My Nonprofit Reviews
Review for In Need of Diagnosis, Orlando, FL, USA
I am a financial and moral supporter of and firmly believe in "In Need of Diagnosis" (INOD) I have a close friend, President of a large, regional institution in Northeastern Pennsylvania. Early middle age and seemingly robust and in good health, about 4 years ago, I noticed he had a slight limp but said nothing. Perhaps a racket ball injury? A few months later, I noticed a considerable limp. When asked about his limp and was he hurting, he told me he is now wearing leg braces and his health and mobility were deteriorating. No one had been able to diagnose the problem. Almost by happenstance, as he was approaching the need of a wheel chair, one of his doctor’s mentioned that he would like to try a gluten test. To make a long story short, he never ended up in a wheel chair, the braces came off and he is now healthy, fully productive and comfortable(and now drinks a better, albeit guten free vodka). All this could have been avoided, had a diagnosis been more readily available. He was one of the lucky ones. My favorite program is “House”, I see the trials and tribulations along with the pain and suffering of both patients of Dr. House and the patient’s family. While the ending isn’t always happy or pretty, it always brings home the frustration, pain and suffering of Dr. House’s patients, usually after having seen many other health care providers without success. The biggest problem with this program "House" is not it’s medical authenticity, because it is based on actual medical cases, but the fact that Dr. House and his department doesn't exist anywhere in real life. This part of the medical profession does not truly exist. There is not a specialty in diagnosis. Medical providers these days tend to be more specialists than generalists. A uncommon case can be sent from one medical provider to another, many times without a resolve. My sister, Marianne Genetti the founder of "In Need of Diagnosis" has suffered many years with undiagnosed ailments which are still with her today. She has been an intense and serious student of the medical system regarding this subject for many years. Her personal frustrations and lack of a diagnosis has caused her quality of life and her mobility to be less than desirable. I believe that INOD can be an important catalyst for bringing to the forefront, the need for more autopsies, developing a specialty of diagnosis, a resource for people who have lost all hope in finding out what physically ails them. I have been a financial contributor as well as having spent many hours discussing INOD with Marianne, who has focused most of her energy toward furthering the goal of INOD in helping people get appropriate treatment and have a better quality of life. I salute Marianne and her creation, "INOD" and encourage all to assist her in her endeavors to help people who have given up hope to find answers, and hopefully, effective treatment. Gus Genetti, President Genetti Hospitality Group INC, Wilkes-Barre, PA
I've personally experienced the results of this organization in...
I read of the lives that hae been touched with what little resources INOD has. Just imagine what could be done with even a little bit more.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?