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Melanoma International Foundation

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Nonprofit Overview

Causes: Cancer

Mission: To reduce the burden and bring understanding to the journey of melanoma. Through our helpline, online forum, and personal email, we help thousands of patients who are diagnosed with melanoma.

Programs: 1. Patient Outreach: helpline, forum, email assistance to over 5000 patients a year2. Send out our book and other educational materials to thousands.3. Educate: k-8, Save Your Skin Pledge for tanning salon prevention, lunch and learn webinars for early detection to many corporate entities.

Community Stories

154 Stories from Volunteers, Donors & Supporters

3

Client Served

Rating: 5

Nothing but praise for this organization. As a stage IIIC survivor for 8 yrs. My husband called Catherine in the middle of the night looking for answers and was treated with kindness and respect.
When I recurred at my 3 yr mark she was one of the first people I called. She was more knowledgeable about some of the trials than my own doctors. She was always willing to search for answers from one of the advisory board drs if she was unable to answer a question herself.
We really feel she was our guardian angel.

Previous Stories
1

Client Served

Rating: 5

I started out as a client served. My husband found this great organization almost 4yrs ago while desperately searching for answers after receiving my stage IIIC diagnosis. Catherine spent many hours on the phone with us during our most difficult times and offered us accurate information and much needed support. I became involved in the forums when she started them, and have watched them grow into a place where people come from all over the world for support and accurate information. Although I'm currently doing well, she was the first person I turned to when I had my recur last summer. I know she works hard to keep informed of the latest developments. Great Job MIF! Shirley Z

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1

Donor

Rating: 5

MIF is the one website I continually recommend to individuals and families dealing with melanoma for the first time. The compassion and knowledge shared by Ms. Poole and her staff is known internationally. I will continue to share the website with anyone confronting this disease and in need of support and care.

3

Client Served

Rating: 1

My sister has been fighting melanoma for many years. She is a highly intelligent nurse practitioner and her husband is a doctor. They have made it their life's work to investigate treatments for this disease and pass that information on to those in need. She does that through a blog and also through forums such as MIF. If she notices an inaccurate statement concerning these treatments, she will address it with the assumption that others share her concerns. However, the founder of this site apparently does not agree with this premise. In fact, she appears to have ulterior motives. My sister corrected a grossly inaccurate statement made by the founder about the success rate of one treatment option. Instead of being appreciative that this mistake could be corrected, the founder of this site was extremely rude. This is not the first time she treated my sister poorly on this site. I made a post expressing my disappointment. This post was promptly removed and I was "banned for life" from the site. She also removed an entire thread soliciting reviews for this site. I do not feel that the founder has other's best interest at heart.

3

General Member of the Public

Rating: 5

I am appalled at the utterly distasteful attacking I am seeing on here from one single disgruntled person on this date. Seems a bit over the top for them to create so many random profiles trying to attack the good supporters of this wonderful Foundation during a promotional period in which reviews were encouraged (ends in a few days). I feel that they are personally trying to take down an organization that already has now won this promotional period, and therefore these negative reviews will do nothing but show how immature they are. I hope they can find peace and leave well enough alone. All of us supporters have had enough of the hate speech being spewed across the Internet.

1

Volunteer

Rating: 5

This is a wonderful organization that truly puts the patient first in all that they do. I have had the pleasure of volunteering at many of the annual Safe From The Sun walk/5k events, and witnessed so many patients inspired to fight together against this terrible disease. I cannot wait for the next event!

2 Deb V.

General Member of the Public

Rating: 5

This is a wonderful organixation, a clearinghouse of information on melanoma. Cathy is a voice for those needing an advocate, at a time when both emotional as well as physical stresses can be overwhelming.

3 Apostolos V.

General Member of the Public

Rating: 5

My mother is a survivor, and she received excellent help and guidance from MIF. I can't thank them enough for the valuable information and caring they have for melanoma patients. Melanoma is a scary diagnosis for a patient as well as their family, and MIF was able to make this journey less scary and more manageable.

4

General Member of the Public

Rating: 1

I have been a reader of MIF for several years, as a daughter of a melanoma activist. Recently, when my mother has posted information or questions, the response by Catherine Poole has been negative, inflammatory, and vicious. Recently, the knowledge of this expert and survivor has been deleted. I do not believe that a forum filled with animosity and ignorance could be classified as a 'great non-profit.'

Chandler Rose Morris,
Proud daughter of a melanoma warrior.

3

Client Served

Rating: 5

Thank you Catherine Poole and MIF. You are an invaluable resource for all melanoma patients, Stages I through IV. The support provided by the forum is wonderful and the information Catherine and her board provides is the most up to date information a melanoma patient can hope for.

3

Client Served

Rating: 5

15 months ago, I was diagnosed with Stage IIIc melanoma. After speaking with various doctors and melanoma specialists, I found MIF and Catherine Poole. What a godsend! This resource has been invaluable to me and my family for advice, support, and guidance. I wish I could give it 10 stars.

2

Client Served

Rating: 5

I was diagnosed with a melanoma on my cheek just a year ago this coming week. As I did my research on the Internet I came across the melanoma international foundation and Catherine Poole. They helped me find the right doctor and gave me great advice in dealing with my treatment. I had a successful surgery and one year later I am doing great and feeling great. Melanoma international foundation helped me get thru a difficult time.

2

General Member of the Public

Rating: 5

One year ago today I found out I had melanoma, and realized how little I knew about skin cancer. Working in healthcare, I was ashamed. It wasn't until I found MIF that I truly found others going through the same situation I had been going through, as well as finding good, sound advice. I used my ignorance as a "suit of armor" and felt helpless. Because of the Melanoma International Foundation, I was able to educate myself on what questions to ask and to prepare myself for what was about to happen in my life. I was sent information to guide me along in the process as well. MIF is a lifesaver!

2 Rick47

General Member of the Public

Rating: 5

Great help since my wife got diagnosed with melanoma at the age of 33 early this year. Wouldn't know what to do without the support of Catherine Poole & the many great "victims" and caretakers on this forum. BIG THANKS, Rick

1

General Member of the Public

Rating: 5

The initial shock of a Stage IV melanoma diagnosis is an experience I hope fewer and fewer people will experience, as the dangers of sun exposure become more widely understood. In the meantime, I found great solace in the Melanoma International Foundation Forum where knowledgeable people all over the world share experiences, updates on scientific and medical breakthroughs, and resources for treatment options. Catherine Poole, the ever present and supportive founder of MIF, does an exceptional job of moderating the forum and correcting misinformation as it may arise. It has, literally, been a life saver.

1 Brad23

General Member of the Public

Rating: 5

The MIF website has been a wonderful resource for our family during my daughters battle with stage 4 melanoma. The site is moderated by a panel of experts, making it one of the few sites where answers and discussions are vetted for accuracy. It's founder Catherine Poole invests countless hours and has become a valued counselor and friend.

Client Served

Rating: 5

The MIF Online Forum was a great help to me by providing accurate information and emotional support when I was first diagnosed with melanoma. The site is very well moderated. Members are free to speculate about treatments, but misinformation is never allowed to remain on the site. It's a supportive, safe environment and I am certain it has actually saved a number of lives via the accurate info-sharing it facilitates. Kudos to MIF for hosting this excellent and essential forum!

Client Served

Rating: 5

During my biopsies and treatment period IMF was very helpful and informItive.


I want to thank them for their time in answering my questions.

Sincerely,

Frank

Client Served

Rating: 5

I was diagnosed in 2011 with stage IV unkown primary. The information I was reading was devastating on line until I found this website. It gave me hope and knowledge. Anytime I am feeling overwhelmed I get reassurance that I am doing the right things and the most up to date therapies etc. Thank you for giving this mom of 4 boys hope!

General Member of the Public

Rating: 5

MIF is the most valuable resource for anyone dealing with melanoma, either patient or caregiver. The site contains the latest news on treatments, links to other resources and the forums to exchange information. Catherine is very knowledgeable about the disease and has been helping patients for several years.

Client Served

Rating: 5

MIF rocks! The site contains info on incredibly Cutting edge treatments, trials, and resources. The knowledgable, caring and supportive advisors and moderator are phenomenal. There is even a separate forum for care givers. The comraderie is outstanding.

Client Served

Rating: 5

I am so blessed to have discovered MIF. I am a caregiver and found their forum board to be an active wealth of information. and, Catherine Poole is always so prompt to point people in the right direction to get answers if they can't find answers there on the forum. Catherine gave me the contact information and informed me about a clinical trial for my partner who was going down hill quickly and my partner's own melanoma specialist didn't even know where trials were. Within a few weeks she was on the trial and has been doing so much better. I feel this is one non profit that is large enough to be helpful, but has kept true to its mission in that they are attentive to the individual. They are personable, caring, professional and you really feel like you have an advocate. I can't describe what a difference MIF has made in our journey.

msue5

Client Served

Rating: 5

When first diagnosed with Stage2 Melanoma I,like most others turned to the Internet. I was looking for info but also looking for patients. I found a few but this seemed superior to others. There was a moderator(Catherine Poole), there was scientific advisors and it followed the honor code. I have since become Stage 4 and the info I need is found with other posts and Catherine helping suggest trials for patients. The site is current, and very User friendly. It helps to have a Melanoma family. Nobody understands like the people walking in your shoes! Catherine Poole has made this work just like it should.

Previous Stories

Volunteer

Rating: 5

MIF is an invaluable source for Melanoma Patients. I found the site soon after being diagnosed with Stage 2 and continue to use it since progressig to Stage 3. The info on the site is reliable and the emotional support from other members has helped me through some hard times. Catherine is always there with an answer when needed.

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General Member of the Public

Rating: 5

The site provides a great forum for Melanoma patients and caregivers to share information. The service it provides is of critical importance since the care and treatment of this disease is changing dramatically-- to the extent that many doctors are having difficulty keeping up. I check the site daily--check-in with my comrades who are fighting along unseen (but not unheard) by my side--taking from the well of knowledge and adding my small experiential info where appropriate. Also, the woman who runs the site (C. Poole) is well-informed, devoted, and tireless in addressing many of the needs for current information about treatment.

Client Served

Rating: 5

After being dignosed with three melanomas in a fairly short period of time, I felt lost, afraid, and alone. The Melanoma Interntional Foundation (MIF) website and forums helped me get through one of the hardest experiences of my life. The eductional information, coupled with the support I received on the Stage I and Stage II forums allowed me to understand the disease and take some control in my medical care. I absolutely cannot say enough about MIFand the important role it has played in my life.

Client Served

Rating: 5

I am a four time survivor of melanoma. I have been through bio-chemotherapy, regular protocal, and radiation. I have endured four extensive surguries because my cancer spread into my lymph nodes. Each time my cancer came back, I have called MIF and I have received more information and support than I could imagine. They have been wonderful. The staff is so knowledgeable they even knew the doctors in Colorado that I was seeing. I also received so much information on clinical trials, etc. Wonderful, wonderful, wonderful. I believe I am alive today thanks to MIF. If my cancer comes back, I have been told that their is nothing that can be done because I have exhausted my life time of chemo drugs and my cancer spread to close to my chest wall last time. I am a year and half out cancer free.

Client Served

Rating: 5

As a person diagnosed with Stage IV melanoma in 2009, I found your online forums with research professionals informative and hope inspiring. My radiation oncologist even consulted one of those professionals when designing my treatment.
Since MIF makes it a priority to investigate the latest treatments and their results, it makes me feel as though I have an advocate. The knowledge I have gained from reading forums and watching reports by doctors who respectfully treat their audience as an intelligent resource has given me a very positive outlook.
The site really makes me feel like a part of a community of medical discovery, very important for a person going through a disease with so few viable treatment options. When I was first diagnosed I was told that I had about a 13% chance that a treatment would work! Pretty scary stuff.

Client Served

Rating: 5

Your web site is wonderful and I will always appreciate all the help you have provided when I first diagnosed in 2005 until today. You sent me your book which helped to educate me and make me an informed patient. Thank you!

General Member of the Public

Rating: 5

When my sister was diagnosed with metastatic melanoma, I wanted to learn about treatments available and through this website I found all the latest information available.

Client Served

Rating: 5

Always great information and the support you need when you need. Appreciate the personal patient attention! And sharing of up to date news and trials. Great to be an informed patient and this helps us tremendously!

General Member of the Public

Rating: 5

I am melanoma patient who would benefit from these latest innovations. One of the best places to hear about innovation is MIF with the online forums you offer. Thank you, thank you. And when desperate, I have called a couple of times and had the honor to speak with Ms. Poole, a comforting experience.

Client Served

Rating: 5

They were there for me with answers when I desperately needed it. They offered encouragement when my spirits waned. They gave me hope when I felt all was lost. It's difficult to find the words to thank the many dedicated people that serve others on this site especially since most of us at that point in our lives were in a state of shock. It's great to have a friend and especially an advocate in this most difficult journey.

General Member of the Public

Rating: 4

Helps me discover new ways if prevention so that my Melanoma doesn't come back. Helps me not to live in fear or know that I'm alone.

Client Served

Rating: 5

I have found the support and help from the forums to be extremely beneficial. The knowledge of the contributors (doctors, Catherine and other patients) to be very helpful in understanding many medical terms and treatments. The clarification has helped me make appropriate decisions in my treatment and even in my choice of doctor. I had been seeing a local doctor for my stage IV melanoma. I thought he was a melanoma specialist. After reading different responses on the forum I realized he was not. I searched on this site for a specialist. My doctors name kept coming up as well as the cancer center. I have been going there now for three years. I've been tumor free now for 26 months!

General Member of the Public

Rating: 5

The MIF has proved an invaluable source of information and inspiration since my son was diagnosed with Stage IVmelanoma last year. The support and encouragement from melanoma patients is available worldwide and the webinars are particularly helpful. Thank you to Catherine Poole and all contributors to the MIF.

Client Served

Rating: 5

I found the support and help on the forums and the educational webinars extremely helpful for me as a caregiver. The webinars were great at helping understand the treatment alternatives and the members in the forum have been very helpful with both support and info on where to turn. I think this forum is invaluable to patients and families who are dealing with Melanoma.

1

Client Served

Rating: 5

MIF has really impacted my life. My father is suffering from Malignant Melanoma. This is rare disease in India (where we live) and even reputed oncologists are unaware of the treatment. After searching for Melanoma on Google, I found MIF. MIF has helped me throughout the course of treatment. Firstly, my doctors were adamant on just WBRT(whole brain radio therapy) But I was always skeptical about it. I started discussing the issue and asked MIF's help. I got more pertinent answers from MIF rather than from doctors. Armed with the advanced knowledge from MIF, I discussed the issue again with my doctors who then referred us to another hospital having advanced machine. After that, I started discussing my father's case with MIF regularly. They guided me throughout the treatment. From NRAS mutation test to C-KIT, each and every crucial step was discussed. Moreover, I benefited immensely by the experiences shared by other senior members. It is indispensable for people who do not have access to advanced medical services in the field of Melanoma. Apart from creating awareness about Melanoma treatment, MIF provides a lot of emotional support. It provides a vent to all the frustration through which Melanoma Caregiver goes through. I had some ethical issues which were weighing a lot on my mind. I discussed it with MIF and fortunately, I found a senior member who went through the exact same situation. I wont mince my words but it literally helped me decide the most appropriate and peaceful way in which my father will die. I could not expect more.

Client Served

Rating: 5

Since I first googled melanoma upon learning of my husband's diagnosis, the Melanoma International Foundation has been a source of information and support. Armed with the experiences of many others diagnosed with Stage III melanoma, my husband and I were able to intelligently challenge the direction we were given from his plastic surgeon and enabled to select a health care facility that was a Center of Excellence for Melanoma. My husband's melanoma has unfortunately progressed since I first found the MIF forum website but it continues to give us the help we have needed to make intelligent decisions about which treatment path to follow. Right now, Melanoma research is happening at a break-neck clip and being able to learn of other Melanoma patients first hand experience with brand new drugs has helped us feel like we are in control of this awful disease. MIF provides invaluable support for people with melanoma and thie families.

Joshua R.

General Member of the Public

Rating: 5

This is a great resource to have in Pennsylvania. Our non profit (Walk On Foundation Inc) which helps assist those with medical needs is from Pennsylvania and is glad to see different disease specific non profits emerge for all kinds of illnesses. God Bless you and everything you do!

Bettina R.

Volunteer

Rating: 5

MIF is an exceptional source of information and support for Melanoma patients and provides much-needed and always up-to-date information in a cancer without established standard of care. The last years have brought a novel therapies in Melanoma and staying informed is already difficult for medical doctors, let alone patients in an emotionally challenging situation. In a disease with many options but few defined ways, information is key. The MIF webinars are simply impressive, easy to understand primers on the latest of what's going on in Melanoma. The forums have been valuable for us time over time- to discuss treatment options, how to deal with side effects and also the emotional impact of being diagnosed with a disease with such poor prognosis. Despite the grim setting, the foundation's approach is positive and pro-active (e.g. the matching grants to support Melanoma research) which distinguishes them from other websites. Catherine Poole, the founder, is an impressive and never-tiring presence who does not hold back to personally reach out to Melanoma experts to help a specific patient. We have made (first virtual, then real) friends over this website. Melanoma is terrible but having a place like MIF was simply wonderful.

Volunteer

Rating: 5

My wife has advanced muscosal melanoma. Catherine Poole and everybody on the Stage 4 and Caregivers forums have been of tremendous support and encouragement. They are truly my brothers and sisters with Catherine our big sister. We care, support and coach each other without hesitation. The best cancer forum Im proud to be a member of. JeffB

General Member of the Public

Rating: 5

The Melanoma International Foundation website provides outstanding support to anyone who needs to learn about and deal with Melanoma. MIF makes finding the information easy even when the subject is not easy. By providing the forum MIF gives us access to professionals, fellow patients and caregivers all experienced with this terrible disease. If an answer cannot be found, Catherine Poole of MIF will go find it and bring it to the forum. As a caregiver for my father diagnosed with Stage IV Melanoma, this website has been the most helpful resource to me and my family. I have learned so much and feel connected with others, because of MIF I feel I can provide the best support to my father.

Loretta3

Client Served

Rating: 5

MIF has been very helpful in providing information during my sister's journey and subsequent death from melanoma. Our family has participated as a team in the annual MIF walk at Villanova University for the last 4 yrs. We have shared information about this excellent organization with other friends, relatives, coworkers and neighbors. The website is a great resource patient's, families and health care providers. It serves as a reliable information source which highlights the scope of this devastating disease .

Client Served

Rating: 5

As a mother of a child diagnosed with metastatic melanoma stage IV, I searched for all information available to help with our future journey. This web site for melanoma patients, caregivers and doctors was the best find possible. It carries the most current information from research around the globe with access to all selected articles. It also offers a forum for patients at various stages and one for caregivers like myself. My family has used this site to find the doctors and research available to us and have called and visited each of them. We do believe that this site has given us the tools to help our loved one continue her fight against this disease.

Client Served

Rating: 5

When my 34 year old son was diagnosed with stage IV melanoma I was shocked, terrified, and frantic. I found the Melanoma Internantional Foundation site on the internet and started reading. Almost at once I realized it was a highly acedemic yet user-friendly site. Catherine Poole, the founder, president, and a melanoma survivor personally counseled me on the phone when I posted my first blubbering, disjointed questions. I love that so many melanoma warriors and survivors post and counsel along with notable and reknown melanoma oncology specialists . The site is monitored for inaccurate information and filtered immediately. I am always confident in the quality and accuracy of the information I find on the site. The webinars are up to date and always on the cutting edge of any new findings in the melanoma world. I feel like I am making friends and building true relationships at MIF. The sincerity of the staff and bloggers is heart-felt and truely appreciated. I recommend the site anytime I can fit it into a conversation. Cindy Lock, Holyoke, Colorado

Clinton F.

Client Served

Rating: 4

I was recently diagnosed and treated with a stage II melanoma. I was fortunate enough to stumble upon the MIF website through a search on the internet. I attended the recent 5K run at Villanova University which was fun, inspiring and informative, It was great feeling that your part of a family and not alone. I got a lot of great samples and information to keep me connected and educated. I also have posted questions on their forums. it nice not only to get professional answers but answers from real life survivors that have been down this road already. Keep up the great work.

Client Served

Rating: 4

Misdiagnosed by GP's for for 3 1/2 years. Slow rolled by General surgeon for 8 months after being diagnosed with melanoma. Went to Stage IV before learned of this site. That was overf 5 years ago. I am still here at stage IV and not NED. Catherine Poole is an amazing lady that helps us understand what this disease is and how to work it.

Client Served

Rating: 5

Melanoma International Foundation is an outstanding organization dedicated to helping patients and families of those afflicted with melanoma. Their forums and educational resources are invaluable. The forums were especially helpful in finding trials for new medications for melanoma.

Board Member

Rating: 0

I am patient and I mentiene in contact with other patients and current treatment options. This page contains me in ways unimaginable.

Advisor

Rating: 5

This is the only organizations that offers personalzed help for any issue, concern or matter related to melanoma. The dedicated staff ensures that each person helped is treated with respect. Their knowledge and expertise is incredible which bodes well for helping to navigate any person. I would highly recommend anyone with melanoma, or caring for a loved one with melanoma, reach out to MIF.

General Member of the Public

Rating: 5

I had Melenoma in 2007 and the Melenoma International Foundation was exactly what I needed in a time of uncertainty. I was able to get accurate information from people who really cared about what I was going through.

General Member of the Public

Rating: 5

I was amazed and great full for the response that I received regarding this awful disease. The level of professionalism and most importantly I felt like an individual and that someone cared. Catherine is an amazing person and I thank her for her time.

Joslyn B.

Client Served

Rating: 4

I was diagnosed with melanoma and found myself under-informed overwhelmed with emotions and knew no one else who had melanoma. The MIF web site provided me with a source of credible current information and a communication mechanism to others. It was an important resource to see me through the first six months. I try and return the favour by sharing my experiences and giving support to others

Brenda24

Client Served

Rating: 5

My sister was diagnosed with Stage 4 Melanoma. After consulting with 3 doctors at 3 different hospitals, we were given 3 very different treatment recommendations. We used this site extensively to help understand the options and experiences of other melanoma patients. I believe will made the right choice after doing this research, particularly the information contained on this site. Questions most often are answered within a few hours, many times by Dr. Poole.

Volunteer

Rating: 4

I was diagnosed with Clark level III/IV in 2006 depth .43...so I guess u could say I'm one of the lucky ones I've been told. I've had 3 PetCt since some showed hot spots in my jaw/juggler /and cortid but have all subsided on there own, except the one on my parotid still remains at 2.9. My oncologist seems to feel as long as it dose t act up its best to leave well enough alone. I did not do Chemo nor did I have my nodes cked due to I was old about elephantiasis. The melanoma was taken from my left inner thigh. After several months of complaints of left groin pain. Ultra sound of left groion showed mild inflammation in a fewnode but nothing to be ''concerned'' about. So here I am, waiting on the as we all know 7-10yr recurrance issue. Somewhat scary if ask me since I haven't been scanned in 4 yrs now. I do go for my regular screenings and I'm on number 17 for Basel Cell Carcinomas. Tell me am I just being parinoid about thinking it might be time for another PetScan...???

Client Served

Rating: 5

Helped us make sense of a terrifying situation. Directed us to the experts' expert for a second opinion. Well done!

Melissa Rodgers B.

Client Served

Rating: 5

MIF is an invaluable resource for those diagnosed with all stages of melanoma! When I was diagnosed with melanoma in 2008, I learned so much from MIF. The forums were a great place to go for support and encouragement and the entire website is packed with easy to read information. This website became somewhat of a 'friend' to me when I was newly diagnosed. Now that I'm 4 years out, I enjoy helping others on the forum who are newly diagnosed and afraid.

Client Served

Rating: 5

I was diagnosed with two melanomas a few years ago, had them removed, and began seeing my skin cancer doctor once every two months from that point on. In January 2012, I went on a cruise to the Caribbean and, upon returning, found that there was a new melanoma on my back. Although it was smaller than 1 cm, it was still the largest I had up until that point. I was emotionally distraught and unable to function. I found the Melanoma International site, which allowed me to share information, become more educated, and get ideas for how to deal with all aspects of this difficult cancer. In turn, I have been able to correspond with others in similar situations and, hopefully, provide them some comfort and guidance as well. This is an invaluable resources to help deal with what can be a deadly disease.

kylekc03

Client Served

Rating: 5

The Melanoma International Foundation is a powerful advocate for melanoma patients. Additionally through their webinars, forums and scientific advisory board, they keep patients up to date with the latest clinical treatment and guidance, offering a lifeline to patients like myself, giving me more knowledge, tools and perspective from leading experts, a great supplement to my relationship with my own doctors. For example, the recent webinar on Gamma Knife treatment for brain metastasis helped me understand a number of subtle issues that I was not aware of from discussions with my own doctors. Also, the forums help me stay up with the latest clinical trial happenings (i.e. specific information such as from paticipants and recruiting experiences) ,information that would be almost unobtaianable otherwise.

Kathryn R.

General Member of the Public

Rating: 3

I lost my 46 year old husband to metastatic melanoma on July 31, 2010. He fought a 13-month long battle which included surgery, high-dose bio/chemo treatment, and several experimental treatments. It is important to me that the general public understands how aggressive and deadly a cancer melanoma is.

Client Served

Rating: 5

I was diagnosed in June 2011 with Melanoma at age 29. I personally had never met anyone who dealt with melanoma and found no support groups in my area to help me with my diagnoses. While searching the web I came across the Melanoma International Foundation, and I'm so glad I did. Their website answered my questions, referred me to specialist and provided forums where I could interact with others who were going through the same things as me and some who had already be through it(including founder Catherine Poole who regularly answers questions). I don't know how I would've got through without this great resource!

Frank11

Client Served

Rating: 5

I received news within the last six weeks that I have Stage IV melanoma. This has been a most shocking revelation, completely out of the blue, without previous or current other evidence of disease than a tumor on my lung. Such a diagnosis raises innumerable large questions, and, though some of these can be answered by doctors, they are not always there to answer them at the time they arise, not prompt about getting back to patients, and sometimes overwhelming one in a short period of time with information that needs sorting if it is going to be of any use. Besides, in a disease that is as individualized in diagnosis and potential treatment, to what doctor does one go to get the best care? With all these questions and concerns, I have found the one strong and safe refuge through these weeks has been the International Melanoma Foundation, most specifically its forums that have allowed me to interact with and learn from others in my situation who are further along in their journey, and through this and phone and email contact with its most knowledgeable and incredibly available and deeply caring head, Catherine Poole. I dont even want to imagine how much more difficult the road would have been so far without this amazing resource. I cannot praise it and Catherine's guiding hand enough. Just in the past day, I was faced with the stunning news that my cancer may have spread from lung to brain, on the basis of an ambivalent MRI reading. After numerous unsuccessful attempts to contact my oncologist or his office, I turned to MIF and received excellent advice and support from fellow Forum members and Catherine herself that have helped me make good decisions about steps forward and put mind and emotions at ease as I write this, both mine and my wife's. I am so grateful.

General Member of the Public

Rating: 4

I was diagnosed with melanoma in 2009 on my cheek. I had extensive surgery to remove it and was told my chances of it returning we're only 15%. It returned in a node in my neck in feb 2012, I had a full neck dissection but unfortunately it came back 6 weeks later in my neck I now have 3 tumours in my neck and it has spread to my liver. I am currently having decarbazine and radiotherapy on my neck. I am half way through my 20 treatments of radiotherapy and it is brutal..my mouth and tongue are swollen and I have blisters inside my mouth and throat making it impossible to swallow anything other than liquids. I am staying positive because that's all I can do....

Gillian C.

Client Served

Rating: 4

I was diagnosed with MM in 2010, I was very scared by the word Malignant already dealing with CLL (Chronic Lymphocytic Leukemia) I searched on the internet for some realistic advise and understanding on MM and what I should be asking and expecting. With the of MIF I gathered a better understanding and it made the anxiety somewhat less. I knew if I didn't understand I could ask there and they would help me. I knew to ask about a sentinel node biopsy (came back clear) and they explained what a WLE was. Never was I made to feel that a question was dumb, or trivial I still go back and read, knowing that CLL especially now after Chemo Therapy can predispose me for skin cancers...Thank you for your time...Gillian Capewell

General Member of the Public

Rating: 5

This board was so helpful as my mom was battling a rare form of melanoma. I received very knowledgable answers to my questions and the board moderator and medical experts know about all the "cutting edge" research. If I were to come across anyone suffering from melanoma or caregiving for someone with melanoma, I wouldn't hesitate to recommend they join this board. Knowleldgable and compassionate.