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Bettina R.

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1 reviews

Review for Melanoma International Foundation, Glenmoore, PA, USA

Rating: 5 stars  

MIF is an exceptional source of information and support for Melanoma patients and provides much-needed and always up-to-date information in a cancer without established standard of care. The last years have brought a novel therapies in Melanoma and staying informed is already difficult for medical doctors, let alone patients in an emotionally challenging situation. In a disease with many options but few defined ways, information is key. The MIF webinars are simply impressive, easy to understand primers on the latest of what's going on in Melanoma. The forums have been valuable for us time over time- to discuss treatment options, how to deal with side effects and also the emotional impact of being diagnosed with a disease with such poor prognosis. Despite the grim setting, the foundation's approach is positive and pro-active (e.g. the matching grants to support Melanoma research) which distinguishes them from other websites. Catherine Poole, the founder, is an impressive and never-tiring presence who does not hold back to personally reach out to Melanoma experts to help a specific patient. We have made (first virtual, then real) friends over this website. Melanoma is terrible but having a place like MIF was simply wonderful.

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For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

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Role:  Volunteer