, Evan gave us a ‘bucket list’ – the things he wanted to do in life. As I read it, I prayed that he didn’t see the disappointment and despair in my face as I realized there was no money for fun…no money for making great memories. Having BTFC pay a $30 water bill may seem insignificant to you, but for our family it provided a night at the movies…a night to make memories. BTFC enables families of children with brain cancer a few moments to devote making life somewhat ’normal’ during a period of time that may be the remainder of their life.
Research is vital and my son felt so strongly he donated his brain tissue and BTFC donates too! It is important to know its not that our son died, but that he lived and lived well - with laughter, love, courage, a little romance and faith….he lived his best. Cancer does not change these children…it reveals them.
We are forever grateful for the Brain Tumor Foundation for Children and those who support them! You would need a whole other nomination for the staff there… we are forever joined by my sons illness and death… Ed and I are proud to be their friend.. The staff are just incredible. I just don‘t see how they do so much.
Any words we could think of really mean nothing. We pray the Holy Spirit will translate those feelings we hold in our hearts … but are unable to verbally express “Evan’s Proud Mom and Dad” Jennifer and Ed Carswell
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