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meggsg

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2 reviews

Review for Association Of Birth Defect Children, Inc. dba Birth Defect Research for Children, Orlando, FL, USA

Rating: 5 stars  

There is a National Birth Defect Registry but not because our Government created it. It exists because one couple had a child born with a birth defect who created a nonprofit to study birth defects in children. It was from that nonprofit that the Registry developed. Now it is possible to spot geographic areas were there are clusters to birth defects which may reflect a problem in the environment. Identifying the source of the problem can prevent more children from being born with defects. It is difficult for BDRC to attract sustaining funding. Once the nature of a birth defect has been identified, the parents naturally gravitate to the nonprofit for that particular birth defect and that is the organization they financially support. Large national charities that deal with birth defects hesitate to provide funds to Birth Defect Research for Children (BDRC). Their funding frequently comes from large corporations, many of whom shy away from possible controversy as drawing a link between environment contamination and birth defects. BDRC is literally a godsend to families who have children born with birth defects. They need more recognition and financial support.

I've personally experienced the results of this organization in...

I am familiar with many of the stories of the families who have contacted BDRC and the infomation, as birth defect fact sheets, and support they have received.

If I had to make changes to this organization, I would...

Have it become better known for the wonderful services it provides to birth defect families.

What I've enjoyed the most about my experience with this nonprofit is...

It is passionately driven. Highly ethical. Provides excellent information.

The kinds of staff and volunteers that I met were...

BDRC has a wonderful Board of very dedicated volunteers. Betty Mekdeci, who with her husband, Michael, co-founded BDRC is a powerhouse and a pace setter in the field of birth defects.

If this organization had 10 million bucks, it could...

Expand into new areas of birth defects as, perhaps, autism. Betty brings a unique perspecitve to birth defects and any area that would be given her attention would benefit.

Ways to make it better...

More time could be spent on building and implementing programs rather than figuring out how to get money.

In my opinion, the biggest challenges facing this organization are...

Sustainable sources of funding.

One thing I'd also say is that...

Betty Mekdeci has a passion for this nonprofit and with that, great returns will be seen from every dollar contributed.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

Role:  Volunteer & I serve on the Board.
 

Review for In Need of Diagnosis, Orlando, FL, USA

Rating: 5 stars  

It is wonderful that this nonprofit exists. We are all taught to go to the doctor when we are sick but it is never suggested that the doctor might not know what is wrong. And when that happens, there is no plan B. In Need Of Diagnosis, Inc. presents options and ways to find doctors who think differently and knows about tests that often haven't been run. It is a big help and hope to find that there are other avenues that can be investigated.

I've personally experienced the results of this organization in...

Hearing stories of those who have called for help and hope and found some.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

Role:  Donor & I am a contributer.