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Tom D LI

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2 reviews

Review for Neuroendocrine Cancer Awareness Network Inc, Fort Mill, SC, USA

Rating: 5 stars  

NCAN has been a lifesaver for me by educating me about my rare cancer and its treatments. Cancer is scary enough but I feel empowered by the knowledge that I have gained to have an informed conversation with the many doctors who treat me and the new treatments they offer. I am amazed at the high quality programs that they offer to patients, caregivers, and healthcare providers with minimal costs to participate. I am also deeply thankful for the many friends I have met through NCAN.

Role:  Client Served
 

Review for Neuroendocrine Cancer Awareness Network Inc, Fort Mill, SC, USA

Rating: 5 stars  

I learned about CCAN after having surgery for a pulmonary carcinoid and have found them to be of enormous help in understanding the nature of my disease.

- Upon my first contact, I was greeted warmly and had many questions answered, including contacts of people willing to speak to me about their experience with this rare disease. I also received a large package with all types of information.

-Meetings are well focused and very informative.

-CCAN hosts a variety of conferences and other events that bring the top physicians in the field to educate patients and support people on the latest developments and answer questions.

- The management team at CCAN is very dynamic and is a major force in raising awareness about this rare disease at all levels.

I've personally experienced the results of this organization in...

I have learned how to manage my disease by developing a working knowledge of how carcinoid is different from other cancers and how and why it is so often improperly treated by physicians who may not be aware of these differences and how to treat them.

If I had to make changes to this organization, I would...

I have no specific suggestions, as they have far exceeded my expectations. I personally plan volunteer to help out more in upcoming events.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Through the internet.

What, if any, change in your life has this group encouraged?

This group has taught me to learn as much as possible about my disease and to be my own advocate.

When was your last experience with this nonprofit?

2011

Role:  Client Served & I participate in meetings and activities.

Thank you for the wonderful review! See you in August for the conference. Stay well.