Melanoma International Foundation

Nothing but praise for this organization. As a stage IIIC survivor for 8 yrs. My husband called Catherine in the middle of the night looking for answers and was treated with kindness and respect.
When I recurred at my 3 yr mark she was one of the first people I called. She was more knowledgeable about some of the trials than my own doctors. She was always willing to search for answers from one of the advisory board drs if she was unable to answer a question herself.
We really feel she was our guardian angel.

MIF is the one website I continually recommend to individuals and families dealing with melanoma for the first time. The compassion and knowledge shared by Ms. Poole and her staff is known internationally. I will continue to share the website with anyone confronting this disease and in need of support and care.

My sister has been fighting melanoma for many years. She is a highly intelligent nurse practitioner and her husband is a doctor. They have made it their life's work to investigate treatments for this disease and pass that information on to those in need. She does that through a blog and also through forums such as MIF. If she notices an inaccurate statement concerning these treatments, she will address it with the assumption that others share her concerns. However, the founder of this site apparently does not agree with this premise. In fact, she appears to have ulterior motives. My sister corrected a grossly inaccurate statement made by the founder about the success rate of one treatment option. Instead of being appreciative that this mistake could be corrected, the founder of this site was extremely rude. This is not the first time she treated my sister poorly on this site. I made a post expressing my disappointment. This post was promptly removed and I was "banned for life" from the site. She also removed an entire thread soliciting reviews for this site. I do not feel that the founder has other's best interest at heart.

I am appalled at the utterly distasteful attacking I am seeing on here from one single disgruntled person on this date. Seems a bit over the top for them to create so many random profiles trying to attack the good supporters of this wonderful Foundation during a promotional period in which reviews were encouraged (ends in a few days). I feel that they are personally trying to take down an organization that already has now won this promotional period, and therefore these negative reviews will do nothing but show how immature they are. I hope they can find peace and leave well enough alone. All of us supporters have had enough of the hate speech being spewed across the Internet.

This is a wonderful organization that truly puts the patient first in all that they do. I have had the pleasure of volunteering at many of the annual Safe From The Sun walk/5k events, and witnessed so many patients inspired to fight together against this terrible disease. I cannot wait for the next event!

This is a wonderful organixation, a clearinghouse of information on melanoma. Cathy is a voice for those needing an advocate, at a time when both emotional as well as physical stresses can be overwhelming.

My mother is a survivor, and she received excellent help and guidance from MIF. I can't thank them enough for the valuable information and caring they have for melanoma patients. Melanoma is a scary diagnosis for a patient as well as their family, and MIF was able to make this journey less scary and more manageable.

I have been a reader of MIF for several years, as a daughter of a melanoma activist. Recently, when my mother has posted information or questions, the response by Catherine Poole has been negative, inflammatory, and vicious. Recently, the knowledge of this expert and survivor has been deleted. I do not believe that a forum filled with animosity and ignorance could be classified as a 'great non-profit.'

Chandler Rose Morris,
Proud daughter of a melanoma warrior.

Thank you Catherine Poole and MIF. You are an invaluable resource for all melanoma patients, Stages I through IV. The support provided by the forum is wonderful and the information Catherine and her board provides is the most up to date information a melanoma patient can hope for.

15 months ago, I was diagnosed with Stage IIIc melanoma. After speaking with various doctors and melanoma specialists, I found MIF and Catherine Poole. What a godsend! This resource has been invaluable to me and my family for advice, support, and guidance. I wish I could give it 10 stars.

I was diagnosed with a melanoma on my cheek just a year ago this coming week. As I did my research on the Internet I came across the melanoma international foundation and Catherine Poole. They helped me find the right doctor and gave me great advice in dealing with my treatment. I had a successful surgery and one year later I am doing great and feeling great. Melanoma international foundation helped me get thru a difficult time.

One year ago today I found out I had melanoma, and realized how little I knew about skin cancer. Working in healthcare, I was ashamed. It wasn't until I found MIF that I truly found others going through the same situation I had been going through, as well as finding good, sound advice. I used my ignorance as a "suit of armor" and felt helpless. Because of the Melanoma International Foundation, I was able to educate myself on what questions to ask and to prepare myself for what was about to happen in my life. I was sent information to guide me along in the process as well. MIF is a lifesaver!

Great help since my wife got diagnosed with melanoma at the age of 33 early this year. Wouldn't know what to do without the support of Catherine Poole & the many great "victims" and caretakers on this forum. BIG THANKS, Rick

The initial shock of a Stage IV melanoma diagnosis is an experience I hope fewer and fewer people will experience, as the dangers of sun exposure become more widely understood. In the meantime, I found great solace in the Melanoma International Foundation Forum where knowledgeable people all over the world share experiences, updates on scientific and medical breakthroughs, and resources for treatment options. Catherine Poole, the ever present and supportive founder of MIF, does an exceptional job of moderating the forum and correcting misinformation as it may arise. It has, literally, been a life saver.

The MIF website has been a wonderful resource for our family during my daughters battle with stage 4 melanoma. The site is moderated by a panel of experts, making it one of the few sites where answers and discussions are vetted for accuracy. It's founder Catherine Poole invests countless hours and has become a valued counselor and friend.

The MIF Online Forum was a great help to me by providing accurate information and emotional support when I was first diagnosed with melanoma. The site is very well moderated. Members are free to speculate about treatments, but misinformation is never allowed to remain on the site. It's a supportive, safe environment and I am certain it has actually saved a number of lives via the accurate info-sharing it facilitates. Kudos to MIF for hosting this excellent and essential forum!

During my biopsies and treatment period IMF was very helpful and informItive.


I want to thank them for their time in answering my questions.

Sincerely,

Frank

I was diagnosed in 2011 with stage IV unkown primary. The information I was reading was devastating on line until I found this website. It gave me hope and knowledge. Anytime I am feeling overwhelmed I get reassurance that I am doing the right things and the most up to date therapies etc. Thank you for giving this mom of 4 boys hope!

MIF is the most valuable resource for anyone dealing with melanoma, either patient or caregiver. The site contains the latest news on treatments, links to other resources and the forums to exchange information. Catherine is very knowledgeable about the disease and has been helping patients for several years.

MIF rocks! The site contains info on incredibly Cutting edge treatments, trials, and resources. The knowledgable, caring and supportive advisors and moderator are phenomenal. There is even a separate forum for care givers. The comraderie is outstanding.

I am so blessed to have discovered MIF. I am a caregiver and found their forum board to be an active wealth of information. and, Catherine Poole is always so prompt to point people in the right direction to get answers if they can't find answers there on the forum. Catherine gave me the contact information and informed me about a clinical trial for my partner who was going down hill quickly and my partner's own melanoma specialist didn't even know where trials were. Within a few weeks she was on the trial and has been doing so much better. I feel this is one non profit that is large enough to be helpful, but has kept true to its mission in that they are attentive to the individual. They are personable, caring, professional and you really feel like you have an advocate. I can't describe what a difference MIF has made in our journey.

When first diagnosed with Stage2 Melanoma I,like most others turned to the Internet. I was looking for info but also looking for patients. I found a few but this seemed superior to others. There was a moderator(Catherine Poole), there was scientific advisors and it followed the honor code. I have since become Stage 4 and the info I need is found with other posts and Catherine helping suggest trials for patients. The site is current, and very User friendly. It helps to have a Melanoma family. Nobody understands like the people walking in your shoes! Catherine Poole has made this work just like it should.

The site provides a great forum for Melanoma patients and caregivers to share information. The service it provides is of critical importance since the care and treatment of this disease is changing dramatically-- to the extent that many doctors are having difficulty keeping up. I check the site daily--check-in with my comrades who are fighting along unseen (but not unheard) by my side--taking from the well of knowledge and adding my small experiential info where appropriate. Also, the woman who runs the site (C. Poole) is well-informed, devoted, and tireless in addressing many of the needs for current information about treatment.

After being dignosed with three melanomas in a fairly short period of time, I felt lost, afraid, and alone. The Melanoma Interntional Foundation (MIF) website and forums helped me get through one of the hardest experiences of my life. The eductional information, coupled with the support I received on the Stage I and Stage II forums allowed me to understand the disease and take some control in my medical care. I absolutely cannot say enough about MIFand the important role it has played in my life.

I am a four time survivor of melanoma. I have been through bio-chemotherapy, regular protocal, and radiation. I have endured four extensive surguries because my cancer spread into my lymph nodes. Each time my cancer came back, I have called MIF and I have received more information and support than I could imagine. They have been wonderful. The staff is so knowledgeable they even knew the doctors in Colorado that I was seeing. I also received so much information on clinical trials, etc. Wonderful, wonderful, wonderful. I believe I am alive today thanks to MIF. If my cancer comes back, I have been told that their is nothing that can be done because I have exhausted my life time of chemo drugs and my cancer spread to close to my chest wall last time. I am a year and half out cancer free.

As a person diagnosed with Stage IV melanoma in 2009, I found your online forums with research professionals informative and hope inspiring. My radiation oncologist even consulted one of those professionals when designing my treatment.
Since MIF makes it a priority to investigate the latest treatments and their results, it makes me feel as though I have an advocate. The knowledge I have gained from reading forums and watching reports by doctors who respectfully treat their audience as an intelligent resource has given me a very positive outlook.
The site really makes me feel like a part of a community of medical discovery, very important for a person going through a disease with so few viable treatment options. When I was first diagnosed I was told that I had about a 13% chance that a treatment would work! Pretty scary stuff.

Your web site is wonderful and I will always appreciate all the help you have provided when I first diagnosed in 2005 until today. You sent me your book which helped to educate me and make me an informed patient. Thank you!

When my sister was diagnosed with metastatic melanoma, I wanted to learn about treatments available and through this website I found all the latest information available.

Always great information and the support you need when you need. Appreciate the personal patient attention! And sharing of up to date news and trials. Great to be an informed patient and this helps us tremendously!

I am melanoma patient who would benefit from these latest innovations. One of the best places to hear about innovation is MIF with the online forums you offer. Thank you, thank you. And when desperate, I have called a couple of times and had the honor to speak with Ms. Poole, a comforting experience.

They were there for me with answers when I desperately needed it. They offered encouragement when my spirits waned. They gave me hope when I felt all was lost. It's difficult to find the words to thank the many dedicated people that serve others on this site especially since most of us at that point in our lives were in a state of shock. It's great to have a friend and especially an advocate in this most difficult journey.

Helps me discover new ways if prevention so that my Melanoma doesn't come back. Helps me not to live in fear or know that I'm alone.

I have found the support and help from the forums to be extremely beneficial. The knowledge of the contributors (doctors, Catherine and other patients) to be very helpful in understanding many medical terms and treatments. The clarification has helped me make appropriate decisions in my treatment and even in my choice of doctor. I had been seeing a local doctor for my stage IV melanoma. I thought he was a melanoma specialist. After reading different responses on the forum I realized he was not. I searched on this site for a specialist. My doctors name kept coming up as well as the cancer center. I have been going there now for three years. I've been tumor free now for 26 months!

The MIF has proved an invaluable source of information and inspiration since my son was diagnosed with Stage IVmelanoma last year. The support and encouragement from melanoma patients is available worldwide and the webinars are particularly helpful. Thank you to Catherine Poole and all contributors to the MIF.

I found the support and help on the forums and the educational webinars extremely helpful for me as a caregiver. The webinars were great at helping understand the treatment alternatives and the members in the forum have been very helpful with both support and info on where to turn. I think this forum is invaluable to patients and families who are dealing with Melanoma.

MIF has really impacted my life. My father is suffering from Malignant Melanoma. This is rare disease in India (where we live) and even reputed oncologists are unaware of the treatment. After searching for Melanoma on Google, I found MIF. MIF has helped me throughout the course of treatment. Firstly, my doctors were adamant on just WBRT(whole brain radio therapy) But I was always skeptical about it. I started discussing the issue and asked MIF's help. I got more pertinent answers from MIF rather than from doctors. Armed with the advanced knowledge from MIF, I discussed the issue again with my doctors who then referred us to another hospital having advanced machine. After that, I started discussing my father's case with MIF regularly. They guided me throughout the treatment. From NRAS mutation test to C-KIT, each and every crucial step was discussed. Moreover, I benefited immensely by the experiences shared by other senior members. It is indispensable for people who do not have access to advanced medical services in the field of Melanoma. Apart from creating awareness about Melanoma treatment, MIF provides a lot of emotional support. It provides a vent to all the frustration through which Melanoma Caregiver goes through. I had some ethical issues which were weighing a lot on my mind. I discussed it with MIF and fortunately, I found a senior member who went through the exact same situation. I wont mince my words but it literally helped me decide the most appropriate and peaceful way in which my father will die. I could not expect more.

Since I first googled melanoma upon learning of my husband's diagnosis, the Melanoma International Foundation has been a source of information and support. Armed with the experiences of many others diagnosed with Stage III melanoma, my husband and I were able to intelligently challenge the direction we were given from his plastic surgeon and enabled to select a health care facility that was a Center of Excellence for Melanoma. My husband's melanoma has unfortunately progressed since I first found the MIF forum website but it continues to give us the help we have needed to make intelligent decisions about which treatment path to follow. Right now, Melanoma research is happening at a break-neck clip and being able to learn of other Melanoma patients first hand experience with brand new drugs has helped us feel like we are in control of this awful disease. MIF provides invaluable support for people with melanoma and thie families.

This is a great resource to have in Pennsylvania. Our non profit (Walk On Foundation Inc) which helps assist those with medical needs is from Pennsylvania and is glad to see different disease specific non profits emerge for all kinds of illnesses. God Bless you and everything you do!

MIF is an exceptional source of information and support for Melanoma patients and provides much-needed and always up-to-date information in a cancer without established standard of care. The last years have brought a novel therapies in Melanoma and staying informed is already difficult for medical doctors, let alone patients in an emotionally challenging situation. In a disease with many options but few defined ways, information is key. The MIF webinars are simply impressive, easy to understand primers on the latest of what's going on in Melanoma. The forums have been valuable for us time over time- to discuss treatment options, how to deal with side effects and also the emotional impact of being diagnosed with a disease with such poor prognosis. Despite the grim setting, the foundation's approach is positive and pro-active (e.g. the matching grants to support Melanoma research) which distinguishes them from other websites. Catherine Poole, the founder, is an impressive and never-tiring presence who does not hold back to personally reach out to Melanoma experts to help a specific patient. We have made (first virtual, then real) friends over this website. Melanoma is terrible but having a place like MIF was simply wonderful.

My wife has advanced muscosal melanoma. Catherine Poole and everybody on the Stage 4 and Caregivers forums have been of tremendous support and encouragement. They are truly my brothers and sisters with Catherine our big sister. We care, support and coach each other without hesitation. The best cancer forum Im proud to be a member of. JeffB

The Melanoma International Foundation website provides outstanding support to anyone who needs to learn about and deal with Melanoma. MIF makes finding the information easy even when the subject is not easy. By providing the forum MIF gives us access to professionals, fellow patients and caregivers all experienced with this terrible disease. If an answer cannot be found, Catherine Poole of MIF will go find it and bring it to the forum. As a caregiver for my father diagnosed with Stage IV Melanoma, this website has been the most helpful resource to me and my family. I have learned so much and feel connected with others, because of MIF I feel I can provide the best support to my father.

MIF has been very helpful in providing information during my sister's journey and subsequent death from melanoma. Our family has participated as a team in the annual MIF walk at Villanova University for the last 4 yrs. We have shared information about this excellent organization with other friends, relatives, coworkers and neighbors. The website is a great resource patient's, families and health care providers. It serves as a reliable information source which highlights the scope of this devastating disease .

As a mother of a child diagnosed with metastatic melanoma stage IV, I searched for all information available to help with our future journey. This web site for melanoma patients, caregivers and doctors was the best find possible. It carries the most current information from research around the globe with access to all selected articles. It also offers a forum for patients at various stages and one for caregivers like myself. My family has used this site to find the doctors and research available to us and have called and visited each of them. We do believe that this site has given us the tools to help our loved one continue her fight against this disease.

When my 34 year old son was diagnosed with stage IV melanoma I was shocked, terrified, and frantic. I found the Melanoma Internantional Foundation site on the internet and started reading. Almost at once I realized it was a highly acedemic yet user-friendly site. Catherine Poole, the founder, president, and a melanoma survivor personally counseled me on the phone when I posted my first blubbering, disjointed questions. I love that so many melanoma warriors and survivors post and counsel along with notable and reknown melanoma oncology specialists . The site is monitored for inaccurate information and filtered immediately. I am always confident in the quality and accuracy of the information I find on the site. The webinars are up to date and always on the cutting edge of any new findings in the melanoma world. I feel like I am making friends and building true relationships at MIF. The sincerity of the staff and bloggers is heart-felt and truely appreciated. I recommend the site anytime I can fit it into a conversation. Cindy Lock, Holyoke, Colorado

I was recently diagnosed and treated with a stage II melanoma. I was fortunate enough to stumble upon the MIF website through a search on the internet. I attended the recent 5K run at Villanova University which was fun, inspiring and informative, It was great feeling that your part of a family and not alone. I got a lot of great samples and information to keep me connected and educated. I also have posted questions on their forums. it nice not only to get professional answers but answers from real life survivors that have been down this road already. Keep up the great work.

Misdiagnosed by GP's for for 3 1/2 years. Slow rolled by General surgeon for 8 months after being diagnosed with melanoma. Went to Stage IV before learned of this site. That was overf 5 years ago. I am still here at stage IV and not NED. Catherine Poole is an amazing lady that helps us understand what this disease is and how to work it.

Melanoma International Foundation is an outstanding organization dedicated to helping patients and families of those afflicted with melanoma. Their forums and educational resources are invaluable. The forums were especially helpful in finding trials for new medications for melanoma.

I am patient and I mentiene in contact with other patients and current treatment options. This page contains me in ways unimaginable.

This is the only organizations that offers personalzed help for any issue, concern or matter related to melanoma. The dedicated staff ensures that each person helped is treated with respect. Their knowledge and expertise is incredible which bodes well for helping to navigate any person. I would highly recommend anyone with melanoma, or caring for a loved one with melanoma, reach out to MIF.

I had Melenoma in 2007 and the Melenoma International Foundation was exactly what I needed in a time of uncertainty. I was able to get accurate information from people who really cared about what I was going through.

I was amazed and great full for the response that I received regarding this awful disease. The level of professionalism and most importantly I felt like an individual and that someone cared. Catherine is an amazing person and I thank her for her time.

I was diagnosed with melanoma and found myself under-informed overwhelmed with emotions and knew no one else who had melanoma. The MIF web site provided me with a source of credible current information and a communication mechanism to others. It was an important resource to see me through the first six months. I try and return the favour by sharing my experiences and giving support to others

My sister was diagnosed with Stage 4 Melanoma. After consulting with 3 doctors at 3 different hospitals, we were given 3 very different treatment recommendations. We used this site extensively to help understand the options and experiences of other melanoma patients. I believe will made the right choice after doing this research, particularly the information contained on this site. Questions most often are answered within a few hours, many times by Dr. Poole.

I was diagnosed with Clark level III/IV in 2006 depth .43...so I guess u could say I'm one of the lucky ones I've been told. I've had 3 PetCt since some showed hot spots in my jaw/juggler /and cortid but have all subsided on there own, except the one on my parotid still remains at 2.9. My oncologist seems to feel as long as it dose t act up its best to leave well enough alone. I did not do Chemo nor did I have my nodes cked due to I was old about elephantiasis. The melanoma was taken from my left inner thigh. After several months of complaints of left groin pain. Ultra sound of left groion showed mild inflammation in a fewnode but nothing to be ''concerned'' about. So here I am, waiting on the as we all know 7-10yr recurrance issue. Somewhat scary if ask me since I haven't been scanned in 4 yrs now. I do go for my regular screenings and I'm on number 17 for Basel Cell Carcinomas. Tell me am I just being parinoid about thinking it might be time for another PetScan...???

Helped us make sense of a terrifying situation. Directed us to the experts' expert for a second opinion. Well done!

MIF is an invaluable resource for those diagnosed with all stages of melanoma! When I was diagnosed with melanoma in 2008, I learned so much from MIF. The forums were a great place to go for support and encouragement and the entire website is packed with easy to read information. This website became somewhat of a 'friend' to me when I was newly diagnosed. Now that I'm 4 years out, I enjoy helping others on the forum who are newly diagnosed and afraid.

I was diagnosed with two melanomas a few years ago, had them removed, and began seeing my skin cancer doctor once every two months from that point on. In January 2012, I went on a cruise to the Caribbean and, upon returning, found that there was a new melanoma on my back. Although it was smaller than 1 cm, it was still the largest I had up until that point. I was emotionally distraught and unable to function. I found the Melanoma International site, which allowed me to share information, become more educated, and get ideas for how to deal with all aspects of this difficult cancer. In turn, I have been able to correspond with others in similar situations and, hopefully, provide them some comfort and guidance as well. This is an invaluable resources to help deal with what can be a deadly disease.

The Melanoma International Foundation is a powerful advocate for melanoma patients. Additionally through their webinars, forums and scientific advisory board, they keep patients up to date with the latest clinical treatment and guidance, offering a lifeline to patients like myself, giving me more knowledge, tools and perspective from leading experts, a great supplement to my relationship with my own doctors. For example, the recent webinar on Gamma Knife treatment for brain metastasis helped me understand a number of subtle issues that I was not aware of from discussions with my own doctors. Also, the forums help me stay up with the latest clinical trial happenings (i.e. specific information such as from paticipants and recruiting experiences) ,information that would be almost unobtaianable otherwise.

I lost my 46 year old husband to metastatic melanoma on July 31, 2010. He fought a 13-month long battle which included surgery, high-dose bio/chemo treatment, and several experimental treatments. It is important to me that the general public understands how aggressive and deadly a cancer melanoma is.

I was diagnosed in June 2011 with Melanoma at age 29. I personally had never met anyone who dealt with melanoma and found no support groups in my area to help me with my diagnoses. While searching the web I came across the Melanoma International Foundation, and I'm so glad I did. Their website answered my questions, referred me to specialist and provided forums where I could interact with others who were going through the same things as me and some who had already be through it(including founder Catherine Poole who regularly answers questions). I don't know how I would've got through without this great resource!

I received news within the last six weeks that I have Stage IV melanoma. This has been a most shocking revelation, completely out of the blue, without previous or current other evidence of disease than a tumor on my lung. Such a diagnosis raises innumerable large questions, and, though some of these can be answered by doctors, they are not always there to answer them at the time they arise, not prompt about getting back to patients, and sometimes overwhelming one in a short period of time with information that needs sorting if it is going to be of any use. Besides, in a disease that is as individualized in diagnosis and potential treatment, to what doctor does one go to get the best care? With all these questions and concerns, I have found the one strong and safe refuge through these weeks has been the International Melanoma Foundation, most specifically its forums that have allowed me to interact with and learn from others in my situation who are further along in their journey, and through this and phone and email contact with its most knowledgeable and incredibly available and deeply caring head, Catherine Poole. I dont even want to imagine how much more difficult the road would have been so far without this amazing resource. I cannot praise it and Catherine's guiding hand enough. Just in the past day, I was faced with the stunning news that my cancer may have spread from lung to brain, on the basis of an ambivalent MRI reading. After numerous unsuccessful attempts to contact my oncologist or his office, I turned to MIF and received excellent advice and support from fellow Forum members and Catherine herself that have helped me make good decisions about steps forward and put mind and emotions at ease as I write this, both mine and my wife's. I am so grateful.

I was diagnosed with melanoma in 2009 on my cheek. I had extensive surgery to remove it and was told my chances of it returning we're only 15%. It returned in a node in my neck in feb 2012, I had a full neck dissection but unfortunately it came back 6 weeks later in my neck I now have 3 tumours in my neck and it has spread to my liver. I am currently having decarbazine and radiotherapy on my neck. I am half way through my 20 treatments of radiotherapy and it is brutal..my mouth and tongue are swollen and I have blisters inside my mouth and throat making it impossible to swallow anything other than liquids. I am staying positive because that's all I can do....

I was diagnosed with MM in 2010, I was very scared by the word Malignant already dealing with CLL (Chronic Lymphocytic Leukemia) I searched on the internet for some realistic advise and understanding on MM and what I should be asking and expecting. With the of MIF I gathered a better understanding and it made the anxiety somewhat less. I knew if I didn't understand I could ask there and they would help me. I knew to ask about a sentinel node biopsy (came back clear) and they explained what a WLE was. Never was I made to feel that a question was dumb, or trivial I still go back and read, knowing that CLL especially now after Chemo Therapy can predispose me for skin cancers...Thank you for your time...Gillian Capewell

This board was so helpful as my mom was battling a rare form of melanoma. I received very knowledgable answers to my questions and the board moderator and medical experts know about all the "cutting edge" research. If I were to come across anyone suffering from melanoma or caregiving for someone with melanoma, I wouldn't hesitate to recommend they join this board. Knowleldgable and compassionate.

Faced with learning I just became Stage 4 Metastatic Melanoma in December 2009 with the doctors telling me that surgical 'treatment' was no longer an option and I needed to enter a clinical trial if I had any hope of "continuing on" I set out to find assistance from a melanoma specific cancer navigating organization (as my Oncologist Surgeon and Hematologist Oncologist and their 'support' staffs left me on my own to fend for myself in learning about clinical trial options, how it all worked, etc.) I was very fortunate to have found Melanoma International Foundation's website with a huge amount of reliable and current information that was well organized. I also called the offices with some of my questions and was promptly answered by a very helpful, 'live' person, and even though it was 5PM (and on a Friday) Catherine Poole stayed on the phone with me for about half an hour answering all of my questions with patience, compassion, and very detailed knowledge about melanoma treatment options including the mechanics of navigating the maze of steps needed to get into a clinical trial. This is a genuine comment: That I definitely credit Catherine and the Melanoma International Foundation in part that I am still alive (and thriving :) !!) 2 1/2 years later, for to be on one's own to wade through all of the info that is available online when an internet search turns up thousands and thousands of information bytes (only some of which is reliable, much of it is outdated, and all of it is confusing...) is not how to proceed. And in the past 3 years I have yet to find another source, either online or in print, that comes any where near to being as vast and helpful.

As a nurse practitioner and Stage IV melanoma patient, the MIF forum has been extremely beneficial to me, and I am certain it has provided resources to many others. This forum, as opposed to some others, is monitored by personnel with knowledge about the disease. As a medical professional, it drives me crazy to see myths and falsehoods promulgated as valid treatment options on other sites. This site requires that information posted be evidence based. Additionally, I have made personal contacts, who, while I have never met them in person, are now my friends and supporters as I traverse this strange Melanoma Never-land. Hopefully, it has even allowed me to help others when I post information that I have been in a unique position to provide as a medical provider and patient in a phase 1 trial. It is a valuable tool for patients and their families in search of support and information.

I found the Melanoma International Foundation forums after I was diagnosed with melanoma last year. I didn't know much about the disease and was scared. The information on the forums, the website itself, and the support that was provided was amazing and instrumental to not only my mental well being, but also provided me with the questions I needed to ask my healthcare providers. I feel a great sense of relief that MIF continues their educational efforts and that their forums are still maintained and hope that other melanoma patients are aware of this amazing resource. Thank you MIF for all your help!

When I was diagnosed with Melanoma I went looking for answers. I foud MIF during my search and was surprised by the amount of information and especially support you can get from others in your situation. They are a great resource no matter what stage you are in or if you are simply trying to help a friend or relative. I learned a lot from their forums and felt so much better after reading what they and others on the forums had to say about my and their concerns, problems and treatments.GThey helped me tremendously.

After my mother died frommelanoma in December 2010, her dermatologist informed our family abouty this charity. We formed a team, and have been trying to spread awareness to the masses regarding skin cancer.

I live in Australia and was diagnosed with Melanoma to the Lymph Nodes (right Axilla). Being given that news is frightening. I had previously had a Primary Melanoma removed 3 years earlier and none of the experts could believe it had spread. The primary was caught very early. With the shocking news that my life was now threatened everything becomes confusing. You search the net, listen to surgeons and oncologists, look at alternative therapies. One of the calming sources was a visit to the MIF website and reading their personal accounts of survival. It was inspiring. I also emailed the Foundation with questions and received a very prompt reply that was very helpful. I am currently Melanoma free and intend staying that way. A special mention to Herman for his story as I found that the most inspiring. Thanks for being there in my hour of need. Peter Mawer

I am 33 years old was diagnosed with Melanoma in situ in April 2011 and was terrified. This website and group helped me to get through the initial fear and made me realize that I was not the only one sharing this fear. My father is also a stage III melanoma survivor so the comuunications that are shared with survivors like us give us hope and keep us informed of the latest advances in melanoma research. These communications mean a great deal to us. Please keep up the great work!

I was diagnosed with melanoma last year for the first time in July and again (2nd primary site) in August. According to the doctor, it was all very rote - but melanoma is deadly and so much can go wrong. I was terrified. Worse, no one around me really understood. I found the forums at the Melanoma International Foundation and it was like finding a life line. Here were people who not only understood what I was experiencing but who could offer really sound advice. I trust what is posted there because I know that medical professionals are reading there too. What I've read there has helped guide my relationships with my own doctors as well as helped me deal with the diagnosis.

Our family lost our much loved 43 year old brother in Dec-11 to melanoma. We had so little time to process what was happening and to do everything in our power to try to make him comfortable before he was gone. My sister and I recently participated in the melanoma awareness walk at Universal Studios. It felt vey empowering to be doing something by raising money and promoting awareness. When the care giving process was over we felt lost. This walk gave us a goal and was a great way to do something constructive in remembering our brother. We plan to make this a yearly event!

Although I did not find out about MIf until after my daughter died from Melanoma, I have come to see how much good this organization is doing.

I was diagnosed with an early stage melanoma three years ago. I was nervous and scared. I knew very little of melanoma and went on the internet to find out more. I needed answers to all my questions. I found MIF and started reading the forums. Although that alone was informative, I really wanted to know more about how I should view my own situation. So I posted a new topic on the forum. I received many responses, including a few from Catherine Poole. I cannot say enough how important it was to me to hear others stories and the words of encouragement regarding my own post. This is a serious disease and can mentally destroy someone, but this website gave me a much better outlook, a sense of relief, and most importantly, strength. The togetherness of the people on MIF provided the support I needed to look forward to the rest of my life and taught me to be strong in the face of adversity. The site has many wonderful things to help those that suffer from melanoma by way of forums, links, latest research, and the common bond of immediate friendship. I would not be where I am today without the information and voice of reason MIF gave me. I highly recommend this site to anyone wanting to learn more or needing that shoulder to lean on. Thank you to everyone at MIF for the dedication and support in fighting melanoma. It will never be forgotten.

I had just been diagnosed with stage 2 melanoma and, like most in my position, was frightened beyond belief. This website offered great information from those who were in a similar position, as well as those who had expertise in the field. Additionally, it offered hope and encouragement; something that can be lacking with the newly diagnosed. My ending is a happy one (so far), but I still check back on occassion to keep informed.

I had many questions when diagnosed with Melanoma and this site was the most helpful. Also I go quick responses and helped me to make a decision about the treatment options I had.

I have worked with The Melanoma International foundation for may years and have always been impressed with their commitment to the people they serve.

Dr Wong has been attentive, e.g. ordering scans when symptomatic of possible reoccurrence.

I was diagnosed with a late stage melanoma on June6, 2005. At the time, my prognosis was dismal and I was given 6-9 months, 12 months at best. In spite of that, I just celebrated my seventh NED anniversary last month.

Many people still see melanoma as “just skin cancer” and do not know that it is an incurable, and way too often, fatal disease. I consider myself an “odds beater” and feel that because of my unexpected survival, I have a responsibility to educate others about melanoma. So I try to educate (without “preaching”) anyone who will listen to the dangers of melanoma.

To those who have already been diagnosed, I share my story and tell them not to view their prognosis in terms of statistics because I have never believed that I am a number, I am a person. Also, it is important to never give up hope and to surround yourself with supportive, loving people because this is not something you can face alone. I truly believe that my good fortune is the result of exceptional medical care along with hope. No treatment plan by itself can produce positive results. I believe medicine must be combined with plenty of positive energy.

Had I given up and just waited to die I would have missed so much, my daughter’s graduation from college, the marriage of my son to a wonderful woman, the birth of my first grandchild, my 35th wedding anniversary, the chance to make many new friends, and otherwise ordinary daily events that make life so precious.

In the early years of my diagnosis, I received a fantastic book at no charge from MIF, authored by Catherine Poole through my participation in an online patient support group for anyone dealing with melanoma. I thought it was just wonderful that your organization made this available to me without any money changing hands.

I think so highly of MIF that I am nominating them for an annual donation made by my daughter’s employer. Each year they pick a not-for-profit organization that is located close to DC and is small enough for them to feel their contribution can really make a difference. Although I missed the deadline in 2011, you can be sure I will not miss it this year!

Thank you for helping me with my mission to increase melanoma awareness and my personal feeling that one should not let melanoma rule your life…you rule your life while remaining hopeful and diligent. I appreciate this opportunity to express my appreciation for your organization!

Melanoma is not understood by many people. Melanoma Int'l educates and helps families like mine who have lost loved ones.

As a stage 4 melanoma patient, interacting with other patients and caregivers to share information about treatments and research options is essential. The Melanoma International Foundation provides this much-needed experience through its dedicated patient and caregiver forums, allowing people everywhere to connect with each other and share knowledge, experience, and hope. There are not a lot of treatment options for us, and survival statistics are poor. It is easy to lose hope. Being able to easily connect with others going through the same experience has been a key component of my emotional stability during this journey. Without the advice and support of others, I would be lost and alone. The Melanoma International Foundation is a wonderful, caring, supportive organization. I don't know what I would do without it. It deserves every recognition possible.

I was diagnosed mith malignant melanoma. I had surgery after fighting with the insurance company. I did not know what I was getting into. The only thing I knew was that melanoma was deadly. After my surgery, infections and reccuperation from 18 lymph nodes removed. I entered a clinical trial. Unfortunately, I did not get the trial drug, but got the other more toxic drug. After talking with the foundation and getting a better of sense of my options and the positives and negatives, I chose not to go with the interferon. I am now 9 months cancer free. I hope I made the right decision, only time will tell.

The Melanoma International Foundation (MIF) has been an excellent source of information for me since I was diagnosed with melanoma at the end of 2011. Clearly anybody receiving this life changing diagnosis will appreciate the supportive community available through the MIF, but the first thing that the MIF helped me to do was to actualy understand my diagnosis by explaining details included in biopsy reports (details which, I'm sorry to say, many doctors have a hard time explaining) and what this meant for the future. The MIF website is the most informative place I managed to find on the internet. It gave me the support (encouragement, information, hope and strength) I desperately needed at a very difficult time in my life.

The information I have gathered and support received have made my diagnosis a little bit easier to take and work through. Thank you so much MIF. Robert Bruce

My dad was giagnosed with stage IV melanoma and the MIF was very supportive and helpfull to my family helping us deal with a difficult time. They were able to explain the treatment options and give us ideas on how to deal with the disease.

Diagnosed with my fourth and most serious melanoma this February, MIF has helped me to hear how other people cope. With great information on what this cancer is all about, I feel more confident in my care and treatment.

MIF and its members have been a source of comfort, inspiration, and most of all information since my melanoma diagnosis almost three years ago.

When diagnosed with Melanoma the questions I had were numerous and constantly popping into my mind. Thankfully I found this source which allayed some of my concerns and, fortunately for me, allowed me to realize that while I'm by no means "out of the woods", my situation isn't as dire as I immediately assumed it was. I simply didn't understand the prognosis and being able to come to this website with questions and have them answered same day most often was very helpful as my family and I faced this awful disease. I'm now more educated and have even been able to provide guidance to others who were recently diagnosed.

Dad passed away from Melanoma of the eye in 2004 trying to keep awareness in the public eye.

I think this site is excellent. Catherine Poole the moderator is very informed and up-to-date on the latest treatments and research. She is also very kind, caring and supportive towards the patients and caregivers. I used this site almost daily after my brother, Wes, was diagnosed with Stage IV Melanoma in 2008. Catherine and the others on the site provided my family with wonderful information, support and encouragement. I will always take comfort in this.

I am a melanoma survivor. When I was first diagnosed I found this terrific organization and they have helped me to connect with fellow melanoma patients, research physicians and treatment options, and kept me abreast of activities surrounding this challenging disease. Their publication and email information is helpful, interesting and current.

I had a close family friend diagnosed with melanoma and went to the Melanoma International Foundation website to get information and a better understanding of what was he was going through. Unfortunately our friend passed away less than 4 months of being diagnosed but this website was a fantastic resource and very cathartic in assisting me with the loss. MIF also provided insight on how I could avoid melanoma. The personal input by others that had been affected directly or loved ones was great solace during a very trying time. Everyone please put on sunscreen!

The forums were an enormous help when my brother was first diagnosed with stage IV metastatic melanoma. The users and moderator (Catherine Poole) supplied a wealth of knowledge about the most current clinical trials which were his only hope at the time. Feedback was quick and accurate.

The MIF has been a huge psychological support for me, as well as the go to place when I want information on melanoma. I am always telling my doctors about this site. When they are impressed because of the knowledge I have, I give credit to the MIF.

MIF has been a wonderful source of accurate and reliable information for myself and my dealings with melanoma. I can honestly say the information and people found on this site are the best and without a doubt helped me cope with my two brushes with melanoma (both were diagnosed as "in situ).

The information is current and dead on accurate. The supportive forums are my lifelines. As any person who has heard the word "cancer" mentioned to them as a diagnosis will tell you, you need support and encouragement as much as you need the actual medical treatments.

Catherine Poole and her group are always available to answer questions on line or if you need more information she will also reach out to you personally. As a skin cancer survivor, she knows first hand what all of us are going through. She has blazed a skin cancer trail for others and I am grateful that she has.

I am the family researcher. Every family should have one, right? In 2008 my father was was extremely ill; advanced metastatic melanoma. In the process of leaving no stone unturned, I happened upon the Melanoma International Foundation website. I e-mailed Catherine Poole, President of Melanoma International Foundation, directly with some specific questions. She responded immediately, with wisdom and compassion. Her insight and the information she provided at such a desperate time will not be forgotten.

I am so grateful to have found Melanoma International Foundation on the internet. Connecting with others who are battling this disease has helped me in dealing with my diagnosis. Also, the moderators do an amazing job of making sure that accurate information is shared. It has been a valuable tool in my education about Melanoma.
Having Melanoma experts so available and willing to respond to questions has been truly amazing. Such a comfort when facing a life threatening disease.

I found the Melanoma Foundation after just being diagnosed. I was not under general care, so was not receiving any kind of feedback from the surgeon who had removed the malignancy. After thirty days I had an appointment only to find I was being sent for further testing which they would receive within two days and I would have to wait another 30!!!! I requuested a copsy of my lab work and quicly submitted the info online to the Melanoma Foundation. Thank goodness I did! They were quick to tell me I was a low risk, and explain the results to me. Since my surgeon had zero compassion or bed side manner (this is not his specialty) and found it acceptible for me to live three months before giving me the all clear I was releived to talk/chat to other individuals going through the same thing as well as get some professional council on my results! I am happy to report that I feel I have made true friends on this website, and still communicate with some to this day. In addition I visit occasionally to lend my support to other newly diagnosed individuals. This site was a true blessing in my life at a time when it was so needed. God bless the individuals that spend their time to keep it up and runnin!

My Father has Stage IV malignant Melanoma and for the past two years I have been coming to Melanoma International Foundation for help understanding the Doctor's statements, resources available, new ideas for treatments..etc
Melanoma International Foundation's community and its founder Catherine Poole have been amazing and I am really glad that I can go there for help and support. Thank you from the bottom of my heart
Alexandre

In April 2009 my sister suffered a large bleed on her brain. A tissue sample taken during evacuation of the blood indicated melanoma. She was advised by her oncologist that there was no effective treatment and that it was hopeless. We were devastated. We never had known anyone with melanoma; in fact we knew nothing about melanoma. I moved from Washington DC to Dallas where my sister lived so I could be with her . I assumed the role of advocate and desperately tried to educate myself and find help for my sister. Eventually I found Melanoma International. Thru their webinars I learned about treatment options, what tests to ask for, and what clinical trials were available. In their forums, I connected with other families and patients fighting this terrible disease. They reached out to me with information and encouragement. They helped me thru a terrible time. Unfortunately my sister died 9 months after her diagnosis. I regret that I did not know about Melanoma International sooner; we would have pursued a different course of treatment and perhaps my sister would have survived.

At age 60 I was diagnosed with a stage 2 melanoma on the back of my neck. It threw me into a depression and anxiety I had rarely experienced in my life. I was being passed from one physician to the other in a HMO system and couldn't seem to get control of what was happening to me. I reached out to my friends on the forum and they were there for me. I benefited greatly from them through my surgery and that horrible wait to get the final results. I still gain from the site even though I am now three months from my surgery. They played a significant role in my life through this crisis.

I found MIF soon after the "big C" came in to my life, during the time I was absolutely overwhelmed with the task of educating myself - and my family and friends - about the impact of melanoma on my life. From my first visit to their website I was impressed with the professional, level-headed information and knew I had found a trusted resource. I read everything and talked to everyone, however I always counted on returning to MIF for reliable and realistic information. When I needed to locate a new doctor after relocating across the country, their forum was invaluable. When I sink into self-doubt and fear starts to creep into my life again, I turn to MIF for clarification, inspiration and the feeling of support that can only come from fellow melanoma survivors. Recently I have been appreciative of being able to stay connected with the latest news about melanoma through Facebook. In short, I consider MIF to be the leader in melanoma support and education! Thank you!

Recently I was seeking urgent advice trying to understand and source treatment options for my brother who had Melanoma Stage 4. Sadly he died in January. At the time however, Catherine Poole was amazingly responsive and helpful. She was full of suggestions for treatments I could look into and the hospitals that offered them. I was most impressed and grateful to Catherine for helping me.

I am a man living with melanoma. This is the best place to get support and keep up with the very latest information. I am greatful for their efforts.

Our son went through Melanoma treatment between 2006 until the end of 2008. I found the members and team at MIF gave us great support and advice. Catherine was able to assist by convincing BMS to get our son onto the Compassionate use of Ippilimumab even though we had passed the cut off date. The most important thing is that she showed incredible empathy as we were struggling on the other side of the world in Australia.
regards
James

We have greatly benefited from the Melanoma International Foundation website. I was able to get all the latest research information when my mother was first diagnosed. I found an article on a particular clinical trial and connected her with a wonderful doctor. We have viewed several webinars which have allowed us to hear a doctor's perspective on a drug or treatment option before going through the long process of eligibility tests and screenings. I am so thankful for this foundation. It is truly a blessing for me and my family. My mother is doing really well for her stage of disease and has been diagnosed for almost a year! The information we've received from the website may have played a crucial role in her present condition.

After being diagnosed with melanoma in 2007, I found MIf after having seen so much mis-information on the web and even from the medical comunity. MIf has provided clarity on the options availble and the the truth about melanoma. Through the information from MIF I have taken the approiate steps need to help ensure my longterm survial.

My father was diagnosed with Melanoma in early 2009 in China. As Melanoma is relatively rare disease in China, few doctors and pateint communities know about this disease not to mention the effective treatments. We felt very powerless, confused and helpless at the beginning. We turned to Melanoma International Foundation founder Katherine Poole for help after reading about her book about Melanoma in China. Katherine and her foundation community are very kind and helpful. They offer valuable information, provide guidance, even go to the great length to educate doctors in China about the pros and cons of various treatment options. Their help and online service really enpower the patients in China and around the world.

Melanoma Survivor-Stage 3. I have turned to MIF many times for information and I have found that their Web site is the most accurate and up to date. Their hosted bulletin board allows you to connect with other patients and caregivers while still providing accurate information.

This organization provides much needed support and informationthat otherwise would not be found. They are wonderful.

I have beend diagnosed with metastatic melanoma four separate times. My most recent diagnosis this past March left me with little to zero options outside of surgery. I was desperate for help and kept turning for more answers. I was on-line at work one day and searched for Melanoma and came in contact with the Melanoma Internation Foundation. I called the number and spoke with the most knowledgable staff peron. She discussed clinical trials and she was very familiar with the doctors in Colorado and the other treatments I had endured up to that point. I was so thankful to have her in my corner. She knew what I was going through and had been through already. She was positive, encouraging and most of all, full of valuable information.

Very caring professionals and great advice, coaching and counseling. Words can't describe what a great foundation MIF Int'l is.

I was diagnosed with Stage IV melanoma last June in 2010. MIF was great in guiding me through the steps towards the right treatment and consultation with Doctors.

They also helped me financially with a small grant which help me pay for one of my trips to see my Oncologist.

MIF is a great source for information, support and guidance through the whole process.

As a newly diagnosed melanoma patient, I found lots of support and a wealth of information for all the questions I had regarding my diagnosis. I also received lots of comfort and support from others on the site and it helped to put my mind and ease more than I can ever express!!! Wonderful site doing wonderful work!!!

I am a stage 4 melanoma patient who has lived for each update that I receive from this group. I have met several people here that I have never met but are a strong part of my team to beat this cancer. I have had the pleasure of meeting one that moved from ND and now lives in Florida. She has become as close to me as any sister I could ever have. All because of this site.

The Melanoma Internation Foundation supported my family by helping me understand my husbands diagnosis. Catherine was so informative along with everyone that chimed in with answers to my questions. If it wasn't for MIF I would not have know what to expect or even the right questions to ask. The website is a God Send.

This is a wonderful site and a relief to have when dealing with this disease. Members are informative, supportive, and quick to respond to new member postings. It has been an incredible resource for me and my family.

MIF is the site of choice for people diagnosed with melanoma and for their loved ones. The information is up to date,accurate and provides a balance of individual experiences with information on the latest research/treatments. It is here that I come for information that our oncologist cannot give us (I think he is concerned that every case is unique and his answers would only be speculative) and it is here that I am heartened and saddened by peoples experiences but I am constantly amazed at the resiliency of cancer sufferers. MIF is a community of care and personal expertise. It is our lifeline to discuss this terrible disease with people who share it, treat it, have been through it and who can intimately relate to the life changing course of this diagnosis.

MIF is hands-down THE best melanoma site on the net. This nonprofit is filled with the latest information, it's scientifically solid, and it's compassionate and supportive. I just cannot imagine a better combination. This site is a godsend.

MIF is just amazing.

Unbelievably helpful and they really help to keep melanoma patients and their loved ones positive and upbeat.

This website and Catherine and her counselors are just outstanding.

John

MIF was an absolute lifesaver when when I was diagnosed with melanoma in 2010. I received tremendous support on the boards, was able to educate myself with all of the current research and facts on the site and even spoke to and emailed with Catherine. I was blown away by her care and response. I continue to read the boards daily.

When I was diagnosed a year ago, I was told I had an early melanoma and was going to be fine. I always thought Melanoma had one outcome. No one gave me the background information I needed. I paniced after surfing the web. UNTIL I found MIF. They helped me put it in perspective and understand all the ins and outs of pathology reports, future risk and even what follow up I should receive. Most importantly, the forum helped me feel less alone when everyone else in my life kept saying "it's just skin cancer". It is so reassuring to know that my feelings were a normal part of the process and there are others out there going through the same thing. I stick around now to help reassure newly diagnosed patients since I was in their shoes and know how scary those first few weeeks can be. Knowledge is power and peace of mind, and Catherine and her staff provide that and much more!

Catherine is the GREATEST ! She took a personal interest in me--helped connect me with an expert oncologist-and generally held my hand(remotely) as I journeyed through the battle of melanoma. Believe the organization is one of the best for helping and guiding melanoma patients !

I was diagnosted with Melanoma in 2006. After my surgery and subsequent healing I found Melanoma International. Catherine Poole and the others that I speak with on the Forum have been tremendously supportive and I always feel like I know what I'm going through. It's such a great place to just discuss your fears or your hopes. The section for new diagnosis is super to help guide you through this new and sometimes terrifying diagnosis. I try to recommend this site to anyone that has Melanoma or has a family member affected by Melanoma

I have advanced melanoma, and my wife first found MIF on the web. I soon started participating in one of the forums online, and found it extremely helpful, not only emotionally, but professionally. The director, Catherine Pool, called me and discussed my situation, offering phone contacts with leading experts in the field. I used them, and got in a very hopeful and beneficial clinical trial. Because she has a professional advisory board, she is able to give people excellent online advice as to where to seek hopeful treatment and clinical trials. That is perhaps a specialty, encouraging patients with advanced disease to get in hopeful trials, which is important for them, and for the development of good new treatments for the public. Education on sun damage is another emphasis.

Melanoma International Foundation gives people a place to learn reliable information about their disease and talk about it with people who have been there. MIF also does a great deal of education and outreach with the public to try to prevent melanoma. I have found the site, its members and especially the staff helpful, caring, knowledgeable and understanding. MIF is a wonderful resource.

Searching the web for info--I came across MIF and contacted them via E-mail--Catherine called me shortly after receiving my message and talked with me for quiet a while--she suggested a 2nd opinion and helped with transportation --what a blessing! This is a great organization !!

The Melanoma International Foundation is a wondeful organization. The individuals involved are truly the most caring people you'll ever meet.

My husband was diagnosed with Melanoma in 2008; we didn't know where to turn. Our family doctor wanted surgery as soon as possible but we didn't know if the treatment was correct. I researched Melanoma and the Melanoma International Foundation came up, I don't know what made me call, but am glad that I did. The people at the foundation answered my questions and helped us find the right doctor for us. My husband is now under treatment and doing great, we thank our lucky stars everyday for the foundation.

Our first contact with Melanoma International Foundation was February 23, 2007, the day after our 32 year old daughter, Erica, learned (after four and one half years of her original surgery) the melanoma had spread to her liver. Three weeks before she and her husband had just run a marathon. She contacted MIF and they responded immediately offering encouragement in her contacting her original doctors who were experts in the caring of melanoma patients. From February 2007 through her treatments & surgeries & beyond MIF communicated with Erica,checking on how she was doing & if she needed any help, until her death in April 2008. Since then MIF has kept in contact with us, Erica's family. Erica's husband & friends ran in a relay marathon in memory of Erica raising funds for MIF. MIF's philosophy of prevention, early dection & awareness is extremely important as melanoma is on the increase, especially in the younger population. Our family participated in an MIF sponsored event just one year after Erica's death where an award was given in her name. The staff of many volunteers, melanoma survivors, persons being treated with melanoma, & family members were all very gracious & we felt like we had known those we met for years, not just a few hours. MIF has supported our other daughter as she gives talks on Safe From the Sun Awareness with sharing of their literature & handouts on melanoma. We have been extremely pleased with MIF in the way they kept up with our daughter & now our family without any pressure for donations. Thank you MIF!

MIF is a great organization that works with melanoma patients and families. Donations go toward making the families and patients feel comfortable, and help them deal with the situation. They are caring and wonderful people.

MIF is an awesome foundation that I stumbled upon after my brother died from melanoma in 2005. It has wonderful info., feedback, and knowledgeable links.I think it should be given an award.

I received a diagnosis of stage 1V melanoma and had no idea where to turn for help. I saw the MIF site and Catherine's offer to help if anyone had any questions. I emailed her a question about finding a Doctor, and within 5 minutes(I swear), she had responded with 2 names, one of whom is now my oncologist at Memorial Sloan.

As a patient, I did not feel so alone. I am checking the MIF web site often for new information and cure.

My dermatologist office is a sponsor of the 5K Melanoma Walk @ Villanova University. This events just grows each year. My whole family participates. I, personally, have atypical moles that have been removed. My sister has Basal Skin cancer, & my father has Squamous Skin Cancer. So, this cause is dear to my heart.

This site is just the best. When I was first diagnosed with Melanoma I had so many questions and getting so few answers with any of the Dr's. This site is a wealth of information and support for everyone. If youre ever feeling down there is always someone to help you through the dark days. Its the tops.

This is the place to go if you need to know the latest about Melanoma. The feed back, support is wonderful and if the answers to your question is not known, Catherine will go out and ask an expert to find out. It's a place where you feel part of a team, safe and secure, which after being diagnosised with any cancer is difficult to feel. They accomplish this with follow up, caring comments, great information and always posting the latest research which save someones life.

This is a great organization. When my sister-in-law was diagnosed with Melanoma, I directed her immediately to the MIF for it's helpful information, support, and resource guides.

This is a very important site and I found it when my friend was diagnosed with Melanoma. The information they share is invaluable, and the fundraisers important.

MIF is a wonderful resource for those dealing with Melanoma. There is always a friendly, knowledgeable and understanding person standing by. To educate helps ease fears when dealing with a stressful situation such as a cancer diagnosis and the service that MIF provides is invaluable. Thanks for all you do!

MIF was a wealth of info during my Brother's diagnosis, treatment and ultimate death, ocurring from Melanoma. I rec'd personal, one on one help, concerning many issues, that helped our family tremendously during this sad and difficult time. I continue to rec emails and stay current on this deadly disease, which seems to be on the increase by leaps and bounds. My sincere thanks to all of those who keep this nonprofit going!!

Provided wonderful information, resources and support when my father was diagnosed with metastatic melanoma. Website and links were very helpful as were the founder and staff.

The Melanoma International foundation is proactive in an area where early detection can literally mean the difference between life and death. Caherine and her staff have made a huge difference in many lives of individuals and families faced with melanoma. Thihs is the organization worthy of recognition in the fight against cancer and specifically melanoma.

When I was first diagnosed with Melanoma, I searched the internet for answers and only got more confused and scared. Then I came upon the Melanoma International Foundation. All my uncertainty and questions were answered in a timely manner and the outpouring of support from other members really helped me through this most difficult time. This site is truly an asset and it gave me the insight and guidance to battle this disease.

I have received support from the Melanoma International Foundation for the past 6 years since my first diagnosis. The second diagnosis in 2005 and then some questions that were answered involving my daughters biospy. Making sure that it was read properly and a correct diagnosis was made. I truly appricaite everything this organization does and what they stand for they are an excellent non profit foundation, and truly care about people.

My daughter and I have participated twice in a local fundraiser in Toledo, Ohio. It was exceptionally well organized and FUN!! Awareness helps.

I was diagnosed with Melanoma and had to have a WLE on 11/11/08. At 41 it was the scariest thing I had ever dealt with to date. I found the Melanoma Internation foundation and I still write in, Katherine Poole and other melanoma patients always respond with kind heartfelt honest responses. I have met two different women on this website that I speak to separately. I honestly don't know what I would have done without this site, it was a lifesaver over and over again. I LOVE this site it is the best site I ever found for my melanoma, by far!

Over the last two years, I have battled melanoma. This sight was a god-send for me. I had thought I was the only one with this type of cancer and no one could provide me with support or answers to my questions. The MIF was not only there for me on-line, but I was able to call from another country (Canada) and receive immediate caring and kind assistance and follow up. I just can't say enough about the mental support and accurate information that was available.