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ellen

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2 reviews

Review for Neuroendocrine Cancer Awareness Network Inc, Fort Mill, SC, USA

Rating: 5 stars  

THE CARCINOID CANCER AWARENESS NETWORK helps change lives of those living with carcinoid cancer. They help to educate, motivate, and emotionally support patients and their families. My experience with the carcinoid awareness network has been nothing but positive. They have help me to find doctors better understand my diagnosis. They've also help me to communicate with other people but the same diagnosis and find support.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

Role:  Client Served
 

Review for Neuroendocrine Cancer Awareness Network Inc, Fort Mill, SC, USA

Rating: 5 stars  

When I was told I had carcinoid go on the internet and look it up, I found all kinds of information ,some trying to sell me things. I was scared and upset. Carcinoid as I was told was rare and no one knew very much about it. All I could think was what now? I went back to the internet and found Carcinoid Cancer Awareness Network with a phone number. I called and was sent all kinds of up to date information. This information has been lifesaving. CCAN has and is always there for me to this day as I head into 4 years past diagnois. I don't know how I would manage without them.

I've personally experienced the results of this organization in...

When ever I have a question all I have to do is call. I am sent information on events where I have learned new studies and the results and how to monitor carcinoid.

If I had to make changes to this organization, I would...

I really do not know of any changes I would make. They have been wounderful.

Role:  Client Served & I have shared this information with others.