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Review for Foundation for Angelman Syndrome Therapeutics, Downers Grove, IL, USA

Rating: 5 stars  

My daughter has Angelman Syndrome, a rare neurogenetic disorder. When you recieve the phone call that your child has a genetic disorder and will never speak, will suffer from seizures, and will need care and assistance her entire life, the future can start to look very bleek and scary. The work that FAST supports has shown that there is a light in that future! This research not only has the potential to impact those of us with children who have AS, but the implications of the work FAST supports reaches far and wide- through the autism, alzheimers, and even more communities!!! If the work that FAST is doing creates what is essentially a cure, or even close to it, for AS- a GENETIC CONDITION- then that would open up so many possibilities and provide so much HOPE that a therapeutic cure could be found for all genetic conditions. This research will help my daughter find her voice. And that, that is priceless.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Role:  Client Served & stay at home mother.