My Nonprofit Reviews
Review for Discovery Eye Foundation, Los Angeles, CA, USA
I was diagnosed with keratoconus thirty years ago. As a result my eyesight problems have gradually worsened over the years, and despite ongoing development of new rigid contact lens, my eyes have suffered repeated corneal scratches and injuries, to the point where cornea transplants seemed inevitable. The problem is sufficiently unusual and rare that even my wife did not have any real understanding of KC. Fortunately, my corneal specialists are on the leading edge of medical advances and after decades of trying new lenses, my latest scleral lenses have been injury free, and I learned about NKCF from their office. Since then, my wife and I attended a half-day program in Chicago presented by NKCF for patients and family members. One of the featured speakers was one of my doctors. Everyone who spoke helped my wife to better understand my condition, and increased my knowledge and perspective on my own condition. Patients attended from three or four states, some of spent hours travelling to the program. NKCF also has an email list of patients and professionals exchanging information to help each other. Recently, from there I learned of a new keratoconus lens available in Europe and patients' experience using it. This is another encouraging benefit of NKCF. Now I have reasons to hope that I will never need corneal transplants. NKCF has helped me improve my quality of life and hope for future years of stable and possibly improved vision. Too many people take eyesight for granted.
I've personally experienced the results of this organization in...
Illinois as a keratoconus patient.
If I had to make changes to this organization, I would...
Give it greater funding resources.
How would you describe the help you got from this organization?
How likely are you to recommend this organization to a friend?
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When was your last experience with this nonprofit?
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What, if any, change in your life has this group encouraged?
Having sufficient eyesight quality to read, write, and drive is critical to my professional and personal life. My hopes for ongoing functional eyesight were decling and my wife did not understand keratoconus and its impact on me until we attended a half-day program sponsored and conducted by this organization. Now my wife has a basic understanding of keratoconus and its impact on me, I have more useful knowledge to help me compensate for my condition, and I am more hopeful that I will preserve or improve my eyesight, notwithstanding my keratoconus. All of these things have improved my life and hopes for the future.