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2013 Top-Rated Nonprofit

In Need of Diagnosis

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Nonprofit Overview

Causes: Health

Mission: In Need Of Diagnosis, Inc. (INOD) is a resource center for those who suffer with illnesses that have eluded diagnosis. INOD advocates for medical protocols that increase the accuracy and timeliness of diagnoses.

Target demographics: all individuals

Direct beneficiaries per year: 23589

Geographic areas served: International

Programs: research, support, advocacy, education and referral services to persons struggling with a undiagnosed medical condition.

Community Stories

4 Stories from Volunteers, Donors & Supporters

Lynne11

Donor

Rating: 5

Marianne and her staff have helped so many people as both support and a sounding board for people how just do not know where to turn with their health issues. They are the most caring individuals and do everything in their power to point people in the right direction to learn more about their issues. We need more organizations like this one.

Previous Stories

Donor

Rating: 5

INOD is an organization that is greatly needed in our society. I have had the fortune of being able to work with Marianne and to see the hope and inspiration that she gives to everyone that contacts INOD. Most of the people that contact INOD have been through years and years of going to doctors and being practiced on to try to find out what is wrong with them. INOD is the ray of hope that they have been looking for.

1

Donor

Rating: 5

I am a financial and moral supporter of and firmly believe in "In Need of Diagnosis" (INOD) I have a close friend, President of a large, regional institution in Northeastern Pennsylvania. Early middle age and seemingly robust and in good health, about 4 years ago, I noticed he had a slight limp but said nothing. Perhaps a racket ball injury? A few months later, I noticed a considerable limp. When asked about his limp and was he hurting, he told me he is now wearing leg braces and his health and mobility were deteriorating. No one had been able to diagnose the problem. Almost by happenstance, as he was approaching the need of a wheel chair, one of his doctor’s mentioned that he would like to try a gluten test. To make a long story short, he never ended up in a wheel chair, the braces came off and he is now healthy, fully productive and comfortable(and now drinks a better, albeit guten free vodka). All this could have been avoided, had a diagnosis been more readily available. He was one of the lucky ones. My favorite program is “House”, I see the trials and tribulations along with the pain and suffering of both patients of Dr. House and the patient’s family. While the ending isn’t always happy or pretty, it always brings home the frustration, pain and suffering of Dr. House’s patients, usually after having seen many other health care providers without success. The biggest problem with this program "House" is not it’s medical authenticity, because it is based on actual medical cases, but the fact that Dr. House and his department doesn't exist anywhere in real life. This part of the medical profession does not truly exist. There is not a specialty in diagnosis. Medical providers these days tend to be more specialists than generalists. A uncommon case can be sent from one medical provider to another, many times without a resolve. My sister, Marianne Genetti the founder of "In Need of Diagnosis" has suffered many years with undiagnosed ailments which are still with her today. She has been an intense and serious student of the medical system regarding this subject for many years. Her personal frustrations and lack of a diagnosis has caused her quality of life and her mobility to be less than desirable. I believe that INOD can be an important catalyst for bringing to the forefront, the need for more autopsies, developing a specialty of diagnosis, a resource for people who have lost all hope in finding out what physically ails them. I have been a financial contributor as well as having spent many hours discussing INOD with Marianne, who has focused most of her energy toward furthering the goal of INOD in helping people get appropriate treatment and have a better quality of life. I salute Marianne and her creation, "INOD" and encourage all to assist her in her endeavors to help people who have given up hope to find answers, and hopefully, effective treatment. Gus Genetti, President Genetti Hospitality Group INC, Wilkes-Barre, PA

6

Donor

Rating: 5

It is wonderful that this nonprofit exists. We are all taught to go to the doctor when we are sick but it is never suggested that the doctor might not know what is wrong. And when that happens, there is no plan B. In Need Of Diagnosis, Inc. presents options and ways to find doctors who think differently and knows about tests that often haven't been run. It is a big help and hope to find that there are other avenues that can be investigated.