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Mara S.

229 profile views
2 reviews

Review for Neuroendocrine Cancer Awareness Network Inc, Fort Mill, SC, USA

Rating: 5 stars  

Those of us with Carcinoid Cancer know how hard it is to get correct info and to be diagnosed. Even after we are diagnosed, most doctors do not know how to treat us. With all of this going against us, CCAN is there to get us correct info and to let us know which doctors know how to treat this rate disease. They are just available to talk if that is what we need.

This non profit organization is the best!!

When was your last experience with this nonprofit?

2013

Role:  Client Served
 

Review for Carcinoid Cancer Foundation, White Plains, NY, USA

Rating: 5 stars  

In 2010 I had a gynecological surgery. When the pathology came back, I found out I had carcinoid cancer! No one could tell me much about it, other than it's the slowest growing cancer, so let's just wait and see. Doctors learn about it in med school and will probably never see a case. My oncologist monitored me for 2 years when another tumor was found. I went to the Carcinoid Cancer Foundation, received vital info as well as the names of the stellar physicians who know everything about this disease. I learned you shouldnot wait and see. It spreads to the liver and other places. My tumor was recently removed as was the primary tumor and I owe it to CCF.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Role:  Client Served