My Nonprofit Reviews

I was diagnosed with keratoconus thirty years ago. As a result my eyesight problems have gradually worsened over the years, and despite ongoing development of new rigid contact lens, my eyes have suffered repeated corneal scratches and injuries, to the point where cornea transplants seemed inevitable. The problem is sufficiently unusual and rare that even my wife did not have any real understanding of KC. Fortunately, my corneal specialists are on the leading edge of medical advances and after decades of trying new lenses, my latest scleral lenses have been injury free, and I learned about NKCF from their office. Since then, my wife and I attended a half-day program in Chicago presented by NKCF for patients and family members. One of the featured speakers was one of my doctors. Everyone who spoke helped my wife to better understand my condition, and increased my knowledge and perspective on my own condition. Patients attended from three or four states, some of spent hours travelling to the program. NKCF also has an email list of patients and professionals exchanging information to help each other. Recently, from there I learned of a new keratoconus lens available in Europe and patients' experience using it. This is another encouraging benefit of NKCF. Now I have reasons to hope that I will never need corneal transplants. NKCF has helped me improve my quality of life and hope for future years of stable and possibly improved vision. Too many people take eyesight for granted.

More Feedback