Raymond A Wood foundation has been our guiding light in the darkest time of our lives. When my son was first diagnosed I felt so lost, helpless and alone. The Raymond A Wood foundation equiped me with knowledge, resources and the confidence I needed to help support my son. Watching Amy and her team pave the way, breakdown barriers, and gain attention from the most outstanding medical professionals on the planet, gives me hope that life might one day become easier than it is now. If not for us, for the ones to follow. I feel less alone navigating this frightening, exhausting, unknown territory because the Raymond A Wood Foundation exists. Forever grateful.
I became aware of the Raymond A Wood Foundation as I continued to search for ways to help my son have a complete life post his craniopharyngioma diagnosis and treatment. During this time, I was afraid for my son's future. There was little research or information about the very rare effects facing survivors of this pituitary brain tumor. However, thanks to the Raymond A Wood Foundation and their commitment to the development of new technologies and on-going research, there is hope for my son and the many other pituitary brain tumor survivors.
I met Amy Wood, the founder and ED of Raymond A. Wood Foundation on our mutually traveled paths of being moms of boys who were diagnosed and treated for craniopharyngioma. I was impressed with the work Amy was doing for brain tumor survivors and felt that we shared a similar passion so I joined the board in March, 2020.
I can personally vouch for the focus and dedicated work ethic of RAWF to improve the lives of hypothalamic-pituitary brain tumor survivors. As parents of a rare disease, we are often left without support by the medical establishment because so many conditions are still poorly understood and inadequately treated- the result is that we must be advocates and research pioneers on behalf of our children and the other families who suffer from these chronic medical conditions. Raymond A. Wood Foundation is exactly such a pioneering organization as we fight for a better quality of life on behalf of hypothalamic-pituitary brain tumors survivors and their families.
I produced the two music videos which were made to (humorously) describe the challenging experiences of living in the aftermath of a hypothalamic-pituitary brain tumor.
The Raymond A. Wood Foundation works very hard to improve the lives of survivors of pituitary and hypothalamic brain tumors. The board is made up of very caring and hard-working members, most of whom have a close family member effected by these devastating tumors. I am so proud to be a member and to be able to help meet the needs of this patient population.