My Nonprofit Reviews

I am volunteering with CDHInternational currently, and in the past on multiple occasions and in various roles, to support families as they make their way through this path with congenital diaphragmatic hernia. My son was born with CDH 22 1/2 yrs ago, and I have been a part of this community of support almost since that first year he was born. The friends and family I have made through this group are in many ways closer than my own family, because we KNOW what we each are going through, and even though few of us live near enough to meet in person, we still support each other the best way we can. CDHinternational has done amazing things to help the CDH community, and I often think of it as the little charity that could... starting from a kitchen table, to an international organization helping families in 70 countries around the world.

over 15 years ago my son was diagnosed with CDH. Back then there was not much available online, but I happened to find CHERUBS... within a couple of weeks I received a packet of information, and those first few years of craziness dealing with a very complex child I had support from all around the country. I have made friends who have been there during the ups and downs these last 15 years, people who KNOW what it is like to deal with such a devastating birth defect that might take your child at any time. He is still with us, despite nearly losing him several times, and I am grateful to know that I am not alone. AND thankfully can share with others that they too are not alone, and perhaps by sharing our stories can also raise awareness for this birth defect, as well as to help other families know what the road ahead might be like so they aren't taken as unaware as those of us in those early days.

More Feedback