My Nonprofit Reviews

Having a child with a birth defect plus many complications means that I have had experience with several different non profits over the years. There are NONE in my opinion that ever met the standards set by CDH International. Not only are the staff and volunteers at CDH I caring, compassionate, and knowledgeable, but the services provided, the awareness, research, and so much more are stellar. For a charity with such a small budget, they go above and beyond to help, making sure to use a minimal amount on overhead so as much money raised as possible goes where it really matters. From an app for families, doctors and hospitals, to volunteers all over the world, speakers and representation at numerous conferences, an annual telethon and when possible a CDH conference, supporting research, so much is done with nothing more than families and children at the heart. I wish I could give CDH International more than 5 stars, because they have surely earned it.

I have never seen a non profit work harder to meet the needs of families and children, while also reaching out to medical professionals and researchers. When choosing where to spend our donations CDH International is one of the standards we use to decide where to send our hard earned funds, because they are one of the few that are able to do an amazing amount of work with the money donated actually going to the families and research rather than to office expenses and further fund raising accounts. Families helping families... for the babies. I am a volunteer for CDH International, as I don’t want other parents to ever feel like they don’t have someone they can talk to when they have a child born with such a complicated birth defect. That is one of the reasons many of us volunteer. Since 50% of our babies don’t even live much past birth, we want to do our part to help.

I am volunteering with CDHInternational currently, and in the past on multiple occasions and in various roles, to support families as they make their way through this path with congenital diaphragmatic hernia. My son was born with CDH 22 1/2 yrs ago, and I have been a part of this community of support almost since that first year he was born. The friends and family I have made through this group are in many ways closer than my own family, because we KNOW what we each are going through, and even though few of us live near enough to meet in person, we still support each other the best way we can. CDHinternational has done amazing things to help the CDH community, and I often think of it as the little charity that could... starting from a kitchen table, to an international organization helping families in 70 countries around the world.

over 15 years ago my son was diagnosed with CDH. Back then there was not much available online, but I happened to find CHERUBS... within a couple of weeks I received a packet of information, and those first few years of craziness dealing with a very complex child I had support from all around the country. I have made friends who have been there during the ups and downs these last 15 years, people who KNOW what it is like to deal with such a devastating birth defect that might take your child at any time. He is still with us, despite nearly losing him several times, and I am grateful to know that I am not alone. AND thankfully can share with others that they too are not alone, and perhaps by sharing our stories can also raise awareness for this birth defect, as well as to help other families know what the road ahead might be like so they aren't taken as unaware as those of us in those early days.

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