My Nonprofit Reviews

Because FAST exists, I have hope. My son has a neuro-genetic condition that fewer than 500,000 people on the planet have. On the maternal 15th chromosome, there is a portion where the gene expression is critical - because it's purpose is to create a protein which helps people learn. It also has other implications. My son has two paternal copies of this chromosome. Some patients with Angelman Syndrome have a maternal copy, but a piece is missing, or in the wrong place. There are all kinds of research efforts in place due to organizations such as FAST. FAST is wholly volunteer-run. FAST is amazing. FAST holds an annual event in December to raise funds and recognize the parents, bring us together under one roof for fellowship. Because of the recently begun Minocycline clinical trials, which FAST has been instrumental to, I have hope. As a single (divorced) mother to a child with Angelman Syndrome, I sometimes struggle to smile while I am at work. My son brings me a lot of happiness when I am at home. FAST helps me smile when I get frustrated because I know they are dedicated to curing Angelman Syndrome. They will not stop until there is a cure. And the knowledge that they gain is not limited to AS but could potentially serve Autistic or Alzheimer's patients and Epileptic patients. This is life-changing and I will be forever grateful to these people and their dedication.

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