76 Pageviews Read Stories
- EIN 94-3124732
- 813-637-9000
- 3242 Parkside Center Circle Tampa FL 33619-0907 USA
- http://www.alsafl.org
- Add to Favorites
Volunteering
Promote This Nonprofit
Nonprofit Overview
Causes: Health, Nerve, Muscle & Bone Diseases, Voluntary Health Associations & Medical Disciplines
Mission: Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.
Target demographics: People living with ALS and their families.
Direct beneficiaries per year: 1,100 people living with ALS
Geographic areas served: Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.
Programs: The Florida Chapter is a primary source of information and referrals for families trying to manage symptoms when first diagnosed and as the disease progresses. We offer access to books, articles and videos. We run caregiver-training workshops for patients and families and in-service programs for health professionals. We also maintain an educational Website and publish a bimonthly newsletter. We facilitate several support groups providing hope and enabling PALS and their families to discuss and exchange information. We administer a Loan Closets of durable medical equipment, including wheelchairs, lifting devices, and bath equipment. Our Respite Program helps relieve stress and Caregiver "burn out" by providing temporary home health care. Our Augmentative Communication Program provides PALS who have lost the ability to speak to continue to communicate with their families and health professionals.