My Nonprofit Reviews

Having a child with a rare syndrome (Angelman Syndrome) and living in a fairly remote part of the world (New Zealand), my outlook for the future had been fraught with anxiety, and the journey had been a lonely and isolating experience. However, since the formation of the Foundation for Angelman Syndrome Therapeutics, my entire outlook on the future has done a dramatic turn-around. Paula Evans and the Board of FAST are the most dedicated team we could wish to have on our side. As a non-profit organisation, they willingly share their own time and expertise in a relentless quest for a 'cure' - a search for therapeutics that will help our children lead better lives. FAST’s integrity and their proactive approach as they tackle this challenge, have also inspired parents around the world. They have united us into a strong global community, offering uplifting friendships, vital and relevant information, and wonderful day-to-day support. As a non-profit organisation run by volunteers, I want to sincerely thank the Board of FAST for raising the bar so high. They pursue their objectives with thoroughness and vigour, and are definitely the FAST-est on the block. Well done for the successful funding of the current clinical trials which have gained so much international attention. I am VERY thankful to be part of such an outstanding organization!!

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