At 6 months old, my son was diagnosed with Leber's Congenital Amorosis (LCA), total blindness on both eyes. I'll never forget that dr's visit and the initial shock I felt at the time. The Doctor gave me a piece of paper that read: Blind Babies Organization with a contact name and phone number. The next day I called and spoke to the contact I was given. At the time I never would've thought that this phone call would be the link that changed our lives, our son's life, from total despair, to the wonderful journey we've had of raising our son. With the guidance and support of BBF we started early intervention. The rest is history. Our son is now in 1st grade. He can read and type Braille, swims, rides a bike, jumps on his trampoline, uses a cane and so much more... The events and activities through BBF are always special because they are like an extended family that truly cares and has been there every step of the way in our journey. If I could give anything back to them it would be award, after award, after award. They deserve to be acknowledged for making the impossible, very possible. Thank you BBF. We will always appreciate your organization. Much Love. Julie, Mike and Tanner Long
My son was born with low vision and multiple disabilities. Even though I had worked in the blindness field for over ten years I was dumbfounded. BBF came into our lives with care, compassion support and some neat toys for Jacob. The very best thing Dottie did for me was to accompany me to the eye doctor with Jacob. She took notes for me as I usually went into a fog while the doctor spoke. She would call me the next day and tell me what he had said. BBF is over 60 years old and have helped many family and children.
My son was born with a visual disability called cortical visual impairment (CVI). Despite having worked in the area of education for students with visual impairments for more than 10 years, I was absolutely stunned. Blind Babies Foundation was wonderful. Our Home Counselor visited regularly, was available by phone 24/7 and lent us appropriate toys to help stimulate Jacob's limited use of his vision. Most importantly, she accompanied me to his eye appointments, took notes and called me the next day to report what the doctor had said. This was necessary because I was a total basket case in the eye doctor's office and generally couldn't remember anything he said. All this happened almost 30 years ago and Jacob is now grown up, has his MSW and is working for an Independent Living Resource Center in Santa Barbara, CA. BBF was a major player in Jacob's "village". Don't know how we would have managed without Blind Babies Foundation. I am now a volunteer for BBF and am trying to pay back some of what I received.
Outstanding organization that places the family first in their service delivery model. I have the utmost respect for the dedication and professionalism of Blind Babies Foundation staff and their Board of Directors. CLASS ACT!
I volunteered at the Beeper Egg Hunt this year and it was a lot of fun! It was amazing to see firsthand the awesome work that BBF does with all of their families. The seeing-eye-dogs were a nice added bonus :)
In 2012 my baby girl was diagnosed with Joubert syndrome that affected her vision and her muscle tone. At this time i was really emotional and needed alot of support.In the most difficult situation We were put in the hands of Pam Champin who guided us every step off the way without her we could have been lost , always has wonderful suggestions that might help and improve my daughter eyesight she is available by phone, lent us appropriate toys to help stimulate Arlyns vision most importantly she accompanied me to her eye appointments take notes and ask questions after the appointment she takes time to discuss .I'm forever grateful to Pam champin and Blind Babies foundation and will always appreciate her compassion , expertise and sensitivity to my daughters Arlyn needs .
My step daughter became blind at age 6 months from a probable SIDS episode. The Blind Babies Foundation served her and her family with home visits, counseling to the family, and assistance with interactions with medical and educational staff! This little one would not have been able to grow into a happy young adult with the early intervention provided by Dottie Bridge and her colleagues. We are forever grateful to Blind Babies!
There is simply nothing like BBF anywhere. Imagine getting a frightening diagnosis, then having someone who fully understands your child's medical conditions, their developmental challenges and the emotional roller-coaster the family has just jumped aboard arrive on your doorstep.
The support, advise and expertise is second to none. BBF wrote the book on services for blind and low vision infants and preschoolers.
When my daughter Sharon was born in 1984 we soon realized that she was legally blind. We were referred to Blind Babies Foundation, and were put in the hands of Dottie, who guided us every step of the way. Without her we would have been lost. I am forever grateful to Dottie and Blind Babies Foundation and will always appreciate her compassion, expertise and sensitivity to my daughter's Sharon needs.
In July of 2007 my beautiful son Logan was born. I could not be happier with my new bundle of joy. Everything about Logan is perfect and we had a hard time being apart from each other. Very few people would watch Logan and give my husband and I time together because he would cry the whole time. Even I felt like crying when we were apart. I knew something was different with Logan and was assured that he was fine, "go home, his eyes are still growing, he'll start to focus on things soon." I wanted to believe that Doctor so badly. After a few months and over a dozen Doctors we finally found Logan's current Doctor that we see bi-annually. The moment we stepped into his office he gave us a diagnosis for Logan and asked us if we would like for him to call Blind Babies Foundation on our behalf and give us a referral. I vaguely remember much after this moment. I think it was just the word blind that put me in a trance of just non-belief that this was my life and that there was anything wrong with my son. Blind Babies called me the next day and they came out to the house the day after. Blind Babies gave me the initial support I needed to get through the shock of having a diagnosis of a baby with no vision. Blind Babies Foundation helped me wade through the muck of services provided for Logan, our first IFSP, how to get help with our first IEP, and most important what I can do to help Logan now! The only regret I have is not having Blind Babies Foundation available to Logan earlier. The earlier the intervention in a child's life with special needs the better chance that child has at an independent future. Logan just had his first day of 2nd grade yesterday! He is a part of running club, he does dance and is happy to be back with all the friends he made last year. Logan walks with a cane and because of Blind Babies early intervention and parent support we all gave Logan the confidence to be independent, just like everyone else. Thank you Blind Babies Foundation!
Ten years ago my granddaughter was born with HIE, Micricephaly, CP, and CVI ( cortical vision Impairment The people at Blind Babies were called and we were assigned Pam Chapin who worked tiredlessly with our grand daughter. What a lifesaver she was she had wonderful suggestions that might help and improve her eyesight. From constructing a PVC play gym to picking up gold fish, using a early communication board. So many things. She saw us through those first difficult years and helped us find ways to encourage my granddaughter to use what sight she might have.
We were so lucky to have Pam as our therapist and give thanks for all her help. It wouldn't have been possible without Blind Babies Foundation. Forever thankful.